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Jaxson has made a ton of progress after healing up from the failed transplant in March of 2018. They removed the donor intestines, but had to leave the donor liver and pancreas. He is 6 1/2 now and very small for his age, his 3 1/2 year old sister is about the same size as he is. Besides living on “TPN” hooked up to tubes for 18 hours a day, all his life, he now has ostomy/colostomy bags too, but even with all that, he has actually had a somewhat (relatively) normal life for the past year or so, in that the time he is unhooked during the day, he has been going to school and making friends.
Recently they got a new special needs boy to the school and he and Jaxson became friends and they moved Jaxson to his class because Jaxson was bringing him out of his shell and so they could both help each other...
They had a class field trip to the zoo about a week ago and my wife “Mimi” to Jaxson was able to go with him and they had a great day at the zoo. He loved seeing all the animals, but especially liked the monkeys!
Then, last Wednesday, he woke up complaining of a stomach ache and his belly seemed a little bloated, so my daughter took him to the hospital, thinking he was having another line infection.. Something that just happens every now and then with the g-tube, but it had been along time for him out of the hospital this time. They started running their tests and now are worried that he is in rejection and the doctors that did the transplant in Pittsburgh want to see him there. Today my wife and daughter flew back with him on lifeflight and we don't know where this will lead. There is no donor lined up this time if he is rejecting, not sure what will happen.
He has been at the top of the donor list since he got healed up from last time, so over a year now, but because of the failed transplant, the second time they said had to be a perfect match and that match has not been found. We know he is in God's hands and just asking for some extra prayers for strength for Jaxson, our family and the doctors that will be treating him after they arrive in Pittsburgh.
1 posted on 12/21/2019 8:24:09 PM PST by AzNASCARfan
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To: AzNASCARfan

Praying.....God bless him


2 posted on 12/21/2019 8:28:28 PM PST by Guenevere (Psalm 37)
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To: AzNASCARfan

Praying for Jaxson and his family.


3 posted on 12/21/2019 8:28:55 PM PST by TheWriterTX (Trust not in earthly princes....)
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To: AzNASCARfan

Prayers up.


4 posted on 12/21/2019 8:31:01 PM PST by Texas Eagle (If it wasn't for double-standards, Liberals would have no standards at all -- Texas Eagle)
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To: AzNASCARfan

Praying for Jaxson and his family and I will spread the word to my local community tomorrow and have Jaxson put on the prayer list of multiple churches.


6 posted on 12/21/2019 8:31:54 PM PST by txnativegop (The political left, Mankinds intellectual hemlock)
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To: AzNASCARfan

Many, many prayers going up.


7 posted on 12/21/2019 8:32:19 PM PST by peggybac (Government is about force. It always has been about force.)
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To: AzNASCARfan; Faith; infool7

Prayers for Jaxson.


8 posted on 12/21/2019 8:36:40 PM PST by fieldmarshaldj (Dear Mr. Kotter, #Epsteindidntkillhimself - Signed, Epstein's Mother)
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To: AzNASCARfan; Kathy in Alaska; LUV W; radu

** Prayer Warriors Ping List **


9 posted on 12/21/2019 8:37:57 PM PST by spel_grammer_an_punct_polise
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To: AzNASCARfan

Prayers offered for little big trooper Jaxson, may he get the necessary organs he needs for immediate transplant. Amen.


10 posted on 12/21/2019 8:42:02 PM PST by Robert DeLong
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To: AzNASCARfan

Big prayers to all of you.


11 posted on 12/21/2019 8:42:37 PM PST by fullchroma
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To: AzNASCARfan

Big prayers to all of you.


12 posted on 12/21/2019 8:42:47 PM PST by fullchroma
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To: AzNASCARfan

...


13 posted on 12/21/2019 8:43:09 PM PST by gloryblaze
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To: AzNASCARfan

God bless Jaxson. Count on my prayers!


14 posted on 12/21/2019 8:48:03 PM PST by Ouchthatonehurt
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To: AzNASCARfan

Prayers for him, and all of your family.


16 posted on 12/21/2019 9:11:37 PM PST by Yogafist
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To: AzNASCARfan

Prayers up for Jaxson!


17 posted on 12/21/2019 9:15:11 PM PST by ransomnote (IN GOD WE TRUST)
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To: AzNASCARfan



18 posted on 12/21/2019 9:24:12 PM PST by BlessedBeGod (To restore all things in Christ~~Appeasing evil is cowardice~~Francis is temporary. Hell is forever.)
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To: AzNASCARfan

Praying now for God’s wisdom for the doctors, peace for your family and that his little body does not reject those organs in Jesus name...amen


19 posted on 12/21/2019 9:33:40 PM PST by terart
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To: AzNASCARfan

Prayers for Jaxson.


20 posted on 12/21/2019 9:39:50 PM PST by Eddie01
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To: AzNASCARfan
I’m so sorry for the little guy. I pray that the Drs he sees have all the tools they need to make him healthy . May god bless him and may he and his family have a Happy and Merry Christmas.❤️
21 posted on 12/21/2019 10:06:43 PM PST by BillyCuccio (MAGA)
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To: AzNASCARfan

Loves breath once breathed,
cannot be exhaled.
God is with you.


22 posted on 12/22/2019 12:04:16 AM PST by Lean-Right (Eat More Moose)
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To: AzNASCARfan

Praying for Jaxson, his family and doctors.


23 posted on 12/22/2019 12:15:03 AM PST by dougherty (I saw the angel in the marble and carved until I set him free. - Michelangelo)
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