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Vanity- input on various treatments for Crohn's
09/29/13 | self

Posted on 09/29/2013 2:47:59 PM PDT by Katya

Greetings! I know there are freepers who have knowledge and experience in just about any area of interest, so I figured we could gather some info/input from you on various treatments/ success stories for Crohn's. I did a search and various interesting articles have been posted, perhaps some of you have other useful links you could share.

Over a year ago our youngest was diagnosed with Crohn's disease. Not that there is ever a good time to become ill, but this has impacted her studies and immediate University plans.

She has been under the care of a physician who has both taught and worked at John Hopkins, and is considered very knowledgeable in this field. We have gone through the typical program of scheduled treatments, none have had any effect. She is now self administering a biological, Humira.

So far nothing has helped... Pain management is the most difficult to accomplish. At this point we are open to alternative treatments etc. She is seeing an acupuncturist which her Physician also recommended for pain management. Her Gastro Doctor has also had her try various dietary changes which she strictly adhered to including FODMAPS None have brought any relief. We are considering trying the Gaps diet, as it has helped restore gut health for many people.


TOPICS: Chit/Chat; Health/Medicine
KEYWORDS: chat; crohns; crohnsdisease; health; medical; medicaltreatment; misc
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To: floozy22

Thjank you! yes, I have looked there. It’s just very depressing and often if you have an echo chamber of people suffering from the same ailment, it becomes difficult to think outside the box.


41 posted on 09/29/2013 6:35:18 PM PDT by Katya (Homo Nosce Te Ipsum)
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To: Jeff Chandler

Ok! I will look it up, I have no idea what it is O.o

But we are very open minded in terms of treatments.


42 posted on 09/29/2013 6:36:28 PM PDT by Katya (Homo Nosce Te Ipsum)
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To: Michael.SF.

Thank you, I will read it and if I have any questions will contact Mr. Bray.

Sadly I keep hearing about people who’s children have died from Crohn’s even though the Doctors continually assure you, that this is unlikely until the patient is middle aged.


43 posted on 09/29/2013 6:38:34 PM PDT by Katya (Homo Nosce Te Ipsum)
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To: Katya

Check for gallstones too.


44 posted on 09/29/2013 6:38:52 PM PDT by VeniVidiVici (Play the 'Knockout Game' with someone owning a 9mm and you get what you deserve)
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To: VeniVidiVici

Thanks!
During one of her pain episodes they checked for gallstones and appendicitis.

Wish it had been either of those....


45 posted on 09/29/2013 6:40:19 PM PDT by Katya (Homo Nosce Te Ipsum)
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To: Katya

Be careful about omitting animal foods from the diet. It’s my layman’s understanding that B12 only comes from animal sources. But you should confirm this independently.

There are also new perspectives on short-chain fatty acids that might be worth investigating as it concerns the fat-free, vegan diet.

It might make sense to get a blood test to check the B and magnesium levels, and also to see a dietician. For some reason, traditional medicine doesn’t give much attention to the diet.


46 posted on 09/29/2013 6:45:41 PM PDT by Gene Eric (Don't be a statist!)
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To: Jeff Chandler

Weirdly enough, I just finish reading an article on a boston doc doing this. I just had no idea it was called Helminthic. Thanks so much!


47 posted on 09/29/2013 6:47:55 PM PDT by Katya (Homo Nosce Te Ipsum)
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To: Katya

I thought so as well, as did the patients. After the treatment they are both believers. It is an ancient concept just now starting to be adopted by the medical field. My mother-in-law was a nurse for 35 years but now works for Aetna, and has seen a few of these procedures approved. She said it was very strange to see “fecal transplant” show up on her computer screen.


48 posted on 09/29/2013 6:52:34 PM PDT by goodwithagun (My gun has killed fewer people than Ted Kennedy's car.)
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To: Katya

Your welcome.


49 posted on 09/29/2013 6:56:02 PM PDT by Jeff Chandler (Let your 'Yes' mean 'Yes,' and your 'No' mean 'No.' Matthew 5:37)
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To: Gene Eric

Yes, thanks I’ll keep an eye on it. I do add efa’s in flax/nuts etc and take a B12 supplement. the fat free... just means I’m not adding any oil that doesnt naturally occur.

My daughter is not a vegan, but she does eat my dinners which means at least 50% of her food unprocessed.


50 posted on 09/29/2013 7:06:01 PM PDT by Katya (Homo Nosce Te Ipsum)
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To: Katya

“It is not Colloidal Silver”

Silver Sol is a solution of nano-sized particles of elemental silver within pure water. It is an amazing product. My family can attest to its many healing properties. It comes as a liquid in varying strengths and also a topical ointment.

http://www.silver-sol.org/


51 posted on 09/29/2013 7:26:42 PM PDT by stars & stripes forever (Blessed is the nation whose God is the Lord.)
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To: stars & stripes forever

I will be ordering some!


52 posted on 09/29/2013 7:50:45 PM PDT by Katya (Homo Nosce Te Ipsum)
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To: Katya
I have had problems with irritable bowel syndrome. I take a teaspoon of slippery elm mixed in 1/2 cup of water every morning. Slippery elm coats the intestines and is very soothing. You can buy a pound bag of it at vita-cost. Also I drink a smoothie with natural plain yogurt in it every morning. This routine has helped me a lot!
53 posted on 09/29/2013 8:22:43 PM PDT by sjeann
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To: Katya

The BRAT diet (bananas, rice, apples, and something else) and “Align” capsules a couple of times a week helped me back from my gut symptoms after a six-week course of intravenous Vancomycin a few years back.....


54 posted on 09/29/2013 9:24:53 PM PDT by Intolerant in NJ
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To: Katya

Cut out all wheat, rye, and barley products. There are lots of things with wheat so watch out. Read the Wheat Belly.

Also, avoid any artificial sweetners.

I believe Crohn’s is completely related to wheat consumption.


55 posted on 09/29/2013 11:03:41 PM PDT by I got the rope
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To: Katya

Your doctor will know far better than I. If he says stick with it and that it takes six months for someone with Crohns then stick with it. Best of luck to you!


56 posted on 09/30/2013 5:26:38 AM PDT by usconservative (When The Ballot Box No Longer Counts, The Ammunition Box Does. (What's In Your Ammo Box?))
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To: KC Burke; Katya

Thanks for the ping KC.
Katya - FReepMail


57 posted on 09/30/2013 6:53:55 AM PDT by Second Amendment First
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To: I got the rope

Yes, thank you! Originally we thought she had Coeliac... and did cut out all wheat/gluten for a year. She did not test positive, and it had no effect or improvement at all.

We pretty much eat brown rice,quinoa, and millet as our grains. Once in a while we’ll have some whole grain bread... but it’s very rare. I think there is an over reliance on single grains in the western world. Even in the wheat family, there are barely any choices of flour available... and commercial breads are mostly all hard wheat. I think a lot of people develop sensitivities to foods that they over eat.


58 posted on 09/30/2013 12:21:09 PM PDT by Katya (Homo Nosce Te Ipsum)
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To: Katya

Its not just gluten and wheat. Its the insecticidal proteins found in modern grains. That is why you must stay away from them. Even sticks of gum may have wheat ...which may have these proteins.

Its the gliadin proteins by the way that may be triggering the intestinal problems.


59 posted on 10/02/2013 3:43:53 PM PDT by I got the rope
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