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Keyword: staticencephalopathy

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  • A radical treatment to stunt a 9-year-old disabled girl's growth stirs a deep ethical debate.

    01/05/2007 5:57:07 AM PST · by Thywillnotmine · 5 replies · 582+ views
    The Houston Chronicle ^ | 5/1/07 | Sam Howe Verhovek
    Ashley is a 9-year-old girl who has static encephalopathy — a severe brain impairment. She cannot walk or talk. She cannot keep her head up, roll over, or sit up by herself. She is fed with a tube. Her parents call her "Pillow Angel," since she stays right where they place her, usually on a pillow. Her parents say they feared that their angel would become too big one day — too big to lift, too big to move, too big to take along on a family outing. And so they decided to keep her small. The treatment, known as...
  • Parents defend decision to keep disabled girl small

    01/03/2007 1:14:08 PM PST · by Lorianne · 218 replies · 4,745+ views
    LA Times ^ | January 3, 2007 | Sam Howe Verhovek
    SEATTLE — This is about Ashley's dignity. Everybody examining her case seems to agree at least about that. Ashley is a 9-year-old girl who has static encephalopathy, a severe brain impairment. She cannot walk or talk. She cannot keep her head up, roll over or sit up by herself. She is fed with a tube. Her parents call her "Pillow Angel" because she stays right where they place her, usually on a pillow. Her parents say they feared that their angel would become too big one day — too big to lift, too big to move, too big to take...