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A Genetic Testing Dupe? The government says I am being misled by useless information about my...
Reason ^ | July 27, 2010 | Ronald Bailey

Posted on 07/28/2010 3:49:26 PM PDT by neverdem

The government says I am being misled by useless information about my genes. I disagree.

"Misleading and of little or no practical use to consumers" is the way that the Government Accountability Office (GAO) described the results of direct-to-consumer genetic screening tests in a report unveiled last week. To reach this damning conclusion, the GAO sent in genetic samples from five people for testing by four leading direct-to-consumer testing companies. For each donor the GAO sent two DNA samples, one sample using the person’s actual profile and one using a fictitious profile. Although the testing companies were not identified in the report, it’s pretty clear that they are 23andMe, deCodeMe, Navigenics, and Pathway Genomics.

However, being a customer of two of the four companies, I was puzzled by the GAO’s claim that I had been duped. I found the information obtained from my two genetic profiles neither misleading nor useless. (There is one criticism from the GAO that is right on, however. Most genetic studies so far have been done on ethnically European populations, and the testing companies have been remiss in failing to warn customers who are not ethnically European that many results may not apply to them.)

The GAO reached its conclusions, which were presented at a Capitol Hill hearing before the House of Representatives Subcommittee on Oversight and Investigations, by comparing the test results from the four companies for 15 common diseases and conditions: Alzheimer’s disease, atrial fibrillation (a type of irregular heart beat), breast cancer, celiac disease (a chronic digestive problem caused by an inability to process gluten), colon cancer, heart attack, hypertension, leukemia, multiple sclerosis, obesity, prostate cancer, restless leg syndrome, rheumatoid arthritis, type 1 diabetes, and type 2 diabetes. Not all four companies tested for all 15 disease risks and conditions. The GAO found...

(Excerpt) Read more at reason.com ...


TOPICS: Culture/Society; Editorial; Government; Testing
KEYWORDS: dna; emptydna; godsgravesglyphs; mtdna

1 posted on 07/28/2010 3:49:30 PM PDT by neverdem
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To: neverdem

Maybe the GAO can do a study on Horoscope guides, Feng Shui and Biorhythms. Why is this any of the GAO’s business?!


2 posted on 07/28/2010 3:55:12 PM PDT by Dr. Sivana (There is no salvation in politics)
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To: Dr. Sivana

Don’t forget colors that determine whether a person is a summer, winter, spring, or autoumn. s/off


3 posted on 07/28/2010 3:56:45 PM PDT by afraidfortherepublic (Southeast Wisconsin)
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To: neverdem

They have a point as Genomics isn’t really to the point where it can be a great deal of help to everyone. It is at the point where it can help a few people. I’m more worried about the inevitable database of genomes that will be set up if we don’t put a stop to the nationalization of healthcare and subsequent centralization of medical information.


4 posted on 07/28/2010 4:07:02 PM PDT by Eyes Unclouded ("The word bipartisan means some larger-than-usual deception is being carried out." -George Carlin)
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To: neverdem

They are just trying your imagination.


5 posted on 07/28/2010 4:07:26 PM PDT by screaminsunshine (m)
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To: Dr. Sivana

“Why is this any of the GAO’s business?”

This is a preemptive strike;

My first guess is the Government and “Friends of Government” do not want tests to have social validity and business credibility being able to identify Male versus Female or other genetic markers, which the political class wishes to make arbitrary decisions upon; this would disrupt the holy grail of Homo-Leninism.


6 posted on 07/28/2010 4:11:06 PM PDT by ntmxx (I am not so sure about this misdirection!)
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To: Dr. Sivana
Why is this any of the GAO’s business?!

The nanny statists want it.

Congress and the U.S. Food and Drug Administration are trying to regulate this nascent but burgeoning field even amid uncertainty over the meaning of test results that indicate someone has genetic risks for certain diseases. "The problem with these marketing practices is that it is not clear today whether the exciting scientific developments in human genetics research actually transfer into ways to improve and individualize health care," Rep. Henry Waxman (D-CA) said Thursday at a congressional hearing on the industry.

7 posted on 07/28/2010 4:13:25 PM PDT by neverdem (Xin loi minh oi)
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To: Eyes Unclouded
They have a point as Genomics isn’t really to the point where it can be a great deal of help to everyone.

So everyone should suffer now, including those that can be helped, until everyone benefits sufficiently, as defined by the gubmint? I don't think so. These companies clearly point out that their validated databases are larger for some portions of the population than others. I'm assuming that the cost is less if you happen to be a member of a population segment for which not as much data are available.

Let each potential customer decide for himself. We have a Marxist in the White House who doesn't need your help to tack left.

8 posted on 07/28/2010 4:39:23 PM PDT by skookum55 (A natural-born US citizen since 1955.)
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To: skookum55

You can still buy the services. You can go to a natural foods store and buy all sorts of pills that are supposed to help with various things but they all come with a disclaimer saying “this hasn’t been proven”. People getting all worked up about their genetic screening results really should know how sure the science is. In most cases it isn’t.

GAO is one of the few outfits still trying to do a good job and I think it is a good thing that these companies can’t sucker people.


9 posted on 07/28/2010 4:50:43 PM PDT by Eyes Unclouded ("The word bipartisan means some larger-than-usual deception is being carried out." -George Carlin)
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To: Eyes Unclouded

Read the article and visit the websites of the service providers: they are more informative, and I believe more honest, than the GAO’s presentation of the so-called facts.


10 posted on 07/28/2010 11:48:38 PM PDT by skookum55 ("Why is the market going down? Because communism isn't bullish." Unknown trader, CNBC, July 2010.)
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To: blam; martin_fierro

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Gods
Graves
Glyphs
Thanks neverdem.
"Misleading and of little or no practical use to consumers" is the way that the Government Accountability Office (GAO) described the results of direct-to-consumer genetic screening tests in a report unveiled last week. To reach this damning conclusion... genetic samples from five people... four leading direct-to-consumer testing companies... one sample using the person's actual profile and one using a fictitious profile... 23andMe, deCodeMe, Navigenics, and Pathway Genomics... (There is one criticism from the GAO that is right on, however. Most genetic studies so far have been done on ethnically European populations, and the testing companies have been remiss in failing to warn customers who are not ethnically European that many results may not apply to them.)
Just adding to the catalog, not sending a general distribution.

To all -- please ping me to other topics which are appropriate for the GGG list.
GGG managers are SunkenCiv, StayAt HomeMother, and Ernest_at_the_Beach
 

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11 posted on 08/01/2010 6:26:51 PM PDT by SunkenCiv ("Fools learn from experience. I prefer to learn from the experience of others." -- Otto von Bismarck)
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To: Dr. Sivana
"Why is this any of the GAO’s business?!"

Because DNA and IQ will eventually be linked and you know what that means....RACISM!!

12 posted on 08/01/2010 6:35:39 PM PDT by blam
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