I will start by saying, Jaxson is doing Awesome! He still has the Trach in but the last time they checked there was more movement in the diaphragm so they think it will heal up without requiring surgery, just more time. It does not seem to bother him much at all, We had a little scare a few weeks back when she could not get the trach back in when doing a weekly trach change. She was able to get the smaller one in and get him to the doctor. He had some tissue growth around the incision that was blocking the trach from going back in, they were able to remove that during a previously scheduled scope appointment.
Jaxson still is not eating solid food, he gets formula pumped in through the G-tube, but he has started tasting stuff here and there at least. He is also taking some medication orally now too, but it is going to be a difficult transition with him never eating anything his whole life. At least he is growing and gaining weight now much better than he was on that TPN before the transplant.
Katie said Drs told her they would be talking about reversing the Stoma after the first of the year, which will be really nice to get rid of the ostomy bags. Hopefully the trach won't be too much longer, He is off the ventilator 4 hours a day, sometimes a little longer and he does fine off it.
Here are a few recent photos... First of him making Christmas cookies and tasting the frosting. Then a couple from Christmas morning, him opening his gifts and one of him and his sister on their new 3 wheel scooters. Lastly a cute one of Jaxson holding his newest cousin Brooklyn at Christmas dinner, He loves holding his baby cousins... She will be 3 months old on New Years day.
Wonderful.
I pray for Jaxson and your family daily.
Thank you so much for the update! He looks great! Praying for you and your family.
Great photos! So glad he is enjoying the holidays and doing normal kid stuff.
Congrats on the new addition to the extended family,
Merry Christmas and Happy New Year to Jaxson and the whole family!
Lookin’ good, mighty man of God.
Fantastic!! Great photos. So happy for your family.
Thanks for sharing . . . a true testimony of faith.
Thanks for the update and good news on Jaxson’s progress ! :-)
Awwww......this update, and these pics, warm my heart!!
Thank you for this wonderful update. Jaxson looks great and so happy and healthy.
Continued blessings - and prayers!! - to you, all!!
Thank you for sharing JAXSON with us. Such a precious boy. He has made an impact in all our lives.
Jaxson looks so much better. He looks great. Thanks for the update.
Daily prayers continue.
Thanks for the update and beautiful pictures!
Prayers continue!
Thanks. I was thinking of him the other day and hoped no news was good news. Of course, actual good news is much gooder!
Praise God ❤🙏❤
So precious to see how our prayers our lovingly answered.
Thank You so much for your wonderful update.
Prayers continue...
God Bless
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We praise Thee o Lord for the continuing recovery of Thy young servant Jaxson, and we adore Thee.
In the name of the Father, and of the Son, and of the Holy Ghost, amen.
Very sweet photos.
Thank you for the good news update.
A blessed and healthy New Year to you and yours.
Dear boy, dear family. Sending love and prayers!