Our little warrior Jaxson needs your prayers again

Self | December 21, 2019 | AzNascarFan

[AzNASCARfan]

I am trying to get the prayer chains going again... For those of you unfamiliar with Jaxson's journey, We have had some previous prayer threads for him over the past few years... Here are links to them to give you some background on Jaxson's condition if you don't know it.

July '16
October '16
February '18
March '18

My Daughter, Katie, had a page that has his history on it up to about May '18 here Jaxson's got guts until she stopped updating there and moved it to Facebook... I don't think she has done much updating anything since she started school and working awhile back.

[Tilted Irish Kilt]

Thank you for the update.
Jaxson continues to be in my daily prayers.
And I continue to keep him in my prayerful thoughts as well.

[gloryblaze]

Thanks. I was thinking of him the other day and hoped no news was good news. Of course, actual good news is much gooder!

[TianaHighrider]

Praise God ❤🙏❤

[infool7]

So precious to see how our prayers our lovingly answered.

Thank You so much for your wonderful update.

Prayers continue...

God Bless

7

[annalex]

We praise Thee o Lord for the continuing recovery of Thy young servant Jaxson, and we adore Thee.

In the name of the Father, and of the Son, and of the Holy Ghost, amen.

[combat_boots]

Great news

[Ezekiel]

Very sweet photos.

Thank you for the good news update.

A blessed and healthy New Year to you and yours.

[fullchroma]

Dear boy, dear family. Sending love and prayers!

[AzNASCARfan]

Today was a milestone day and I wanted to give everybody a long overdue update and just say Praise the Lord, God is good all the time!

I had planned to do the update on Palm Sunday, because that was the day we got the call last year and found out that Jaxson had a possible donor. But I got sidetracked that day and due to Easter moving around, I guess April 5th was really the date, so I am not even really late. I think his surgery was the next day on the 6th if I remember right. It has been an awesome year and he has progressed so far now, way more than we ever expected when he left here a year ago.

He still has the trach in as well as the broviac and stoma but all that should be removed soon. He was supposed to have a one year check up in Pittsburg a couple weeks ago but Katie and her fiance' split and she had to postpone it because she could not afford the rent alone and had to move.

She took Jaxson to an appointment with the GI Dr a couple months ago and asked if the trach could come out and he said he was not sure, it was up to the ENT Dr. That appt. was a month later and and she asked him and he said he did not know, it was up to the GI Dr. She told him he said it was up to you and asked can you call him and work this out because he has had hiccups for months now which means his diaphragm is working again.

Transition to real food is proving difficult... Awhile back she had him try baby food bananas and he loved them but that is all he would eat and next time they did labs, his potassium was way high because they have him on a regulated amount already so they asked her to stop the bananas. She had not found anything else until recently my wife gave both him and his sister a black raspberry ice cream cone. He ate some of the ice cream but not the cone. A week later he was asking for more of it so we went and got more of it for him and he has had it a few times now.

He had a nurse that was coming to the house daily and staying with him (somebody trach certified has to be with him at all times while he has the trach in) but a few months back, she split with her husband and moved back to Utah. My wife filled in so our daughter could keep working and they never replaced the day nurse, it just became my wifes job and now she watches him and helps him with his online virtual school. His progress really is nothing short of amazing to me just being active and getting stronger. He had a growth spurt and shot up a couple inches and thinned right back out. When I mentioned that the other day, Katie said most of that was swelling from the steroids he was on at the time.

Here are a few current photos... The last one is our Easter photo of him and his sister. For reference they were almost the same height when he came home from the hospital a few months ago. Jaxson will be 8 on the 25th and Paislee will be 5 next month on the 24th.

[fieldmarshaldj]

Thanks for the update. He’s getting big !

Continued prayers for Jaxson’s good health and healing.

[BikerTrash]

God is good all the time!

Can't be said too much.

My prayer for him was to go play. Looks like he's fixin' to do just that.

Wonderful!

[stars & stripes forever]

PRAISE THE LORD! Jaxon is doing so well. GOD has special plans for him and his sister. Thank you for the update.

[annalex]

We praise Thee o Lord and we adore Thee. Great is Thy glory o Lord.

Lord Jesus, we pray for the continuing growth and strengthening of Thy servant Jaxson.

In the name of the Father and of the Son, and of the Holy Ghost, amen.

[Jane Long]

Awwww.....thank you for the wonderful update!

So happy to see this great news.

Prayers continuing for Jaxson and his sweeet family.

[left that other site]

Thanks for the update! I will keep praying for Jaxson.

[FES0844]

He looks amazing! Prayers continuing for this remarkable little guy. God is good!

[infool7]

Praise God!

Thanks for the updates.

7

[PGR88]

He’s getting big!