Posted on 01/17/2014 6:14:56 AM PST by trussell
I have faith that the implant is going to help me...when they took the trial away it was like taking candy from a baby...it was cruel! And waiting so long for the permanent one is cruel too. I am praying I am making the right decision in getting this done. It’s a huge step and one that I struggled with at first. I remember the few days I had the temporary unit in my spine, my legs didn’t hurt, I could lay on my sides and they didn’t hurt! My right hip still hurt like crazy and my back was horrible and my stomach hated me from the buzzing, it would make me sick when I ate! But when the tech messed with the unit before it was removed, she got the buzzing out of my tummy and all the way up my back to the middle of my back! It felt so good, I hated when they took it away!!
Went to the doctor on Wednesday...he asked me how long have I been having the increased pain...I told him that I had complained to his Nurse Practitioner for a few months now and that she has told me “He’s not going to give you anything stronger, period”. He said “I’ll have to have a talk with her, I don’t like to see you in the much pain”. He asked if the percocet was working at all anymore and I said not so much...even when I take 2 of them at once. He said “quit taking those, I’m going to give you dilaudid instead, and give you a numbing PATCH to put on your back...leave it on for 12 hours then replace it with another” He wants to see me in 2 weeks to make sure my pain is being manage. I started the dilaudid a few days ago (as soon as I got through the pharmacy drive through) and so far it only helps at night when I take 2 of them with my nerve medicine and my sleeping medicine. I get the idea that the Nurse Practicianer could be losing her job for not talking to the doctor when I said I was in pain and she said I wasn’t getting anything stronger. She didn’t even TALK to the doctor, and I told him she said that and he confirmed that he didn’t know!
Just found out one of the meds the doc wants me on is not covered by my insurance and it is $275 for a one month supply....no way I will be getting that one. :( The medicine the doc wanted me using is a lidocaine patch, 12 hours each patch then replace it. They say since my insurance won’t cover the patch, they will do the cream instead...but I can’t reach my back to rub a cream on and I’m not comfortable asking my teenage son to rub a cream on my nude back (I am really fat). I am on gabapentin for nerve pain. I’m on amitriptiline 50 mg to help me sleep. As for the new medicine...one 2 mg dilaudid doesn’t do it. I take my middle of the night dose at bedtime...so I take 2 at bedtime as well as taking the gabapentin and amitriptiline. I manage to sleep with that cocktail but the rest of the day is still stiff and sore. I’m hoping I can get the patches so I can get some relief! They talk it up like it’s a miracle drug. Maybe I can find out the name of the manufacturer and see if they can help me get them.
Also, my procedure to implant the spinal cord stimulator is set for January 27th...same day surgery, will be home that night. Really look forward to it, though I’m still scared about having the unit in my spine.
Please, keep up the prayers. I appreciate them so much!
Prayers up trussell. Maybe the “action reporter” can get some action that’ll benefit you. Then again, if you had called the local cbs/nbc/abc affiliate they would have been rushing you to see the “lyin’ king” to get this straightened out. I heard he’s not so much in to FOX though.
Good move. Prayers continue,
I agree...she truly sounded like an angel to me. She was so sympathetic, compassionate, upset with what is going on! She believes it is a story they would like to do. She says if I don’t hear from their reporter by Monday afternoon, I am to call her back because she doesn’t want this ball dropped!
I have talked to NBC and CBS...they are looking into doing a story too. Everyone I spoke to seemed to take me seriously and wants answers to why this is happening. So far, I haven’t been told to contact the pResident, but if someone suggested it, I might go that far to fix this! This is HIS brainchild...will he fix it?
Praying for your restored health.
Very good news and thanks for the update. Prayers continuing for you, trussell.
Praying this new information gets you some relief!
It can’t hurt.
BTTT
Fantastic.
You can private frp me, I may have missed if you said where you live, I have a big big family across the country, I probably could find someone to give you a ride even or a meal.
Awesome!
Terrific news!
We praise Thee o Lord and we adore Thee.
In the name of the Father, and of the
Son, and of the Holy Spirit, amen.
Sorry things haven’t worked out so far, but glad to see that you haven’t given up and you have prospects of some help.
Best wishes and thanks for keeping us posted.
Thanks for the update! Prayers continue...
Let’s continue to pray!
This is fabulous! I’m so glad!
fieldmarshal — what a great idea you gave to dear trussell.Thank you! Look at the responses from the press already! Would love if Fox follows thru on this.
Thank you. Perhaps the Lord inspired the idea, it was the only thing I could think of as a possible last resort. Hopefully it will be successful.
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