Ditto what you said.
Dreadful. RIP.
All this “awareness” stuff ... guys, have you ever seen a “prostrate awareness month?” - people who don’t live in their parents basement are “aware” of afflictions that harm or kill people.
This has nothing to do with the fund raising.
What is strange about this story is that the firemen that should have been the experts involved, managed to pull off acting like the “hold my beer” guys, and the Captain killed himself through his own job work related incompetence.
How do legitimate firefighters get their cherry picker too close to a power line? And guys die because of it. I have my own suspicions
>>Being aware does not aid in a cure.<<
This awareness campaign raised over $100 million dollars (http://www.alsa.org/news/media/press-releases/ice-bucket-challenge-082914.html) — 50 times what they got in the same period the prior year.
The stunt morphed from “donate OR ice bucket” to “donate AND ice bucket” (although really only 10% have donated, but it still more than doubled donations).
It appears that the bucket challenge is sponsored by the Muscular Dystrophy Association (MDA), not the ALS folks
http://mda.org/disease/amyotrophic-lateral-sclerosis?iq_id=70605366&source_code=140802AAAC030724_-VQ16-c
Other research indicates that 25% of each dollar raised goes to overhead for the MDA.
“Awareness” is disease charity talk for “money”, of which they got millions.
ALS, aka Charcot’s disease took the life of one of my childhood Sunday school classmates, and an acquaintance of mine has a son who is afflicted with it.
However, although it seems to be an effective gimmick to raise money for research in order to find a cure, this ice bucket thing seems silly and can even be dangerous. One might recall that football coach George Allen died of pneumonia after he was doused with Gatorade after a game.
I’m going to try to get a new awareness campaign of my own started: “Drink A Beer To Promote Rabies Awareness.”
Who came up with such a stupid idea anyway?
Anyone that does it is also an idiot.
The ice bucket challenge was an extremely effective fundraising mechanism. With as many worthy causes as there are, it’s very difficult to raise funds for research. “You gotta have a gimmick!” This gimmick spelled the difference between @ $40M and $100M.
Just because it’s genetic, and just because today there’s no cure, doesn’t mean that with proper research funding there won’t be a cure for ALS in the future. Cynicism never cured a thing.
You may wish to go read about the level of awareness and the amount of $$ this has raised before holding these views. While 40 years ago I’d have agreed something genetic couldn’t be cured this country and other leading countries have broken much of the genetic code that make us...I could see a cure some time down the road
I still don’t understand the challenge. So, you get water dumped on you if you don’t want to write ALS a check but every video is of someone getting water dumped on them. IOW, everyone was cheap and ALS didn’t make a dime. Makes no sense.
When the ice bucket challenge started, I knew someone would get hurt. And then a few people did. Very sad. RIP to this firefighter.