Posted on 03/29/2018 7:47:08 PM PDT by 353FMG
The Institute of Neurological Recovery (INR), located in Boca Raton,FL, claims that they have developed a patented treatment that can reverse stroke symptoms. Their claim is accompanied by many YouTube videos that show the almost miraculous recovery by stroke victims, Alzheimer patients and Sciatica sufferers. The procedure is not covered by Medicare or any other health insurance agency that I know of.
That is true of all frauds.
Youtube is hardly a good place to get medical advice. It sounds like a classic scam. Short on details, long on success stories. If it is so good, you can give details about it.
My sister fell for one of these frauds. She gave me a tape about it and some of the claims were just ludicrous. The tape claimed that sewage treatment plants had massive piles of vitamin pills that survived the digestive system. I knew that was false. The quack was a Nobel Prize nominee (you can nominate anyone).
But she wanted to believe it so she did.
Patents are public. Have you found the patent?
No independent medical research on a medical issue means I generally will not stake an opinion, and that is the case here. A promo video to me is not “documentation”.
I had a stroke October of 2016. The imaging related to that event identified an unrelated astrocytoma which was removed in January of 2017. That was followed by radiation and a year’s worth of chemo- just finished my last round of chemo in February. Lots and lots of PT to get functionality back, along with plenty of support (and the occasional kick in the pants when I was feeling sorry for myself) from family and friends.
I wish there was a miracle drug that’d magically resolve the issues following TBI, but I’m more than a little skeptical.
The doctor in the video is Edward Tobinick. According to his Wikipedia article, he was doing dermatology and laser hair removal prior to getting into neurology with Entracept. Seems a little outside of his previous areas of expertise.
https://en.wikipedia.org/wiki/Edward_Tobinick
The drug he’s using is called Etanercept. As mentioned in the video, that’s not his discovery- it’s an existing pharmaceutical he’s using off label. It is already approved for use in cases of arthritis. It’s interesting that the drug’s manufacturer isn’t advocating it’s use for strokes etc- since that would seem to be a huge market to expand into for an already existing pharmaceutical-
https://en.wikipedia.org/wiki/Etanercept
The breakthrough here then has to be the method of delivery, injecting it into the spine gets it past the blood brain barrier? It doesn’t seem like that would be difficult to study/replicate by other doctors, there certainly would be no shortage of potential patients seeking ANY improvement to their post-stroke condition, even if it was not nearly as profound as the lady featured in the video.
There was an article very critical of Tobinik’s claims-
https://sciencebasedmedicine.org/enbrel-for-stroke-and-alzheimers/
What is also apparent about the YouTube videos is there are very few comments made about this miraculous treatment so as to prevent any argument or discussion.
These phony physicians and their “actor” supporters should be held accountable. It is truly amazing how many videos have been produced (over 150) showing this magical healing procedure. I have never witnessed such a large-scale fraudulent operation (if it is a fraud). I am surprised that no reputable physicians, nor the AMA, have investigated the miracle claims presently published in Boca Raton.
These phony physicians and their “actor” supporters should be held accountable. It is truly amazing how many videos have been produced (over 150) showing this magical healing procedure. I have never witnessed such a large-scale fraudulent operation (if it is a fraud). I am surprised that no reputable physicians, nor the AMA, have investigated the miracle claims presently published in Boca Raton.
Run.
Fast and far.
It's not the job of reputable physicians to investigate claims like this, of which there are thousands. The claim (which you can't define) is by definition not a testable hypothesis.
As far as the American Medical Association - they are a profit-making lobbying organization which does not, and never has, investigated anything. Fewer than 20% of physicians belong (and who knows what the real number is - they send me their "subscription only" journal for free and they send me annual dues statements although I have never belonged).
Half of me believes it the other half has no feeling about it whatsoever.
This “Institute of Neurological Recovery” reminds me of the monsters that run the many “neuropathy centers” throughout the nation, all claiming to have discovered a medical cure for the debilitatingly painful disease of peripheral neuropathy in the feet. All these monsters prey on the ill who live on the edge of despair.
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