URGENT PRAYERS NEEDED - UPDATE - STEPHANIE - DIED AT 1:37 PM - I' M HEARTBROKEN; update @ #99]

Concerned | 07/16/2009 | Me

[Concerned]

URGENT PRAYERS NEEDED - STEPHANIE'S 3RD TRACH OCCLUDES - HOSPITAL ARM-TWISTING for DNR

Earlier thread and updates:
http://www.freerepublic.com/focus/news/2283778/posts
http://www.freerepublic.com/focus/news/2283778/posts?page=181#181
http://www.freerepublic.com/focus/news/2283778/posts?page=203#203
http://www.freerepublic.com/focus/news/2283778/posts?page=239#239

===========================================
(1) THE 3RD TRACH (2ND CUSTOM) ALSO OCCLUDING
===========================================

Prior to the ENT Doctor inserting the 3rd trach (2nd custom), she told us it was our last option, other than re-intubating Stephanie.

For some reason, the trach keeps moving around inside Stephanie's trachea and occluding. It is EXTREMELY positional. Supposedly, the shape of Stephanie's trachea is sort of zig zag.

===========================================
(2) SHE WAS STABLE & IMPROVING WHILE INTUBATED
===========================================

The ONLY reason why we trached her was that the Pulmonologist Doctor (that I do NOT like), and the Respiratory Therapist, kept STRONGLY PUSHING it, saying it would really help her and be FAR BETTER than Bi-Pap or intubation.

STEPHANIE WAS **STABLE** WHILE INTUBATED!!!!!!!!!
SHE WAS **IMPROVING** WHILE INTUBATED!!!!!!!

AND SHE DIDN'T HAVE INFECTIONS!!!!!!!

Of course, although no one could know for sure how well it would work, we RELIED on their training, expertise and CONFIDENCE that it would be "THE" ANSWER.

===========================================
(3) DOCTOR / HOSPITAL PUSHING DNR
===========================================

I am absolutely SICKENED that the Doctor and hospital are PUSHING us to give them orders to DNR.

First, they PUSH to get RID of the intubation---which was WORKING---to go to a trach, then when the trach doesn't help, but instead makes it FAR, FAR, FAR WORSE, they want us to order DNR!!!

They especially don't want to have to give her CPR compression, claiming that they would likely break her ribs if they were to have to do it to her.

Clearly, I don't want Stephanie to hurt or be hurt, but I am VERY CONCERNED a DNR would give them an excuse to not give her CARE if/when she occludes. Since she has no assets or income, she is over 18 (and we could not get insurance on her), and she is on Medicaid, they have been ESPECIALLY eager to get her out the door instead of getting her well first.

===========================================
(4) DOCTOR PUSHED FEEDING WITH BI-PAP
===========================================

When I saw the Bi-Pap Stephanie was on, I was NOT real comfortable with it. I wanted her intubated and to get an "NG" tube so that she could NOT have to worry about breathing or eating.

But the Doctor and hospital RESISTED INTUBATING!!!

And they kept saying that you couldn't get an NG tube with Bi-Pap because it would leak air. But they EVENTUALLY DID JUST THAT ANYWAY!!!

She IMPROVED SO MUCH with the NG tube, they sent her to a regular floor!!!

Once we got to the regular floor (with Bi-Pap), the Doctor then INSISTED that we try to FEED HER BY MOUTH even though they had put in an NG tube---and it WAS WORKING!!!!

And then, she ASPIRATED when fed because she NEEDED the Bi-Pap to breathe yet could not swallow fast enough to get it out of the way before having to have the Bi-Pap!!!

She had been MAKING PROGRESS until then, but then she CRASHED when she tried to eat WHILE STILL DEPENDENT ON BI-PAP (WHICH BLOWS FOOD/LIQUID DOWN YOUR AIRWAY)!!!

At that time, SHE HAD NO INFECTIONS!!!

============================================
(5) I'VE CRIED SO MANY TEARS I CAN'T STAND IT!!! BP 176/108
============================================

Every time the Doctor wants to have a "conference," it is REALLY BAD NEWS!!! And it gets WORSE EACH TIME!!!

Each time, my blood pressure SKY ROCKETS! I took it today after the meeting and it was 176/108!!! (And I take BP meds, although my Doctor just changed it because of a reported defect with the med).

I have cried and cried and cried---till it HURTS!!!

And it REALLY HURTS to think that we may lose Stephanie when she just went in due to a STUPID SEIZURE THAT SHOULD HAVE BEEN CONTROLLED WITH MEDS!!!!!!!!!

And then she ASPIRATED and got ASPIRATION PNEUMONIA---NOT viral or bacterial pneumonia---ASPIRATION PNEUMONIA ---as a result of a STUPID SEIZURE THAT SHOULD HAVE BEEN CONTROLLED BY MEDS!!!!!!!

