Free Republic
Browse · Search
General/Chat
Topics · Post Article

Skip to comments.

Prayer request for 1 year old daughter
RS organization in the UK ^

Posted on 03/03/2005 12:26:29 AM PST by lbmorris11

Today my daughter was diagnosed with Rhetts syndrome. The symptoms are ataxia (a stumbling walk), hand wringing and little use of the hands, and severe mental retardation. She will begin regressing at the age of 2 she is 20 months now. The link explains it if you want to get into the technical part of it. My wife and I are devastated please pray for us.


TOPICS: Daily Prayer; Religion
KEYWORDS: childhooddiseases; mentalretardation; prayer; rhettssyndrome
Navigation: use the links below to view more comments.
first previous 1-2021-4041-59 last
To: lbmorris11

Prayers for your daughter, you, and your wife.


41 posted on 03/03/2005 7:52:01 AM PST by tuliptree76
[ Post Reply | Private Reply | To 1 | View Replies]

To: backinthefold

Bump for Exceptional Parents.


42 posted on 03/03/2005 8:03:46 AM PST by oceanperch (2005 is going to be an Awesome Year, which way that will go only God knows)
[ Post Reply | Private Reply | To 23 | View Replies]

To: lbmorris11
My prayers are with you and your family.
A great guy that graduated high school with me has a daughter
(his only child) with this syndrome. She is now 13.
43 posted on 03/03/2005 8:09:17 AM PST by MamaLucci (Libs, want answers on 911? Ask Clinton why he met with Monica more than with his CIA director.)
[ Post Reply | Private Reply | To 1 | View Replies]

To: lbmorris11

I am praying for you all. I know a bit about what you're going through right now. Over thirty years ago, we had a baby, a son, born with Downs Syndrome along with some other serious birth defects including digestive problems. His name was Michael and he lived to be six weeks old; he died right after a major surgery.

On another note, my husband's niece had a baby a year and a half ago. They diagnosed the baby as having Downs Syndrome while she was still in the hospital after delivery. The baby had so many of the physical characteristics. After extensive tests and several days later, they determined that they had been mistaken.

In both cases, we all just determined to take the babies home and love them. I will admit it was a shock to us all in both cases, but we just took one day at a time. Of course, I always asked God for healing, and I realize now that His will is best. I also realize now that my health was not strong when I became pregnant with Michael. While we can't afford to beat ourselves up, we also need to realize not necessarily everything rough that comes to us is God's fault. He can help us go through our trials and come out stronger on the other side, though. Also, there's the aspect of understanding that what we see on the exterior of any person is not really always what is going on on the inside of that person.


44 posted on 03/03/2005 8:17:01 AM PST by Twinkie ( I'm testing to see how many people read taglines. So far, at least two smarties.)
[ Post Reply | Private Reply | To 1 | View Replies]

To: Twinkie

I have found that the healing God provides surrounding lifelong severely disabled babes/kids/adults is the healing that happens to the hearts of those who come in and out of the lives of the disabled.

God's lil Angels in a literal sense.


45 posted on 03/03/2005 9:45:49 AM PST by oceanperch (2005 is going to be an Awesome Year, which way that will go only God knows)
[ Post Reply | Private Reply | To 44 | View Replies]

To: MoJo2001

ping


46 posted on 03/03/2005 10:46:37 AM PST by jmc813 (PLAYBOY ISN'T PORN;YES,PLAYBOY ID PORN ... ONLY PHOTOGRAPHED PORN IS PORN)
[ Post Reply | Private Reply | To 1 | View Replies]

To: trussell; jmc813; lbmorris11

Thank you for the pings!

lbmorris11, prayers for your precious daughter and for your family.


47 posted on 03/03/2005 12:19:46 PM PST by MoJo2001 (Operation Easter/Passover For Our Troops begins Feb.14th-Mar.4th---www.proudpatriots.org)
[ Post Reply | Private Reply | To 6 | View Replies]

To: lbmorris11

I will pray for your family. Try to find other families dealing with this as you might be able to help each other. God Bless you all.


48 posted on 03/03/2005 3:52:36 PM PST by A knight without armor
[ Post Reply | Private Reply | To 1 | View Replies]

To: lbmorris11

I will pray for you and your daughter. I understand your terrible pain and confusion. I have 3 children, and my youngest is now 8. At age 1 and a half he was diagnosed with mental retardation and autism. I know it seems right now nothing will ever be "ok" again. But it will,just have faith and do the best you can for your little girl.


