Talked with MD Anderson today, they are waiting on a set of pathology slides to review (which are on the way we found out today) so I should have an appointment day in the near future in Houston!
Dr. Paula (my Oncologist) said I need to go because this form of Mesothelioma (which is rare enough) is about .1% of the total Mesothelioma cases out there. From her conversation with the Cancer board, one of the members was trained at MD and suggested a "cure" as opposed to control or containment could be surgery where they would go in and remove my entire gut sack (You Deer hunters know what that means) and then remove the tumor in my stomach. Sounds kind of radical to me, but If that's an option, I'll listen. Another option my be to go in surgically and apply the chemo directly to the cancer in the abdomen. Lots to think about but we are excited about getting down to MD in probably a week or two I'd guess.
Thanks for the continued prayers! I'd say Gods listening!
Jeff
Prayers continue. ((hugs))
Glad to hear that MD Anderson is formulating a plan for you.
You’ll have a lot to think about, but you have a positive way of thinking, which will help a great deal. :-)
Glad you are doing so well. I had chemo, including carboplatin 12 years ago now. Believe it or not, I never threw up once! I was not even nauseous. My oncologist said they have lots of options, so if I got feeling bad to call them. We changed my meds once, and I was fine.
I also had bone aches the first time. He told me to take the steroids at a specific time.... which was before the pain started. I did and had no more pain. My friend waited and took them after the pain started and suffered through her whole round of chemo. My lesson? Follow instructions!
Fatigue is an issue. Give yourself permission to rest and nap. Learn to prioritize your time. You will not be able to get 5 more minutes! When your energy is gone you will nap NOW. Do you want to be with that person you don’t like much, or have dinner with the fam.
Blessings on you Doom. I wouldn’t want to repeat the experience, but while I was in it I felt very cocooned by God. It barely makes the top 5 of the worst things to happen to me in my life.
MD Anderson has accepted Jeff as a patient. :-)
See Post # 423 for the latest update.
All the best to you, get all the information you can to make a sound decision.
More prayers up for you all!