I work with a beautiful 11 year old girl with Rhett's. Through this year I've learned so much from her. I know that when I talk with her, (she does not respond other than making a ah shriek) that she understands me. I can tell by her eye's that she's there. I've seen her get really sick, and go from being free fed, to using a G-tube at times. Your daughter is blessed, and make sure she continues to know you love her. Comfort her when she cries, and applaud her for everything. May the Lord shine down and help guide your family to pure happiness. My thoughts and prayers are with you always.
