Posted on 06/01/2009 8:30:04 AM PDT by knittnmom
My daughter, who posts as Ellendra, has had continuing health problems. Dizziness and brain fog started in October 2008 and continues to get worse. She's seen a neurologist, who had eegs, an ekg, and an mri done, which showed nothing. A throid test came back very high, so she's now on meds for that, but there's been no improvement yet.
We suspect Lyme Disease, but tests so far have come back mostly negative. She's now seeing an integrative medicine specialist in another state, and we're waiting for results of about 20 different tests. Meanwhile, she keeps getting worse. Sometimes, her typing looks like a cat walked across the keyboard. Sometimes the dizziness causes her to fall, and she's gotten some bumps and bruises as a result.
She's seeing a different neurologist in July, one who specializes in MS, as that may also be a suspect.
We'd appreciate prayer. Thanks.
Prayers for her health.
Has she been checked for Hashimoto’s Thyroiditis? Also, thyroid medications like Synthroid/Levothyroxine take a week or more to “kick in”, so if it hasn’t been that long and her thyroid is indeed the problem, give it a little time.
Prayers for her health and that the doctors can diagnose correctly and start treating her as soon as possible.
Thanks. It’s been just about a week with the thyroid meds - it’s nice to have a time estimate. The doctor’s office said it would take “some time” for the effects to be noticed. She was started on a very low dosage, with a small increase each week.
prayer bump
It’s true.
We also had Wisconsin university bring some scientists and students to study an area just west of Eagle River and they got it also. People for years have lost dogs to this illness.
Continued prayers.
Two of my daughter's have that, and the symptoms that you are describing sound like something you would experience if you did indeed have complications from Chiar 1.
My daughters’ are considered to be asymptomatic. They are not experiencing any symptoms from it. The chiari 1 was discovered through MRI'S. They both have scoliosis, hence the orthopedists request for MRI’s.
Chiari 1 is when the skull is not large enough to contain all of the brain. My oldest daughter has borderline Chiar 1. She has what you would consider to be overcrowding in her skull. Her cerebellum is kind of pushed up against her brain stem. My middle daughter has part of her cerebellum growing down into her neck, down to C2.
So far the neuro is willing to let things be until symptoms appear. Than there is a surgery for it.
Has your daughter been to a neurosurgeon yet?
My prayers for a speedy recovery for Ellendra!
Catholic Prayer Ping
Please address all prayers to
Ellendra;
If you would like to be added to the Catholic Prayer Ping List, please FReepmail me.
I’ll be happy to add her to our Parish Prayer list. Could you please Freepmail me her first name?
You shall have our prayers.
knittnmom, Ellendra....I’m so sorry I just now checked all my pings.
Calling in Logan’s Prayer Warriors to pray!!
Would you want the "sawdust/shavings" from that operation flowing from there to her brain?
I didn't think so ... I wouldn't either.
Prayers for your daughter.
Very sorry to hear this about your daughter. Hope and prayers that a diagnosis and remedy will come forth soon.
Prayers lifted.
Make sure she gets a CT of her head if she hasn’t had one yet.
I’ll pray...please keep us updated
God Bless
Praying for the correct diagnosis and treatment of the problem and complete healing. God bless.
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