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23andMe is on the brink. What happens to all its DNA data?
NPR ^ | 10/03/2024 | obby Allyn

Posted on 10/04/2024 9:21:30 AM PDT by BenLurkin

Shares of 23andMe are now worth pennies. The company’s valuation has plummeted 99% from its $6 billion peak shortly after the company went public in 2021.

...

What is the company’s plan for all the data it has collected since it was founded in 2006?

...

When signing up for the service, about 80% of 23andMe’s customers have opted in to having their genetic data analyzed for medical research.

The company has an agreement with pharmaceutical giant GlaxoSmithKline, or GSK, that allows the drugmaker to tap the tech company’s customer data to develop new treatments for disease.

...HIPAA, does not apply to 23andMe since it is a company outside of the health care realm.

...

Although DNA data has no federal safeguards, some states, like California and Florida, do give consumers rights over their genetic information.

...

23andme says it will not let law enforcement search its database

...

Kill said the company does not allow law enforcement to search its database.

The company has, however, received subpoenas to access its genetic information.

According to 23andMe’s transparency report, authorities have sought genetic data on 15 individuals since 2015, but the company has resisted the requests and never produced data for investigators.

“We treat law enforcement inquiries, such as a valid subpoena or court order, with the utmost seriousness. We use all legal measures to resist any and all requests in order to protect our customers’ privacy,”

(Excerpt) Read more at npr.org ...


TOPICS: Business/Economy; Science
KEYWORDS: 23andme; annewojcicki; dnadata; genealogy; helixmakemineadouble
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To: BenLurkin

They also went WOKE sometimes around 2021.
Go WOKE, go broke!


41 posted on 10/04/2024 11:49:45 AM PDT by AZJeep
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To: Nervous Tick

If anyone in the bloodline of extended family has used them, it may be able to tie that information from that 23-and-me analysis to you and people closer to you.

Their computers map all of this.

No doubt all of it has been stolen already, over time, by bad guys no matter what they call themselves.


42 posted on 10/04/2024 12:12:14 PM PDT by Weirdad (Orthodox Americanism: It's what's good for the world! (Not communifascism!))
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To: BenLurkin

...HIPAA, does not apply to 23andMe since it is a company outside of the health care realm.
= = =

So, if someone asks, “How’re you feeling today?”, my answer is not HIPPA protected???

Help Me, Govt, to protect myself!


43 posted on 10/04/2024 12:23:08 PM PDT by Scrambler Bob (Running Rampant, and not endorsing nonsense; My pronoun is EXIT. And I am generally full of /S)
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To: Weirdad

Sure, but not with direct evidence.


44 posted on 10/04/2024 12:56:15 PM PDT by Nervous Tick ("First the Saturday people, then the Sunday people...": ISLAM is the problem!)
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To: BenLurkin

Perfect solution in the old days.

Del *.*


45 posted on 10/04/2024 1:04:58 PM PDT by Revel
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To: dfwgator

Don’t need to. Every bit of DNA anyone ever sent there has already had the typed/classified results sent to the government, is my bet. Heck, government probably helped finance the startup.


46 posted on 10/04/2024 1:07:14 PM PDT by Gaffer
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