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Keyword: neurofibromatosis

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  • Nick Gilbert, Cavaliers Owner Dan Gilbert’s Son, Dead at 26

    05/07/2023 8:35:13 AM PDT · by nickcarraway · 8 replies
    New York Post ^ | May 7, 2023 | Jared Schwartz
    Cavaliers owner Dan Gilbert’s son, Nick, died on Saturday at the age of 26. He had suffered from the genetic disorder neurofibromatosis. Nick was best known for representing the Cavaliers at the NBA Draft lottery on multiple occasions, serving as a good luck charm. Neurofibromatosis is a rare genetic neurological disorder that causes tumors to grow on nerve tissue and currently has no known cure, according to the American Association of Neurological Surgeons.
  • (Ana's story Part II) Step by surgical step, a life is transformed

    04/06/2009 12:07:35 PM PDT · by cold666pack · 5 replies · 1,284+ views
    The Los Angeles Times ^ | Monday, April 6, 2009 | Thomas Curwen
    For a young woman cut off from the world, a series of risky operations offers hope of ending her isolation. For the surgeons, it's the supreme test. When the nurses wheeled Ana Rodarte into the operating room at Scripps Memorial Hospital in La Jolla, she was already dopey from the sedative she'd been given in pre-op. A heart monitor began to capture her drowsy rhythms. The anesthesiologist covered her mouth with a ventilator, and as she breathed in a mixture of oxygen, nitrogen and anesthetic, the world disappeared. In the long hallway outside, Munish Batra washed up. He had stayed...
  • Ana's Story: Isolated by her appearance, she yearned for a place in the world

    04/05/2009 12:02:59 PM PDT · by cold666pack · 10 replies · 1,408+ views
    The Los Angeles Times ^ | Sunday, April 5, 2009 | Thomas Curwen
    LA Times staff writer Thomas Curwen met Ana Rodarte in December 2005 at Scripps Memorial Hospital in La Jolla. Over the next 3 1/2 years, he conducted extensive interviews with her and her parents, and he and Ana engaged in an e-mail correspondence about living with neurofibromatosis. Curwen and Times staff photographer Allen J. Schaben visited the Rodarte home in Riverside County nearly a dozen times for birthday parties, family gatherings and celebrations. They accompanied Ana to consultations with her doctors, and they observed three surgeries at Scripps aimed at restoring her facial features. * Isolated by her appearance, she...