Posted on 01/17/2014 6:14:56 AM PST by trussell
I have faith that the implant is going to help me...when they took the trial away it was like taking candy from a baby...it was cruel! And waiting so long for the permanent one is cruel too. I am praying I am making the right decision in getting this done. It’s a huge step and one that I struggled with at first. I remember the few days I had the temporary unit in my spine, my legs didn’t hurt, I could lay on my sides and they didn’t hurt! My right hip still hurt like crazy and my back was horrible and my stomach hated me from the buzzing, it would make me sick when I ate! But when the tech messed with the unit before it was removed, she got the buzzing out of my tummy and all the way up my back to the middle of my back! It felt so good, I hated when they took it away!!
Went to the doctor on Wednesday...he asked me how long have I been having the increased pain...I told him that I had complained to his Nurse Practitioner for a few months now and that she has told me “He’s not going to give you anything stronger, period”. He said “I’ll have to have a talk with her, I don’t like to see you in the much pain”. He asked if the percocet was working at all anymore and I said not so much...even when I take 2 of them at once. He said “quit taking those, I’m going to give you dilaudid instead, and give you a numbing PATCH to put on your back...leave it on for 12 hours then replace it with another” He wants to see me in 2 weeks to make sure my pain is being manage. I started the dilaudid a few days ago (as soon as I got through the pharmacy drive through) and so far it only helps at night when I take 2 of them with my nerve medicine and my sleeping medicine. I get the idea that the Nurse Practicianer could be losing her job for not talking to the doctor when I said I was in pain and she said I wasn’t getting anything stronger. She didn’t even TALK to the doctor, and I told him she said that and he confirmed that he didn’t know!
Just found out one of the meds the doc wants me on is not covered by my insurance and it is $275 for a one month supply....no way I will be getting that one. :( The medicine the doc wanted me using is a lidocaine patch, 12 hours each patch then replace it. They say since my insurance won’t cover the patch, they will do the cream instead...but I can’t reach my back to rub a cream on and I’m not comfortable asking my teenage son to rub a cream on my nude back (I am really fat). I am on gabapentin for nerve pain. I’m on amitriptiline 50 mg to help me sleep. As for the new medicine...one 2 mg dilaudid doesn’t do it. I take my middle of the night dose at bedtime...so I take 2 at bedtime as well as taking the gabapentin and amitriptiline. I manage to sleep with that cocktail but the rest of the day is still stiff and sore. I’m hoping I can get the patches so I can get some relief! They talk it up like it’s a miracle drug. Maybe I can find out the name of the manufacturer and see if they can help me get them.
Also, my procedure to implant the spinal cord stimulator is set for January 27th...same day surgery, will be home that night. Really look forward to it, though I’m still scared about having the unit in my spine.
Please, keep up the prayers. I appreciate them so much!
Try to keep the faith that things will improve for you in a number of areas in due time.
I have a spinal cord stimulator and because of that I am not able to have MRIs. It will affect the stimulator by either disabling the battery or pulling the metal that is in the leads that are in my spinal column.
...and thank you for the birthday wishes!
Gracious. What a mess! Continuing prayers.
Father God,
In the name of JESUS we speak to infirmity in Trussell’s body. Your days are through. We speak life to every muscle, every nerve, every bone, every cell through the resurrection power of Jesus that is within us through Holy Spirit. Be made whole by the blood of Jesus Christ that breaks every stronghold.
We stand upon Your promises, Father God. Nothing is impossible for You. Jesus has won the victory over death, over illness, over everything that concerns us. He perfects what concerns us.
We stand in agreement for a creative miracle for Trussell. Father God, astound the doctors, the government officials. Jesus is the Great Physician, our Healer and Deliverer.
Father God, may Your will be done in Trussell’s body. We thank You for the testimony she has through Christ Jesus. We thank You that You are the Strong Tower we can run to. We thank You that through Jesus stripes we were healed. We thank you that JESUS gives the victory.
