Posted on 10/03/2016 2:42:31 AM PDT by gasport
I am writing to share a story with you, specifically for you. My hope is that it will help you understand your patients along with their spouses and caregivers a little more. And as for the research you do, perhaps this will add a few more faces behind the why you do what you do. I am sure there are already so many.
This is a personal story, sadly tragic and heartbreaking, but by sharing this information with you I know that you can help make a difference in the lives of others.
(Excerpt) Read more at neurology.org ...
A sh*tty way to go.
I used to think that Locked-in syndrome was the worst - not anymore
Locked-in is static.
LBD is a dynamic, downhill spiral that you are aware of.
A luge to Hell.
Robin Williams was a cocaine addict and alcoholic since the Mork-n-Mindy days in the 70s. He had 35+ years of partying hard, “experimenting” with all kinds of drugs.
In the later years he concurrently was on many prescription psycho drugs...anything money could buy.
Is it possible that 35+ years of a life of drugs known to destroy people’s minds is getting a free pass here by blaming LBD? Note how the plea is for a cure to LBD ... not a plea for changes in lifestyle to prevent it.
Is is possible that the widow is just a little dishonest?
I have an immediate relative (religious, no booze, no drugs) with LBD.
My point is to throw your head back, grab, hug, laugh and enjoy while you can.
Agreed. Further, I’ve seen this man in control of his mind (if you can call it that) be the most vile and venal human one can imagine when it comes to his liberal positions and the hatred he had for conservatism and Republicans. I stopped being actively interested in anything he did since his M&M days, actually - and that was a big stretch on my personal tastes that was ameliorated by the lovely Pam Dawber.
And finally, I commiserate with his wife, certainly, but I think there is an air of the dramatic here in how she describes his decline and her turmoil. However, I certainly wouldn’t call that disease a ‘terrorist’. Most of the people in her or her deceased husband’s circle, like Obama, refuse to call almost anything terrorism. Why choose that word here? Because it was ‘catchy’ and novel?
Interesting the way she describes some of the PD symptoms “he found himself in a frozen stance, unable to move.” How many times have we seen that in Killary?
We all have some bit of insight into our own intellectual
deterioration as we get older. Intellectual and physical.
IF we make it to threescore and ten years of age (all we are
scripturally promised), most of us are going to “slow down”.
I turned 70 in July of this year. Suddenly, my blood
pressure drugs have started making me dizzy. Yesterday,
Fang and I drove into town to church. I made it to the foot
of the steep concrete steps & the dizziness really set in.
We just had to get back to the car and head back home.
The only other way in the church is a tiny elevator that is
about worn out from just about ALL the large congregation
riding up on it.
Well, answer is that you keep on keeping on and continue
to try and do what you can do and let the rest of it go.
I don’t drive any more because of the dizziness. I did
allow myself to get diverted to a liberal site that
worships themselves first and the Democrat party second.
Small number of self-important “anonymouses” on it that
get their jollies out of insulting “Freepers” and how
“old” and “stupid” we are.
What they don’t understand is that I, too, was only
forty years old just yesterday. They cannot imagine a
day in the future when they, too, will be seventy if
they are lucky.
My uncle had LBD. Absolutely horrible disease.
Flowers For Algernon/Charlie
+1
It’s possible, not probable,however. My Dad is 84, a retired physicist and a non smoker who never used any type of drugs and had only an occasional beer.
This article is a very good primer for the uninformed on the horrors of Lewy Body disease which Dad was diagnosed with about three years ago.
The difference between the two stories is faith. My Dad is embracing God’s plan for the end of his life. He settled all of his affairs when he was still able, and now he waits, in peace, for the Lord to take him home.
I pray for RW’ s wife and any family faced with this diagnosis.
I agree and will add this;
Robin Williams worshipped at the altar of Robin Williams. He saw his altar and all of the false hope that it offered crumbling down before him. Parkinson’s Disease in a brutal foe but I have seen several good men face it with courage through faith in Jesus Christ.
Robin Williams wife did a good job with a dramatic writing which was penned to ease her pain of him murdering himself by blaming a “terrorist” which is the only hope she has without salvation through Jesus Christ.
I read that book probably 40 years ago and for some reason it always stuck with me. Saddest book I ever read.
One of my jobs when I was going to college was delivering meals to a rest home.
At a time in my life when the world seemed full of endless possibilities, I was around people nearing the end of their days.
I talked to some of them. They had had interesting and vibrant lives.
Some of them were extremely childish.....like Charlie Gordon.
In my studies, I came across the story of Icarus. He was the young man who flew too high with his wax wings and the sun melted his wings and he fell to his death in the ocean. His father had warned him not to fly too high.
I often wonder if the wings Icarus flew with didn’t actually melt.
Perhaps from his vantage point so high in the sky, he saw things that he didn’t want to see.
I sometimes think that Icarus just folded his wings and flew as fast as he could into the sea.
Maybe Robin Williams flew too high.
bump
Wow, she is a brilliant, insightful person in her own right. I am devastated for Robin; I am ashamed to say I thought he must have been a typical liberal narcissist coping with addictions and bipolar. I’m very impressed with her speech.
We all need to fear the morass of neurotoxins in our environment. Stories of people devastated by brain degeneration in one way or another are becoming the norm. What are we doing? We need to start caring about the junk all around us. Instead, people blindly use laundry toxins (that enter your bloodstream the second you put on that shirt), spray febreze, eat fake colors, pesticides, and fake sugars, live among poisoned furniture and drive plastic car interiors around. And we wonder.
Very sad.
Why don’t you try taking less of your BP Med in order to not be so dizzy? Or maybe there is a lifestyle or diet change that you could use instead of the med? The docs pass out medicines like candy but it doesn’t always have a relationship to your actual functional health. I hope you find a solution.
I haven't hit 70 yet (I'm not too far behind you), but I've found it very important to communicate any adverse symptoms I'm experiencing to my physicians. There are many different types of BP medicines out there, and new ones come regularly (ObamaCare strains on research & development notwithstanding).
Maybe let your doc know about the dizziness? Hopefully he or she can prescribe something different.
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