Posted on 08/21/2010 9:18:48 PM PDT by Quix
Metmom has had allergies and food allergies her entire life. In the last few years they have gotten steadily and progressively worse. Foods have been dropping out of her diet until she reached the point she is at now and can only eat rice, chicken, lamb, and venison. Anything else causes her to react rather destructively, debilitatingly.
The problem is that the repeated continual exposure to the few remaining foods, could lead to a sensitivity to those as well, which has just happened to two foods she had been safely eating since October.
There are options for nutrition should she start to react to all foods, but they are used only in the most dire situations. She's concerned about reaching that point--and frankly has been feeling more than a little discouraged by all such.
She has undergone extensive medical testing which has all been inconclusive. Almost everything comes back normal or negative, and the few things that she does test positive for arent what causes her the most problems.
She is attempting to get into a regional medical center for more specialized medical evaluation to see if they can determine the cause and possible treatment, if any exists.
She has been prayed for and anointed numerous times over the years, however, she would appreciated continued prayer for complete healing.
PLEASE UNDERSTAND HER PLIGHT with as much empathy as you can. She's been through a 1,001 suggestions and tried a LOT of different things. She's been through the Henry Wright seminar and prayers extensively. I don't think she is quite up to handling any more suggestions currently. Those who've been through such can understand such a feeling. She just greatly would appreciate your understanding and PARTICULARLY YOUR CARING PRAYERS.
This summary is per my understanding and might be stated somewhat differently were she writing it herself. I believe she'd affirm the truth of what I've said but these are essentially my words.
THANKS IN ADVANCE FOR YOUR PRAYERS.
Keeping you in prayers (((metmom))). I think you are on the right track to get to the best diagnostic hospital you can.
Gracious!
Prayers up!
Prayers to MetMom. Always a wonderful FREEPER and FRiend.
Prayers sent for metmom.
Leni/MinuteGal
prayer bttt
I pray that you beat this thing, Metmom.
Whatever transpires, DON’T GIVE UP HOPE!
Last year my son was hospitalized for over a month....many tests and exams later it was discovered he had Celiac disease...his weight loss and health went down rapidly. When he changed his diet accordingly his health not only returned but has looked better an felt better than any other time in his life. However I would imagine they have already checked for this with Metmom.
Recently I read about these Vietnamese people who have autoimmune reactions to ALL GRAINS, not just wheat/rye/barley.
They have trouble with corn, oats, wildrice and japonica rice. The result is they can eat only indicum rice, and NO BAMBOO SHOOTS either.
They have a problem with potato. Apparently there are some little bits of chemicals from the peels that get into the starchy areas, and they are simply more sensitive to that than the rest of us who get away with peeling the potatoes.
So, what do they eat? Well, lots of indicum and tapioca. And fresh water fish.
You can make lots of different things out of those ingredients ~ rice noodles, rice paper, rice balls, rice-rice, fake bread, fake cakes, filler for use in making the gelatinous green stuff they eat a lot of (bandelon). Hey, I eat a lot of that. Vietnamese native pastries and sweets are my favorites because I can count on them not having even traces of wheat gluten, plus their bakery is right down the street.
Metmom is down to eating chicken and sheep meat. She had no problem eating ostrich. That right there points to a partially understood autoimmune reaction to various commonly eaten mammals. Thankfully I don't have that problem.
Another type of autoimmune reaction centers on beans ~ some people have difficulty with blackbeans and fava beans. Some people die from contact with those beans.
Yet others have difficulty with kidney beans.
You might think that would be easy to control ~ just don't eat kidney beans. Alas, there's a breed of white kidney beans that's been developed to produce huge quantities of alpha amylase. That's a digestive enzyme similar to beta amylase (found in your own saliva).
They take the beans, process them for the amylase, and then stick it into DOUGH CONDITIONER. The chemicals that some people react to with an autoimmune reaction are found in trace amounts in DOUGH CONDITIONER or any other product those white kidney beans are added to!
I started working on a list of things where kidney beans, or their extracts, could be found and it was just too much ~ literally everything can have kidney bean stuff in it ~ even meat from animals fed kidney bean residual meal.
I'm sure Metmom has been tested for all of that and found to have an allegy to them.
So the question is how to avoid contact. Obviously you must eliminate all pastries and pastas! Then candybars. Then Japanese confections. Then Chinese confections. Then just about everything else.
The only compensation is you can shop a very large grocery store in about 5 minutes.
Notre père, qui êtes aux cieux!
Que votre nom soit sanctificié. Que votre règne vienne.
Que votre volonté soit faite, sur la terre comme au ciel.
Donnez-nous aujourd'hui notre poindre ce jour.
Pardonnez-nous nos offenses, comme nous pardonnons aussi a ceux, qui nous ont offensés,
et ne nous soumetez pas à la tentation, mais délivrez-nous du mal.
Car c'est à toi qu'appartiènne, le régne, la puissance et la gloire, pour les siècles des siècles.
Amen.
Je vous salue, Marie, pleine de grâces,
le Seigneur est avec vous, vous êtes bénie entre toutes les femmes,
et Jésus le fruit de vos entrailles est béni.
Sainte Marie, Mère de Dieu, priez pour nous pauvres pécheurs,
maintenant, et à l'heure de notre mort. Ainsi-soit-il.
Garde la Foi, mes amis! Nous nous sommes les sauveurs de la République! Maintenant et Toujours!
(Keep the Faith, my friends! We are the saviors of the Republic! Now and Forever!)
LonePalm, le Républicain du verre cassé (The Broken Glass Republican)
My sense is it would be less stress and angst to her to send the suggestions to me by FREEPMAIL and I’ll save them to a folder and put them all in one doc for her to read and ponder when she feels up to it.
Unless she feels otherwise on a given day for whatever reason! LOL.
If I understand from similar ‘glimmers of hope repeatedly crashed cycles’ . . . it’s like . . . a new suggestion comes along . . . one appreciates the caring it’s offered in . . . maybe one’s been there and done that and the memory is of yet another dashed hope. Or, one hasn’t tried that and the prospect of mustering the hope and effort and resources to try yet another probably frustrating futile something is just not all that attractive. Yet, what if it IS the thing that would help. The tornness between the two can be exhausting.
. . . as I understand it . . .
No suggestions here—just prayers, MetMom. Be well, fast!
You’re a loveable trip as ever. But I won’t tell anyone.
AMEN! AMEN! AMEN!
THANKS AGAIN TO ALL WHO PRAY WHETHER YOU POST OR RESPOND OR NOT.
You’ll be in my prayers, metmom!
D3 has been a big help with my genetic weak immune system.
She listed a partial list upthread. I forget what number. I think it was in the first 50 posts. Certainly the first 80, IIRC.
Get a consult with this guy: http://www.vitals.com/doctors/Dr_Ramesh_Adiraju.html
Yes. That one she’s been through the routine on.
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