Posted on 01/17/2014 6:14:56 AM PST by trussell
I have faith that the implant is going to help me...when they took the trial away it was like taking candy from a baby...it was cruel! And waiting so long for the permanent one is cruel too. I am praying I am making the right decision in getting this done. It’s a huge step and one that I struggled with at first. I remember the few days I had the temporary unit in my spine, my legs didn’t hurt, I could lay on my sides and they didn’t hurt! My right hip still hurt like crazy and my back was horrible and my stomach hated me from the buzzing, it would make me sick when I ate! But when the tech messed with the unit before it was removed, she got the buzzing out of my tummy and all the way up my back to the middle of my back! It felt so good, I hated when they took it away!!
Went to the doctor on Wednesday...he asked me how long have I been having the increased pain...I told him that I had complained to his Nurse Practitioner for a few months now and that she has told me “He’s not going to give you anything stronger, period”. He said “I’ll have to have a talk with her, I don’t like to see you in the much pain”. He asked if the percocet was working at all anymore and I said not so much...even when I take 2 of them at once. He said “quit taking those, I’m going to give you dilaudid instead, and give you a numbing PATCH to put on your back...leave it on for 12 hours then replace it with another” He wants to see me in 2 weeks to make sure my pain is being manage. I started the dilaudid a few days ago (as soon as I got through the pharmacy drive through) and so far it only helps at night when I take 2 of them with my nerve medicine and my sleeping medicine. I get the idea that the Nurse Practicianer could be losing her job for not talking to the doctor when I said I was in pain and she said I wasn’t getting anything stronger. She didn’t even TALK to the doctor, and I told him she said that and he confirmed that he didn’t know!
Just found out one of the meds the doc wants me on is not covered by my insurance and it is $275 for a one month supply....no way I will be getting that one. :( The medicine the doc wanted me using is a lidocaine patch, 12 hours each patch then replace it. They say since my insurance won’t cover the patch, they will do the cream instead...but I can’t reach my back to rub a cream on and I’m not comfortable asking my teenage son to rub a cream on my nude back (I am really fat). I am on gabapentin for nerve pain. I’m on amitriptiline 50 mg to help me sleep. As for the new medicine...one 2 mg dilaudid doesn’t do it. I take my middle of the night dose at bedtime...so I take 2 at bedtime as well as taking the gabapentin and amitriptiline. I manage to sleep with that cocktail but the rest of the day is still stiff and sore. I’m hoping I can get the patches so I can get some relief! They talk it up like it’s a miracle drug. Maybe I can find out the name of the manufacturer and see if they can help me get them.
Also, my procedure to implant the spinal cord stimulator is set for January 27th...same day surgery, will be home that night. Really look forward to it, though I’m still scared about having the unit in my spine.
Please, keep up the prayers. I appreciate them so much!
SOunds like one step forward, but only a 1/2 step back FRiend ;)
Prayers for healing and strength continuing.
Tatt
Hope you are doing well. Thank you for the praeyrs. sure wish yesterday would have ahppened. I just want ot get this figured out so i can get around again.
(((((Sending Heartfelt, Loving Prayers, Dearest Trussell)))))
Are you taking a water pill or Vit D or K2 they will thin your blood.
I am not taking any of those. I use to take a baby asprin until they told me that it would cause my blood to be thinner and would mess up the results of the PT / INR, so I quit taking that.
Prayers up.
I’m home. The pain is really bad, the dilaudid isn’t helping. They gave me morphine in recovery and it helped, but my insurance won’t let me have morphine for home use. They put me completely down, tube down the throat and everything. I can feel a difference in the pressure in my abdomen. I think I might be able to eat a regular meal soon (I don’t think I will eat much for the next few days). I’m not suppose to do anything for a few days, but I think my landlord is going to demand a regular meal, regardless of my condition. I’m pryaing that isn’t the case and that he will order something in, but I’m not gonig to count on it. God bless all for the wonderful prayers.
Thank You Lord. Prayers lifting for a quick recovery, FRiend.
continued prayers up.
Prayers up for a successful recovery. (((hugs)))
BTTT
Father God,
May Your peace and rest fall on Trussell. Bind any pain that lingers from the surgery in the name of Jesus. You are the healer.
In Jesus’ name we pray, Amen.
I was right, the landlord is demanding I make a meal even though the doctor gave orders to the contrary... What’s really sick is that we attend the biggest church in the county...and they don’t do like most other churches I’ve ever known that takes meals to those who are healing from surgerys or conditions that keep a person down. I don’t understand that...I guess it just shows that most churchgoers need some guidance to show them what it means to follow God’s word and will. I just called one of the ladies from the chuch asking for prayers and told her what my orders were, hoping she would understand the need and she just ignored that and told me to have my 14 year old son cook for us.
Wow! Sounds like we need to add some prayers for the people around you to gain some sensitivity and compassion. Meanwhile, I hope you can find the strength to refuse to be overworked. Get some rest.
(((HUGS)))
Tracy,
Call the Catholic Church closest to you and find out if they have a St. Vincent DePaul chapter.
If they do, explain your situation, and ask for help.
It’s ridiculous that your landlord should demand a meal since you are sick. Or is that part of you rental agreement/bartering?
Prayers for you so that you can get some help.
All you can do is hang in there and trust things will start to work more so in your favor.
Our responsibilities are that we cook, clean, laundry, take care of the dog, though you would think there would be a bit of compassion and understanding under the circumstances. I will try the catholic church tomorrow when they are in the office, thank you for the suggestion.
Lord Jesus our God be with Thy servant during her recovery.
In the name of the Father, and of the Son, and of the Holy Ghost, amen.
Thank You for the update.
Prayers Continue!
Disclaimer: Opinions posted on Free Republic are those of the individual posters and do not necessarily represent the opinion of Free Republic or its management. All materials posted herein are protected by copyright law and the exemption for fair use of copyrighted works.