Posted on 04/29/2007 10:47:38 PM PDT by Global2010
Just got finished from shift with 28yrs of caring for King Vanity who is a medically fragile quadroplegic.
We came home from Medical Center and have been working full board to keep him going.
Doc suggested we take him back to the Med Center for hospice arrangements.
I have been his careprovider for all his life and he has asked me to stop making him get up and go like he used to do and let him rest.
His lungs and digestive sytem are shutting down due to lifelong brain stem damage.
Our Priest will be here tommarrow to give him his last rites...
He will then be allowed to chill (I will make him work when possible to get up and go) untill the good Lord calls...
We have done all possible and are respecting his right to have comfort at home.
Meaning Free Repub and CSpan Road to the White House. (each to their own)
He will be 28 on May 23 and is the longest survivor of his type.
I know the Lord will grant him many years to come just not as a go go guy.
Medically he can not tolerate the constant hands on care as his health requires more and more constant care.
King Vanity is an active Catholic and a member of Militia Imaculta Fr.Kolbe ministries which is his life long goal of lifting all others up in his suffering through Prayers.
Y’all are an inspiring example of what can be accomplished through a persistent labor of love and devotion, in the face of overwhelming obstacles. That is a great blessing. You have my continued prayers and respect. God bless.
Sigh..........
Prayers sent for a man who’s spirit is so large.
Fr. Steckler just gave Chris the Sacrament of Healing for the Sick.
Ol King Vanity had a big smile for Father.
King says no more hospital and is just wants his comfy home King size bed that accomadates is flailing without injury unlike the twin hosp beds with siezure pads and all the withen reach lines.
At home I can put those lines of life safely at a distance from his super fast and strong clinch/flailing.
He recieved the body of Christ via his g tube.
The first thing he did when we got home Monday was slowly look around his room checking to see if every little momento of his life and loves where in place.
Odd thing before his latest illness he had a horrible tongue thrust and now it is gone but he keeps biting his tongue instead.
He still LOVES life and even though he is down in health he plans on taking a lickin’ and keep on tickin’ even if it means being home bound.
I get him up 5 days a week so his lungs will stay clear but he has been combative and not real happy about that.
We actually had sunshine two dayz this week and he got into his wheelchair prior to shower time and sunbathed so he got some good nourishment from the sun.
Thank you all for lifting us up in Prayer. God is awesome.
Nothin’ like Labs.
The 12 days we were in the valley I missed my boyz so much that I had to ask if I could hug and pet the dogs around the hospital grounds. (for some reason it is a popular dog walking area).
What a love fest we had when we got home. I had to have them sit and down so not to be engulfed in #300lbs plus of smoothces.
My eldest pup laid down yet wrapped himself around me like a boa constrictor.
Took a few days for them not to follow every move I made.
They had 3 people caring for them while we were away but all 3 folks said they would be happy and sniff/lick but quickly put their heads down and walked away.
They missed mama and King Vanity.
King Vanity,my prayers are with you. You are so loved!
Praying with All my heart, in the Name of our Savior and Lord.
Nothing like the unconditional love of a Lab!
Prayers for King Vanity.
Prayers for KV and his care..
Please tell him that we are thinking about him and know that his brain is doing just fine even if his body is pooping out!
(sorry for that :-)
I cannot be TOO serious..this is KV we are talking about!
And if I am remembering his sense of humor right...he wouldn’t appreciate it for too long..
I am sending a (((((HUG)))))!!!
m0sby
What a nice story of family life. May King Vanity enjoy years of comfort at home.
Spot on his humor.
The last few days in the Medical Center he was keeping CNA staff busy about every 30 min. with incontinant flood care.
So using his communication book he decided to make a name change and put it above his bed.
P. Chanzee Dyper (dawg)
Prayers for you
May the Love of Our Heavenly father, the Grace of Our Lord Jesus Christ, and the Peace and Comfort of the Holy Ghost be with you and remain with you always. AMEN
He rejoices over you with singing!
My prayers for King Vanity and you with your family.
Luke 18:13
“...He would not even look up to heaven, but beat his breast and said, ‘God, have mercy on me, a sinner.’
http://www.biblegateway.com/passage/?book_id=56&chapter=2&version=31&context=chapter
Special rewards for those that walk such a difficult path; and for those who share that path through their caregiving. God Bless King Vanity and all who share his life.
Prayers up for mother and son. May God bless and hold you close.
Prayers up!
Prayers for King Vanity and family.
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