49 posted on 03/03/2005 6:16:08 PM PST by aaronbeth (Our freedom was won from the barrel of a gun.)
[ Post Reply | Private Reply | To 1 | View Replies]

To: lbmorris11

If it be the Lord's will, I pray for His devine intervention to heal your daughter of her affliction. God bless and be with you and your wife, that He will comfort you both.


50 posted on 03/03/2005 7:44:11 PM PST by lakey (The next time you enjoy Jell-O, remember Terri!)
[ Post Reply | Private Reply | To 1 | View Replies]

To: lbmorris11

prayers for your family


51 posted on 03/03/2005 7:56:36 PM PST by rocky88 (Sometimes the road less travelled is less travelled for a reason)
[ Post Reply | Private Reply | To 1 | View Replies]

To: lbmorris11

Prayers up for all of you. Hold steady.


52 posted on 03/03/2005 8:04:29 PM PST by amom
[ Post Reply | Private Reply | To 1 | View Replies]

To: lbmorris11

Prayer Bump for Exceptional Baby Girl.


53 posted on 03/03/2005 10:21:23 PM PST by oceanperch (2005 is going to be an Awesome Year, which way that will go only God knows)
[ Post Reply | Private Reply | To 1 | View Replies]

To: lbmorris11

My prayers for you. We had a special needs child also who passed away at 17 months. He was surely loved and is sorely missed. Such a child is a special trust to you from God.

Please don't let the diagnosis overcome your own parenting instincts and the Lord's inspiration on how to raise your child. Trust the Lord first, yourselves second, and the "experts" third.

Know also that the Lord can heal this child if it be His will, and if it is not His will, if your child has a special mission in life for which she needs this condition, I know the Lord will give you the strength and serenity to assist her in her mission.


54 posted on 03/03/2005 10:59:03 PM PST by caseinpoint
[ Post Reply | Private Reply | To 1 | View Replies]

To: lbmorris11

Our prayers and thoughts are with you.


55 posted on 03/04/2005 5:27:12 PM PST by LadyShallott ("An armed society is a polite society."~Robert A. Heinlein)
[ Post Reply | Private Reply | To 1 | View Replies]

To: lbmorris11

I'll be praying for your daughter and for your strength. I know things must be hard, but I pray that no matter what happens, that your daughter will grow up happy and loved by all she meets and that she will bring you joy.


56 posted on 03/08/2005 12:04:17 PM PST by Sockdologer
[ Post Reply | Private Reply | To 1 | View Replies]

To: lbmorris11

I am so sorry - my heart goes out to you. I know a family whose daughter has Rhetts. May God sustain you and hold your daughter in his hands. May His love guide you through dark times. And dear Lord, let the scientists find a cure for this and make a difference in these girls' lives. Amen


57 posted on 03/20/2005 8:13:59 PM PST by heartwood
[ Post Reply | Private Reply | To 1 | View Replies]

To: lbmorris11

Prayers up for all of you.


58 posted on 03/20/2005 8:16:01 PM PST by bad company (Stupid SHOULD hurt)
[ Post Reply | Private Reply | To 1 | View Replies]

To: lbmorris11
I work with a beautiful 11 year old girl with Rhett's. Through this year I've learned so much from her. I know that when I talk with her, (she does not respond other than making a ah shriek) that she understands me. I can tell by her eye's that she's there. I've seen her get really sick, and go from being free fed, to using a G-tube at times. Your daughter is blessed, and make sure she continues to know you love her. Comfort her when she cries, and applaud her for everything. May the Lord shine down and help guide your family to pure happiness. My thoughts and prayers are with you always.
59 posted on 04/09/2005 7:25:20 PM PDT by gocostie
[ Post Reply | Private Reply | To 1 | View Replies]


Navigation: use the links below to view more comments.
first previous 1-2021-4041-59 last

Disclaimer: Opinions posted on Free Republic are those of the individual posters and do not necessarily represent the opinion of Free Republic or its management. All materials posted herein are protected by copyright law and the exemption for fair use of copyrighted works.

Free Republic
Browse · Search
General/Chat
Topics · Post Article

FreeRepublic, LLC, PO BOX 9771, FRESNO, CA 93794
FreeRepublic.com is powered by software copyright 2000-2008 John Robinson