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http://www.rettsyndrome.org/ My daughter Gabriella was diagnosed with Rett syndrome today. The two links explain what it is technically better than I can. The symptoms are regressive. They begin rapidly regressing at age 2 my daughter is 20 months. After regression their is little to no motor skills and communication along with severe retardation. This all seems to be caused by lack of a protein called mecp2. They are beginning to experiment on mice. Knowing the FDA that means many years till treatment comes out. Can anyone answer these questions. Is it true that protein we eat is broken down into...

Today my daughter was diagnosed with Rhetts syndrome. The symptoms are ataxia (a stumbling walk), hand wringing and little use of the hands, and severe mental retardation. She will begin regressing at the age of 2 she is 20 months now. The link explains it if you want to get into the technical part of it. My wife and I are devastated please pray for us.