Posted on 12/21/2019 8:24:09 PM PST by AzNASCARfan
I am trying to get the prayer chains going again... For those of you unfamiliar with Jaxson's journey, We have had some previous prayer threads for him over the past few years... Here are links to them to give you some background on Jaxson's condition if you don't know it.
July '16
October '16
February '18
March '18
My Daughter, Katie, had a page that has his history on it up to about May '18 here Jaxson's got guts until she stopped updating there and moved it to Facebook... I don't think she has done much updating anything since she started school and working awhile back.
Glory to God for this CHRISTmas miracle testimony.
Praise God!
Awesome News!
Thanks for the update.
May the many blessings continue.
7
Wonderful report!
God bless all of you!
Thank you!
Thank you for the update, and I will remember Jaxon in my prayers!
How awesome!! PTL!!
Wonderful news. I’ll keep praying for him.
My prayers up for Jaxson and his family.
May God bless and keep you all!
Outstanding news!!
Kids develop on their own timetables and you never know what’s going to spark a jump in development, even in kids with no health issues. Nice!! Here’s to many more!
Continued prayers AND prayers of thanks!
Thanks for the update, and continued prayers for Jaxson.
Thats awesome.I am happy for you guys.
Prayers.
Adding Jaxson and his family to my prayers today ...
Glory be to Thee Lord Jesus for giving strength to Thy infant servant.
In the name of the Father, and of the Son, and of the Holy Ghost, amen.
More prayers on the way!
I need to call on this great prayer team once again...
My grandson Jaxson, his Doctors and the family mourning the loss of their child all can probably use all the prayers they can get in the near future as well as our family too!
My daughter Katie got the call today from the transplant team in Pittsburgh that they had a possible perfect match they have been waiting on for my grandson. Then a few hours later, they called back and said to be at the airport by 4pm for a 4:45 life flight. The pilot said he expected 3 to 3 1/2 hours in the air and it is our understanding he will go straight into surgery tonight when they get there.
We all were a little extra concerned because he has to be perfectly healthy for the transplant and about a month ago Jaxson was in and out of the hospital because his potassium level was not maintaining a safe level, was much too low. They would get it set, send him home and a couple days later drew labs that came back too low. They never could figure out what was going on with the levels.
Because of Coronavirus and him being immuno-compromised being on the anti-rejection drugs, my daughter and my wife decided to try giving him a syringe of Pedialite every hour or two and it seemed to stabilize him to where his labs were coming back good. The last time in, they immediately drew labs and they came back good after being low a day before and had told her to take him back in.
My daughter explained why it was back up from the day before and what they had been doing to try to stay away from ER at this time and they said keep doing it and go back home. So today she explained it to the transplant team and then called her back and said it should not pose a problem but they will monitor it extra close now.
My wife went along for moral support for our daughter but if you could include her in your prayers, she is considered very high risk if she got this Covid-19 disease as she has COPD, so this is not the ideal time for her to be out traveling to another city and spending the next period of time living in the hospital (or even at Ronald McDonald house).
Thanks in advance and I will try to keep everybody updated as soon as I hear anything!
You bet.
Prayers for sweet Jaxson, his medical team, your dear daughter and wife and your entire family...and, the family that is mourning their loss, while offering such a wonderful gift.
May ALL be blessed.
In our Lord and Savior’s precious and Holy name.
Ongoing prayers for Jaxson, all of the family, the medical team and everyone involved.
That first sentence confused and scared me. Who is mourning the loss of their child? Is the procedure still a go?
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