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Autistic boy dies during controversial treatment
Pittsburgh Post-Gazette ^ | 8/24/2005 | Karen Kane and Virginia Linn

Posted on 08/24/2005 3:09:44 PM PDT by Born Conservative

A 5-year-old Monroeville boy died this week during a medical treatment that's being touted by some as a cure for autism.

The autistic boy died while receiving chelation -- an intravenous injection of a synthetic amino acid known as EDTA, for ethylene diamine tetraacetic acid. The Food and Drug Administration has approved the practice only to treat heavy metal (such as lead) poisoning. The treatment is becoming increasingly popular, though still controversial, for autism.

Police are investigating the boy's death, which occurred Tuesday morning in the office of Dr. Roy Kerry in Portersville.

(Excerpt) Read more at post-gazette.com ...


TOPICS: Culture/Society
KEYWORDS: autism; bc; chelation; edta; health; healthcare; junkscience; justdamn; medicine; quack
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To: Kay

You would be surprised by the reaction of supposedly intelligent parents they seem to think their children can catch autism from my child.


61 posted on 08/24/2005 5:38:43 PM PDT by is_russia_western
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To: TheHound

I had the i and e backwards before I did the spellcheck.


62 posted on 08/24/2005 6:00:30 PM PDT by lepton ("It is useless to attempt to reason a man out of a thing he was never reasoned into"--Jonathan Swift)
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To: is_russia_western
You would be surprised by the reaction of supposedly intelligent parents they seem to think their children can catch autism from my child.

Probably less so than the businesswomen that think they get yeast infections from eating too much bread.

63 posted on 08/24/2005 6:02:06 PM PDT by lepton ("It is useless to attempt to reason a man out of a thing he was never reasoned into"--Jonathan Swift)
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To: Rodney King

Which side is that? Because I'm totally confused, not about the autism and vaccine mercury thing, I've researched that, and find it implausible; but the artery thing. I'm 53, I do not exercise like I should, do not eat the best diet, drink alcohol and I smoke. If spending $1,500 a year, to drip this stuff in my veins, would keep them from cracking open my chest, I would consider it. I've never spent time in a hospital and have never been operated on, even the thought of putting the needle in my arm to put the stuff in gives me the willies.


64 posted on 08/24/2005 6:02:08 PM PDT by TheHound (You would be paranoid too - if everyone was out to get you.)
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To: TheHound

Oh...and I got stoichiometry on my own. :)


65 posted on 08/24/2005 6:04:38 PM PDT by lepton ("It is useless to attempt to reason a man out of a thing he was never reasoned into"--Jonathan Swift)
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To: Kay
Insurance companies frequently will not cover much for mental illnesses while they provide comprehensive coverage for orthopedic problems.

Just like it is difficult to determine what is wrong, it is also difficult to determine whether something worked, and if so, what worked. There are studies that show that while there are individual cases of dramatic improvement from various psychotherapy drugs, that on the average people given them become less mentally healthy.

66 posted on 08/24/2005 6:08:39 PM PDT by lepton ("It is useless to attempt to reason a man out of a thing he was never reasoned into"--Jonathan Swift)
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To: lepton
stoichiometry

I was going to say something about that word, my first two years at college were devoted to chemistry and I do not remember ever reading that word. It was always stoichiometric or the plural, but it felt right and is spelled like it sounds. The other, however, is spelled nothing like it sounds (fenylthaleen). :>)

67 posted on 08/24/2005 6:30:14 PM PDT by TheHound (You would be paranoid too - if everyone was out to get you.)
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To: Born Conservative
We have repeatedly used EDTA chelation treatment for my autistic son. It is not quackery nor is it some miraculous treatment for autism.

Autistic children often have high levels of heavy metals in their bloodstream and hair. This can be measured and is certainly not quackery. It's there in as many as 90% of autistic children according to studies I have read. Where it comes from, I don't know.

We vaccinated and my son loves fish so maybe that's where it came from. We've cut out tuna, swordfish, mackerel, etc. Yet the mercury levels still continue to be elevated. Some doctors speculate that an inability to excrete heavy metals from the body is somehow part of the autistic presentation.