In His precious name we pray. Amen.
Man! Just when you thought stuff couldn’t get more complicated!
Well, happy belated birthday to you...
I’m glad there is nothing cancerous; thankfully you can cure throwing up, but cancer is something massively different.
Lord Jesus, we pray for relief from suffering and for the provision of daily needs of Thy servant.
In the name of the Father, and of the Son, and of the Holy Ghost, amen.
Well, Happy Birthday despite all the challenges and pains. Prayers continue...
I am sorry that you were turned down for disability. If anybody deserves it, it would seem to be you. I run into to many people that get disability that don’t deserve it. With that being said, it’s seems people that get SSI or disability always seem to have to appeal once or twice.
Happy Belated Birthday!
Depending on the area of the country you are in, Disability is a long process. UNLESS you claim INSANITY, or drug abuse.
Every one is denied first try. Even a man on a Heart Transplant list had to fight 4 yrs for disability while waiting for the transplant. Church kept his family afloat.
You might be looking at a 4 year process.
(((((Heartfelt Prayers Ascending)))))
Keeping you on my prayer list every day, T. Keeping your sense of humor is a plus (LOL Don’t I *know* what you mean! WTH? Think you might oughta change that guy out for one who’s a little more...eeGAD- what’s the word?).
You sound GOOD! Hold that thought & hang in there.
Thank you.
I called my primary care office the other day. Told the lady at the front desk (she’s so sweet and I chat with her while I’m there) “the only job I could do with the limits put on me by the docs would be prostitution and I’m not sure I could make much doing that”...I thought she was going to die laughing! She couldn’t stop, thank GOD it was time to quit seeing patients for the day, she would have definitely embarrassed herself if she had answered another call laughing like that.
All I have left that isn’t breaking down on me is my ability to see humor in all this. I am on dilaudid for the pain and am finally finding myself having trouble staying awake. I hurt my neck by falling asleep in my wheelchair. What am I suppose to do? I can’t afford to wait longer, my landlord is getting frustrated in not getting rent from me. I have heard threats that we were going to get kicked out. I just keep praying he will wait until I win my case...I was expecting to win the first time around seeing as how bad I am. I’m on my pity pot...time to go cry it out, sleep for a bit and then fix dinner.
Being able to laugh is priceless. I know it’s harder when you’re hurting.
God Willing, this will resolve itself soon.
“I can’t afford to wait longer, my landlord is getting frustrated in not getting rent from me. I have heard threats that we were going to get kicked out. I just keep praying he will wait until I win my case.”
I’m so sorry it’s this bad for you. Your landlord has been patient for a good while (a year or so?), and no doubt he can’t afford to wait.
I’m sure you’ve answered this somewhere, so please forgive me for asking, but have you applied for gov assistance, housing, food? If not, please get on the list before your landlord has no choice but to evict you and you end up in a shelter.
We are on assistance for medical and food, but don’t qualify for anything else. There is no housing assistance in the little town we live in. In order to get section 8 housing, we would have to move to the city and Cody would lose the chance to attend the best rated school in this part of the state. He’s doing so good there.
My landlord has been patient for a few years now, we do his housework, laundry, cooking, and dog watching. He’s been so patient, but he’s financially strapped and needs the income for rent.
Oh, and there is no shelter in this county either...we would end up in the city. I don’t want Cody’s schooling to suffer by him ending up in the city’s school system. :(
I wasn’t aware of that. I thought section 8 vouchers were good anywhere, as long as the housing met the criteria and are listed with the program.
No, section 8 isnt in our county. They have “financial aid” where you would pay 30 - 50% of the market value of the rental, but that would still mean you would have to pay from 330 to 554 for a 2 bedroom. That’s a good price for this area, but makes no difference if you don’t have the $330 to $554, plus what it would take to pay for the utilities and other things necessary. (like toiletries and cleaning supplies).
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