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It is still VERY early in the recovery process, and I know now from reading more about other peoples BMT experience and recovery that there are lots of hurdles that may have to be overcome. But SO FAR there has been no serious problems or complications.

As parents, we are concerned but also very hopeful. Each day that goes well – without any serious issues arising other than what is normal and expected - makes it a little less likely that something will occur in the future, I think / hope.

We will give another update as things progress, in a month or so at the very least.

1 posted on 07/29/2003 12:26:47 PM PDT by muffaletaman
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To: muffaletaman
UPDATE on BONE Marrow Transplant -- sheesh... spelling...

Link to previous post:

Vanity - Bone Marrow Transplant Recipient

Thanks again to everyone...

2 posted on 07/29/2003 12:32:37 PM PDT by muffaletaman
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To: muffaletaman
Thanks for the update and I'll continue to pray for your family.
3 posted on 07/29/2003 12:57:11 PM PDT by austingirl
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To: shattered; andysandmikesmom; trussell; MeeknMing; Salvation; dansangel; Alamo-Girl; onyx; ...
To all of you who responded to the earlier post... I know we have had the prayers and good wishes of so many of you... THANKS forever!
4 posted on 07/29/2003 1:10:32 PM PDT by muffaletaman
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To: muffaletaman
Praise the Lord for the progress. Thank you for the update and ping.
6 posted on 07/29/2003 1:19:10 PM PDT by djreece
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To: muffaletaman
God is awesome and so is the power of FReeper prayer.

Have had Lani Marie and all of you in my prayers since your original post. Will continue to offer up prayers for all of you and will target her counts to keep them on the rise.

God bless all of you - this has been a remarkable story and a *journey* for all of you. May God continue to bring you all strength. We thank You, our loving Father, for the favors that You grant. Please keep Lani Marie's counts rising to where they should be. We ask these favors in the name of the Father, the Son and the Holy Spirit, Amen.

Thank you for the update!
7 posted on 07/29/2003 1:20:02 PM PDT by dansangel (America - Love it, Support it or LEAVE it!)
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To: muffaletaman
This is wonderful news - more prayers on the way - thanks for the update!
15 posted on 07/29/2003 2:09:19 PM PDT by M. Peach (eschew obsfucation)
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To: muffaletaman
This does indeed sound like good news. I will continue to keep your family in my prayers. Good Luck and God Bless!
16 posted on 07/29/2003 2:23:00 PM PDT by volchef ((if all scum are democrats does it follow that all democrats are scum?))
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To: muffaletaman
But SO FAR there has been no serious problems or complications.

Praise the Lord!! This is such good news. May the Lord give you all the patience and renewed strength for the rest of the recovery process.

Nana

17 posted on 07/29/2003 2:36:09 PM PDT by nana4bush
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To: muffaletaman
Thank you for the update. May God continue to bless you and your wonderful family.
18 posted on 07/29/2003 2:39:11 PM PDT by Bigg Red
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To: muffaletaman
I put both Lani Marie and Jennifer on our Parish Prayer Line this week, so now you have even MORE folks praying for them!
20 posted on 07/29/2003 3:06:25 PM PDT by SuziQ
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To: muffaletaman
Wonderful news! Thank you for the update. May God smile down upon all of you.
22 posted on 07/29/2003 4:20:18 PM PDT by Sunshine55 (Use your tax rebate to buy American!)
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To: muffaletaman
God bless you and all your family. This has had to be so hard on all of you. Prayers for complete recovery also.
25 posted on 07/29/2003 5:39:14 PM PDT by tiki
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To: muffaletaman
Thank You , for the update.

I've been waiting anxiously for the good news.

Peace

27 posted on 07/29/2003 6:54:27 PM PDT by Eustace
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To: muffaletaman
Thankyou for the update ping. Please know that my family will continue to pray for Lani and Jennifer. We also include the rest of your family as we know this can be a very trying time for all of you.

The unselfishness of your children speaks volumes for you and your wife. Lani is in good company and that will help her in her healing.

Blessings from the trussell family.
29 posted on 07/29/2003 8:37:59 PM PDT by trussell (Small things occupy small minds. No wonder dems can play with themselves for hours.)
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To: muffaletaman
:-D

Praise God from whom all blessings flow!!

33 posted on 07/29/2003 10:25:01 PM PDT by patriciaruth
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To: muffaletaman
Thank you so much for sharing all of this with us! I continue to pray for her healing and for blessings for the whole family!
34 posted on 07/29/2003 10:37:30 PM PDT by Alamo-Girl
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To: muffaletaman
Thanks for taking the time to post the lengthy update. Praise God from whom all blessings flow! Prayers God's healing mercies for all concerned continue.
37 posted on 07/30/2003 11:37:12 AM PDT by Freedom'sWorthIt
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To: muffaletaman
Thank you for taking the time to inform us about both of your daughter's recovery. Your family will still be my prayers. It sounds as if you almost have it made. With our Lord's help I am sure it will be done. May God bless each of you.
38 posted on 07/30/2003 1:34:54 PM PDT by Bizzy Bugz
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To: muffaletaman; shattered; andysandmikesmom; trussell; MeeknMing; Salvation; dansangel; Alamo-Girl; ..
To be removed from this "ping" list, please reply by freepmail (private reply) indicating "Please Remove" and you will be deleted from it immediately.

Any who may wish to be added to the ping list, reply by freepmail (private reply) indicating LMK-BMT-ADD.




Well, things are really starting to move.

Lani Marie's ANC count:

All for the last 2+ weeks
after the transplant but before
last Sunday 0 to 1
Sunday 5
Monday 10
Tuesday 80
Wednesday 100
Thursday 260
Friday 740
Saturday 2890 (today) - WOW!

Lani Marie has a viral infection in the intestine, but the doctors indicate that it is not something they are extra concerned about - just monitoring. They are doing another culture today to see if it is clearing up.

Lani Marie is still having a little nausea from time to time, but not actually getting sick. She is tired often, but in between is getting to be a little more perky, it seems to me. And she is still resting well through the nights. Not eating any food yet... she had half a popsicle yesterday and that was all she cared for.

They are going to do an "Engraftment" study Monday. This will tell them exactly what type of white blood cells are being made - are they from Lani Marie's NEW bone marrow from Jennifer, or from her OLD bone marrow.

The result -->Should<-- be that it is all the NEW type cells and zero of the old original cells.

If there are any of Lani Marie's old white blood cells, that means that some of the old defective bone marrow has probably survived the chemo and radiation.

If this is the result, it is not what we want.

They would treat that by giving her more of a specific type of white blood cells from Jennifer. As I understand it, these white cells will attack any remaining old bone marrow cells and try to eliminate them as foreign bodies.

We will let you know how the study results turn out.

But the activity burst in her ANC count is outstanding!
40 posted on 08/02/2003 11:23:30 AM PDT by muffaletaman
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To: muffaletaman
Still praying
45 posted on 08/02/2003 11:46:47 AM PDT by kitkat
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