Where are you? State? City?
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Look up the treatment threads with CLL as a keyword.
Here is one of them with good success rate for a more aggressive CLL:
https://medicalxpress.com/news/2023-05-combination-therapy-outperforms-chemotherapy-clinical.html
After a couple years, only 18% has a recurrence using a non-chemo combination.
may our Lord grant you strength and complete healing though this time of trial. may He send, guide and direct your caregivers who will treat you. and most of all may He grant you the ‘peace that passes all understanding.’ His Will be done. in Jesus’, the Great Physician’s, Name, I ask. Amen.
i haven’t read much about blood cancers except that they have advanced greatly in custom tailored medical treatments these days at Stanford. i know of two people personally who have had excellent results (cures or remission) there. one eventually had a bone marrow transplant and is cancer free.
you can ping your prayer request our beloved stars & stripes forever with a . comment, iirc, to request that she add you to FR intercessors thread. may God grant His perfect Help and Blessing you and yours!
I was diagnosed with AML two weeks ago. Life is now trips back and forth to the hospital for treatment.
There is a Leukemia sub-Reddit group where people exchange information that might be helpful. I wish you well!
Please go to Cancercommons.org. They will help you. It is free. It was founded by an AI billionaire 25 years ago after he nearly succumbed to cancer after some poor treatment and he decided that there had to be a better way to get information on the best treatment. There is a panel of MDs and PhDs who will look at all your medical data and let you know if you are receiving the most cutting edge care. It helped me and I recommend it.
Im so sorry. I had AML.
I have smelled a chemical/burnt sugar smell before, at Yellowstone, from those mud pots and thermal springs. So, maybe sulfur is what you are sensing.
I will pray for you tonight. 🙏 I’d say go for a second opinion. Private message on the way...
I have a similar diagnosis of Chronic Lymphocytic Lymphoma and it is linked to my Cold Agglutinin Disease. I was diagnosed at stage 4 in 2018, although I was showing symptoms as early 2002/2003.
I am sorry you’re going through this and I will be praying for you.
My treatments consisted of Rituxan, then later Rituxan along with Bendamustine. Both were easily tolerated and the last time I needed treatment was in the fall of 2021.
I advise adding to your regime drinking Essiac tea. You can buy it on Amazon.
Also, eat about 7 - 20 Apricot pits every day. They contain laetril which causes apoptosis. Do NOT eat them as you would nuts. They also contain a naturally occurring toxin (amygdalin). When eaten, this toxin can react with stomach enzymes and release a poison (cyanide) in the gut. So, be careful with this one.
Do NOT EAT anything with sugars. This includes rice, bread, potatoes, corn, or legumes. Carbs = sugar.
Finally, TAKE IVERMECTIN.
All of my advice is not medical advice. It is just what I have done. At present, there is no cancer seen in my blood. As long as I’ve kept my CAD under control, my cancer has “disappeared.” I use scare quotes because my hematologist/oncologist assures me it is actually still there.
Feel free to ask me anything. Just bear in mind, I have a similar, think “parallel”, illness. It is not quite the same.
Oh, one more thing, I literally travel around the world to see my doc. I think he is that good.
In reviewing the replies you have so far, I can see most of the crazies are still around. Probably the last thing you want is a diagnosis and treatment from some internet forum, Facebook, Google, etc. That is, unless it is a valid medical site like MD Anderson, Memorial Sloan Kettering, or the like. Even then, you need to be seen by a medical professional!
By the way, I'm still waiting for someone to reply with the notorious "coffee enema" treatment that can only be had in Tijuna, Mexico for several thousand dollars.
CLL is somewhat rare, with about 20,000 cases a year, so most docs, including local onc docs, see only a handful of patients a year and do not have first-hand experience as they do with other cancers like breast, prostate, lung, and hard tumor cancers.
What saved my life was to seek out the best medical advice I could find from a top cancer research center. There are only about 10 in the country. My choice was MD Anderson, the top cancer center in the country where they only treat cancer.
CLL is highly treatable, with a five-year survival rate of well over 80%. There are numerous treatments that can only be determined after the proper diagnostic testing, which most local and even regional centers don't have. You don't have to be treated at that top center, but get a second opinion at a minimum.
The bottom line, if you want the best option for survival, is to be seen and assessed by an expert in your disease. Anything less can be costly.
Here are a few good sources of top cancer centers around the country....
https://www.cancer.gov/research/infrastructure/cancer-centers
https://health.usnews.com/best-hospitals/rankings/cancer
https://www.oncologynewscentral.com/article/us-news-releases-2024-2025-cancer-care-center-rankings
Stop ingesting fructose in all of its forms, including fruit. Stop ingesting wheat and related grains. Build your diet around meat and fat, heavy on fat.
You won’t do any of these things, otherwise you wouldn’t be in this predicament. It was nice knowing you.
Just saw this today; don’t know if it will be any help.
https://medicalxpress.com/news/2025-02-oral-arsenic-trioxide-leukemia-hong.html
Prayers up.
I am sorry to hear you are going through this.
I do not have any advice regarding leukemia.
I am a big tea drinker. I have found that ginger tea, turmeric tea, dandelion root tea, green tea, chamomile lavender teas, a couple of others calm my nerves, perk me up, make me sleepy, make feel as if toxins are being removed and inflammation is reduced, etc. Different teas do different things.
I put manuka honey in my Earl Grey. It is a natural anti viral and anti bacterial agent and also very nutritious.
Recently I discovered some lemongrass broth packets at Wal-Mart that calm me down and provide a bit o nutrition with a savory slightly sour flavor that is a nice change up from the teas.
I drink cold brewed hibiscus and cherry teas.
I would urge use to look into teas if you haven’t already.
Be sure to check for interactions, however, with your meds.
If I could only drink one tea, it would be turmeric tea. It is a powerful aid to the human system, calming without making you sleeping, anti inflammatory and anti bacterial and viral.
Thank you for your replies everyone.
Yesterday I had more bloodwork. I’m being tested for gene deletions and mutations to see which treatment will work best. I forgot what they were called because there were so many. I want to know why they didn’t do that first after suffering for so long. I also researched more oncologists and found one that looks promising. I sent him my medical records from all my oncologists for him to review. Praying that this is the doctor that can help me.