Jaxson has made a ton of progress after healing up from the failed transplant in March of 2018. They removed the donor intestines, but had to leave the donor liver and pancreas. He is 6 1/2 now and very small for his age, his 3 1/2 year old sister is about the same size as he is. Besides living on TPN hooked up to tubes for 18 hours a day, all his life, he now has ostomy/colostomy bags too, but even with all that, he has actually had a somewhat (relatively) normal life for the past year or so, in that the time he is unhooked during the day, he has been going to school and making friends.
Recently they got a new special needs boy to the school and he and Jaxson became friends and they moved Jaxson to his class because Jaxson was bringing him out of his shell and so they could both help each other...
They had a class field trip to the zoo about a week ago and my wife Mimi to Jaxson was able to go with him and they had a great day at the zoo. He loved seeing all the animals, but especially liked the monkeys!
Then, last Wednesday, he woke up complaining of a stomach ache and his belly seemed a little bloated, so my daughter took him to the hospital, thinking he was having another line infection.. Something that just happens every now and then with the g-tube, but it had been along time for him out of the hospital this time. They started running their tests and now are worried that he is in rejection and the doctors that did the transplant in Pittsburgh want to see him there. Today my wife and daughter flew back with him on lifeflight and we don't know where this will lead. There is no donor lined up this time if he is rejecting, not sure what will happen.
He has been at the top of the donor list since he got healed up from last time, so over a year now, but because of the failed transplant, the second time they said had to be a perfect match and that match has not been found. We know he is in God's hands and just asking for some extra prayers for strength for Jaxson, our family and the doctors that will be treating him after they arrive in Pittsburgh.
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To: AzNASCARfan
Praying.....God bless him
2 posted on
12/21/2019 8:28:28 PM PST by
Guenevere
(Psalm 37)
To: AzNASCARfan
Praying for Jaxson and his family.
3 posted on
12/21/2019 8:28:55 PM PST by
TheWriterTX
(Trust not in earthly princes....)
To: AzNASCARfan
4 posted on
12/21/2019 8:31:01 PM PST by
Texas Eagle
(If it wasn't for double-standards, Liberals would have no standards at all -- Texas Eagle)
To: AzNASCARfan
Praying for Jaxson and his family and I will spread the word to my local community tomorrow and have Jaxson put on the prayer list of multiple churches.
6 posted on
12/21/2019 8:31:54 PM PST by
txnativegop
(The political left, Mankinds intellectual hemlock)
To: AzNASCARfan
Many, many prayers going up.
7 posted on
12/21/2019 8:32:19 PM PST by
peggybac
(Government is about force. It always has been about force.)
To: AzNASCARfan; Faith; infool7
8 posted on
12/21/2019 8:36:40 PM PST by
fieldmarshaldj
(Dear Mr. Kotter, #Epsteindidntkillhimself - Signed, Epstein's Mother)
To: AzNASCARfan; Kathy in Alaska; LUV W; radu
** Prayer Warriors Ping List **
To: AzNASCARfan
Prayers offered for little big trooper Jaxson, may he get the necessary organs he needs for immediate transplant. Amen.
To: AzNASCARfan
Big prayers to all of you.
To: AzNASCARfan
Big prayers to all of you.
To: AzNASCARfan
To: AzNASCARfan
God bless Jaxson. Count on my prayers!
To: AzNASCARfan
Prayers for him, and all of your family.
16 posted on
12/21/2019 9:11:37 PM PST by
Yogafist
To: AzNASCARfan
17 posted on
12/21/2019 9:15:11 PM PST by
ransomnote
(IN GOD WE TRUST)
To: AzNASCARfan
18 posted on
12/21/2019 9:24:12 PM PST by
BlessedBeGod
(To restore all things in Christ~~Appeasing evil is cowardice~~Francis is temporary. Hell is forever.)
To: AzNASCARfan
Praying now for God’s wisdom for the doctors, peace for your family and that his little body does not reject those organs in Jesus name...amen
19 posted on
12/21/2019 9:33:40 PM PST by
terart
To: AzNASCARfan
20 posted on
12/21/2019 9:39:50 PM PST by
Eddie01
To: AzNASCARfan
Im so sorry for the little guy. I pray that the Drs he sees have all the tools they need to make him healthy . May god bless him and may he and his family have a Happy and Merry Christmas.❤️
To: AzNASCARfan
Loves breath once breathed,
cannot be exhaled.
God is with you.
22 posted on
12/22/2019 12:04:16 AM PST by
Lean-Right
(Eat More Moose)
To: AzNASCARfan
Praying for Jaxson, his family and doctors.
23 posted on
12/22/2019 12:15:03 AM PST by
dougherty
(I saw the angel in the marble and carved until I set him free. - Michelangelo)
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