Jaxson has made a ton of progress after healing up from the failed transplant in March of 2018. They removed the donor intestines, but had to leave the donor liver and pancreas. He is 6 1/2 now and very small for his age, his 3 1/2 year old sister is about the same size as he is. Besides living on TPN hooked up to tubes for 18 hours a day, all his life, he now has ostomy/colostomy bags too, but even with all that, he has actually had a somewhat (relatively) normal life for the past year or so, in that the time he is unhooked during the day, he has been going to school and making friends.
Recently they got a new special needs boy to the school and he and Jaxson became friends and they moved Jaxson to his class because Jaxson was bringing him out of his shell and so they could both help each other...
They had a class field trip to the zoo about a week ago and my wife Mimi to Jaxson was able to go with him and they had a great day at the zoo. He loved seeing all the animals, but especially liked the monkeys!
Then, last Wednesday, he woke up complaining of a stomach ache and his belly seemed a little bloated, so my daughter took him to the hospital, thinking he was having another line infection.. Something that just happens every now and then with the g-tube, but it had been along time for him out of the hospital this time. They started running their tests and now are worried that he is in rejection and the doctors that did the transplant in Pittsburgh want to see him there. Today my wife and daughter flew back with him on lifeflight and we don't know where this will lead. There is no donor lined up this time if he is rejecting, not sure what will happen.
He has been at the top of the donor list since he got healed up from last time, so over a year now, but because of the failed transplant, the second time they said had to be a perfect match and that match has not been found. We know he is in God's hands and just asking for some extra prayers for strength for Jaxson, our family and the doctors that will be treating him after they arrive in Pittsburgh.
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To: AzNASCARfan
Prayers and blessings to your little Jaxson.
24 posted on
12/22/2019 4:14:07 AM PST by
lilypad
To: AzNASCARfan
Jesus Christ as the Great Physician, heal Jaxson and ease the burden of those who love him. Please Jesus, send Your healing grace to this family right now, Amen
25 posted on
12/22/2019 4:28:07 AM PST by
jmaroneps37
(Conservatism is truth. Liberalism is lies.)
To: AzNASCARfan
Prayers lifted for Jaxson, His Family, and all those who are treating His illnesses.
26 posted on
12/22/2019 4:55:07 AM PST by
Col Freeper
(Liberals: Devoted members of the "Church of the Eternally Offended".)
To: AzNASCARfan
Prayers up for Jax and his family.
27 posted on
12/22/2019 5:05:41 AM PST by
TalBlack
(Damn right I'll "do something" you fat, balding son of a bitc)
To: AzNASCARfan
God's complete healing for Jaxson!🙏🏻 I hear The Methodist transplant specialty hospital in San Antonio Texas is one of the best in the country. In case y'all need more speciality advice. God bless!
To: AzNASCARfan
Prayers up for Jaxon...for stregth, healing, and courage, in jesus Most Holy Name, Amen.
29 posted on
12/22/2019 6:13:26 AM PST by
left that other site
(For America to have CONFIDENCE in our future, we must have PRIDE in our HISTORY... DJT)
To: AzNASCARfan
Thanks for the update Az
Prayers continue for little Jaxson
7
31 posted on
12/22/2019 12:20:51 PM PST by
infool7
(When you have the Lord, nothing else is important and everything is fascinating!)
To: AzNASCARfan
Prayers for Jaxson and his family.
33 posted on
12/22/2019 12:59:46 PM PST by
lysie
To: AzNASCARfan
Super Jaxson,Doing so good.We are going to pray for the best match and pray for his Family AzNASCARfan,Fatima ((((Hugs))))
34 posted on
12/22/2019 1:06:32 PM PST by
fatima
(Free Hugs Today :))
To: AzNASCARfan
I will surely pray for him and the family.
To: AzNASCARfan
Continuing to pray for him,
and for your family.
To: AzNASCARfan
Praying for Jaxson and all of you. I know what it’s like...my greatgrandson had a liver transplant in Pittsburgh when he was 6 months old. He is now a smart and feisty 6 year old.
But the constant worry...whether there will be a failre, even this far down the road. He will always be on the anti-rejection meds, which have to be adjusted often, and which have unpleasant side effects.
Had a big scare this summer...his T- cells went way down ...he was very sick, but the docs straightened it all out.
It’s so nice to hear about Jaxson finding a little friend at school!
Our Judah is home-schooled but he has companions...two brothers and a sister! Judah has also had the lifeflight experience! But the plane had engine trouble halfway between Memphis and Pittsburgh, they had to land and take an ambulance the rest of the way.
Be assured, every time I pray for Judah, I will lift up Jaxson right beside him !
37 posted on
12/22/2019 1:56:50 PM PST by
miserare
( Indict Hillary!)
To: AzNASCARfan
Prayers for Jaxson and all of you.
39 posted on
12/22/2019 2:41:01 PM PST by
Bigg Red
(WWG1WGA)
To: AzNASCARfan
Almighty and most merciful God I bring before You this little boy, Jaxson, in all of his pain and suffering and ask that in Your grace and mercy You would minister to Jaxsons parents in this time of suffering and heal Jaxson as only You can. Amen
To: AzNASCARfan
FATHER GOD. GREAT PHYSICIAN. HEALER.
Thank You for Your Only Son, JESUS CHRIST, Who won the victory over sin and death! By His stripes we were healed.
May the blood of JESUS flow through Jaxson, cleansing his organs and making him whole. LORD, cause Jaxson’s transplanted organs to normalize so he will never need another transplant.
With You, GOD, all things are possible.
Give the specialists wisdom and discernment on how to treat Jaxon. May they witness a great and mighty miracle and give You the glory.
In JESUS’ Name we pray. AMEN.
43 posted on
12/22/2019 4:35:37 PM PST by
stars & stripes forever
(Blessed is the nation whose God is the Lord. Psalm ( 32:12))
To: AzNASCARfan
Prayers up. May the best that can happen, happen.
44 posted on
12/22/2019 5:09:15 PM PST by
Twotone
(While one may vote oneself into socialism one has to shoot oneself out of it.)
To: AzNASCARfan
Thanks for the ping! Prayers for up for the little one!
47 posted on
12/22/2019 9:48:07 PM PST by
TEXOKIE
To: AzNASCARfan
To: AzNASCARfan
Lord God Jesus Christ our Healer and Savior, we pray and beseech Thee to bring Thy young servant Jaxson to complete healing. May the suitable transplant be found and his health restored.
We pray in the name of the Father, and of the Son, and of the Holy Ghost, amen.
61 posted on
12/24/2019 5:08:40 AM PST by
annalex
(fear them not)
To: AzNASCARfan
May our Lord and Savior grant healing to little Jaxson. May He grant peace to your family.
69 posted on
12/24/2019 1:31:13 PM PST by
OldCorps
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