So, over the years we have done chelation. Not because we expect it to cure autism but because high levels of mercury are bad and can impair cognitive development.

We do many treatments aimed at improving my son's physiological symptoms. Leaky gut is a serious problem, related to yeast infections, and tackling that problem did result in miraculous improvements in our son.
68 posted on 08/24/2005 6:32:00 PM PDT by larrysav
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To: larrysav

Cilantro juice is excellent for removing mercury from the brain. I know when I drink it, my brain buzzes that's for sure. It's good stuff.


69 posted on 08/24/2005 6:36:03 PM PDT by cyborg (I'm having the best day ever.)
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To: cyborg

I love cilantro and grow it in my garden. No one else in my family likes it as much as I do, though. Before I did it as a treatment, I'd like to see studies of its chelation properties compared to EDTA and other drugs.


70 posted on 08/24/2005 6:40:12 PM PDT by larrysav
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To: TheHound
stoichiometry

My high school chem teacher tought us a module on stoichiometry, but studiously avoided using the word. He gave us a test and most of the class did well. He then started a "new" module on stoichiometry, and on the second day gave us a test on what we'd learned. Half the class flunked - though a few did just fine.

He was kind enough to disregard the second test as his whole point was to demonstrate how people are afraid of strange words.

71 posted on 08/24/2005 6:42:01 PM PDT by lepton ("It is useless to attempt to reason a man out of a thing he was never reasoned into"--Jonathan Swift)
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To: larrysav

I'm just guessing but I don't think it's anything like EDTA. I've also seen vitamin C used but not for autism. Before I have my children, I'm going to do my research on vaccines and PRAY I don't get an asshat for a pediatrician. You know some think they know what's better for your baby than you the parent.


72 posted on 08/24/2005 6:43:43 PM PDT by cyborg (I'm having the best day ever.)
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To: tiamat

Two was when the doctors finally decided something was wrong with my son. I knew when he was two weeks old.

He looked very serene and distant when he was born. I don't know if he had it by then. When he was ten days old I had to go on intravenous antibiotics and he got colic - for the next five months. It wasn't exactly the colic itself that made me think something was wrong - it was the way he looked at things, even at two weeks old - I could see that connections weren't being made in his mind.

He is 16 now, has Asperger's too. I wish you and your daughter well - I think the schools are more prepared now.


73 posted on 08/24/2005 6:45:06 PM PDT by heartwood
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To: larrysav

May I ask what you do it as a treatment for?


74 posted on 08/24/2005 6:46:50 PM PDT by TheHound (You would be paranoid too - if everyone was out to get you.)
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To: TheHound

As I said in my message, we use chelation to treat high levels of heavy metals in the bloodstream.


75 posted on 08/24/2005 6:52:30 PM PDT by larrysav
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Comment #76 Removed by Moderator

To: lepton
On the other hand, some of us have xenolexiphilia.

< ]B^)

(I know I spelt that right, because I just now made it up.)

77 posted on 08/24/2005 6:57:05 PM PDT by Erasmus (A strong bow is a terrible thing to waste. Give to the Antonio Janigro College Fund.)
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To: cyborg

I have a new child and have researched the vaccine mercury issue. Go here: http://www.fda.gov/cber/vaccine/thimerosal.htm#t1. Personally, I believe that this whole mercury vaccine thing is just another trial lawyer grab.


78 posted on 08/24/2005 7:00:04 PM PDT by TheHound (You would be paranoid too - if everyone was out to get you.)
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To: TheHound

I'd definately want more info about vaccines than what's given to parents. There may not be thimerasol in some vaccines but some vaccines are kept in storage. What about those? Lots of questions. I think it's better to ask a lot than too little.


79 posted on 08/24/2005 7:04:33 PM PDT by cyborg (I'm having the best day ever.)
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To: TheHound
I have a new child [...]

None of that "pre-owned" stuff? :)

80 posted on 08/24/2005 7:06:01 PM PDT by lepton ("It is useless to attempt to reason a man out of a thing he was never reasoned into"--Jonathan Swift)
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