I am HEARTBROKEN!!!

============================================

[ex-snook]

More and more prayers for God’s blessings.

[TAdams8591]

I am heartbroken for all of you. So tragically sad. We will keep all of you and your daughter in our prayers.

[oldvike]

I’m so sorry for your loss. I can’t even imagine what you’re going through. Prayers sent.

[Aliska]

What a horrible ordeal. My heart aches for you, tears in my eyes reading what you've already been through. May you be strengthened. Usually I don't pray this way, but may God give you a clear, unmistakable sign to comfort you.

[Bigg Red]

Prayers for you and your loved ones. I know how hard it is to lose a child.

[mckenzie7]

May Our Heavenly Father hold you and your family in the palm of His Hand, as He surely is holding Stephanie close to His Sacred Heart now!

[Alberta's Child]

I’m offering my deepest and heartfelt prayers for you and your family, Concerned . . . and may your daughter rest in peace in the arms of Christ.

[cyn]

Dear Concerned, I’m so sorry to learn of this. Prayers for you in this hard loss of your precious daughter. May God’s comfort give you the strength you need through this difficult time.

[Tijeras_Slim]

I’m truly sorry for your loss.

[cubreporter]

Wow :(

[Salvation]

**My HEART ACHES and my TEARS BURN in AGONY with the loss of my sweet Angel, Stephanie!!!**

It’s OK to ache and to let the tears fall. These are feelings that are neither right nor wrong. They just are.

It’s what we do with the feelings that is right or wrong.

So sad to hear of your daughter’s death.

[Salvation]

Dealing with death is one of the most difficult things to do, so this is a post for both you and your friend, Lesie.

It's one of the best hidden ministries around. Look for a BE weekend in your area.

Beginning Experience -- a weekend retreat in your area to work through grief and reach the healing that is possible for those who have experienced the loss of a loved one

[Tuxedo]

Very sorry for your loss.

[TenthAmendmentChampion]

Sincere prayers for your family. What a horrible experience. May God put His loving arms around you.

[Palladin]

I am very sorry for your great loss.

Stephanie is whole and healed in the Kingdom, with the angels and the saints.

Praise God!

[Albion Wilde]

Father God,

Most of us don't know the Freeper named "Concerned", but You know her; You alone know every fiber of her being, and her relationship with her daughter Stephanie. You are her Creator, Stephanie's Creator, and their rock, shield and refuge.

We lift up "Concerned" and her husband, as well as Stephanie's sister, grandparents, aunts, uncles and cousins. Let them now freely remember and celebrate the special life of Stephanie who has been under their care, but who has been giving to them in return her pure love and joy, from Your heart to theirs. Take away all pain and replace it with peace and surrender, Father God. Take away all doubt and fear and replace it with the calm assurance that You are in charge, that Your Holy Spirit is with every one of them always, and that Stephanie is now free of earthly burdens and safe in the arms of her Creator.

Restore "Concerned" to a new day, to a period of rest and prayer, followed by a renewed wholeness of body, mind and spirit.

We pray especially for the salvation and submission of "Concerned's" father and brother to Your boundless love and grace, in recognition of Your sacrifice for their sins. Father, come to them as only You can and convict their hearts and minds of Your infinite mercy and grace. "Concerned" longs for their conversion to Your fold. Give her restful silence and patience, we pray, trusting in You for the outworking of Your plan for her father and brother.

We lift up Leslie, the friend of "Concerned", and the soul of her mother, Nita, who has also passed into Your care. May these friends comfort and support one another in Christian love, helping each other through joy and discouragement by reminding each other of Your love and solace for the broken-hearted.

Father,
may Your will be done through Your mercy,
with the power of the Holy Spirit,
and in the Name of our Savior Jesus Christ,

Amen!

[Kitty Mittens]

I'm So Very Sorry for your Loss, (((((((Concerned))))))). Many Prayers will be Lifted for you, and for your Dad and Brother.

(((((((Tears and Prayers)))))))

[Quix]

!!!!OUCH!!!!

HUGS AND PRAYERS.

Sigh.

[Cindy]

Thank You Lord for Stephanie and all the love that family and friends have, had and will always have for Stephanie.

Thank You Lord for Your peace that will always pass our understanding. Please touch Stephanie’s family with Your peace.

Dear Lord, my prayer is that all of Stephanie’s family members look to You for healing, comfort and answers.

In Jesus’ Holy Name I pray this.
Amen.

[bray]

Dear Lord Jesus,
We pray you would give concerned your Comfort and Strength. We pray you would give her understanding that this is your perfect plan. We thank you for the blessing Stephanie was to so many people and mourn her passing. We pray peace for her family and friends.

In Your Holy Name,
Amen