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Well I must tell you what has happened. Sophia's surgery is in eight days and about a week ago I asked if she wanted anything for the trip to Boston. She said she wanted me to get the entire world to pray for her on the day of the surgery. I started making calls, sending emails, and it is starting to happen!! Our congressman Jodey Arrington went on tv to tell her he is praying! He sent her the most beautiful private video last night that made me cry. This man is a worthy leader in politics as he is...

Sophia was air lifted again to the Dallas area after another stroke. The doctors now believe she may have something called Pediatric Central Nervous System Vasculitus as new images show other arteries in the brain beginning to close with inflammation. Her situation is very bad and treatment includes forms of chemotherapy to suppress her immune system to hopefully decrees the inflammation. My husband and I are considering transferring her care to Boston Children’s or Cleveland Clinic which has a vasculitus center. My mother flew in with my son so I am cherishing every second with him in case we leave...

NEWS ON SOPHIA'S CONDITION

Please pray for my six year old daughter. On April 16th she suffered a stroke which left her paralyzed on the left side of her face and her left arm. While hospitalized she suffered an additional stroke which paralyzed her left leg. We were flown to Texas Children's Hospital and are receiving excellent care but the doctors still do not know what is the root cause of the strokes. Sophia is my everything. She has suffered through medical issues her entire life and now we can see depression setting in on her. Her personality is drastically changed and we are...

This is the latest I have from FReeper lilyramone regarding her daughter's ongoing health condition. You may recall they were having a family reunion the last time I updated. Their son is traveling with family members for summer vacation so he can be away from all the necessary routine in caring for Sophia. He was at the reunion but as you can see, Sophia was pretty upset at his leaving again. It's great that she can enjoy the swimming pool and perhaps this will be an unexpected improvement in her therapy. lilyramone is grateful for everyone's prayers and I am...