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Posted on 07/16/2009 3:01:05 AM PDT by Concerned
URGENT PRAYERS NEEDED - STEPHANIE'S 3RD TRACH OCCLUDES - HOSPITAL ARM-TWISTING for DNR
Earlier thread and updates:
http://www.freerepublic.com/focus/news/2283778/posts
http://www.freerepublic.com/focus/news/2283778/posts?page=181#181
http://www.freerepublic.com/focus/news/2283778/posts?page=203#203
http://www.freerepublic.com/focus/news/2283778/posts?page=239#239
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(1) THE 3RD TRACH (2ND CUSTOM) ALSO OCCLUDING
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Prior to the ENT Doctor inserting the 3rd trach (2nd custom), she told us it was our last option, other than re-intubating Stephanie.
For some reason, the trach keeps moving around inside Stephanie's trachea and occluding. It is EXTREMELY positional. Supposedly, the shape of Stephanie's trachea is sort of zig zag.
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(2) SHE WAS STABLE & IMPROVING WHILE INTUBATED
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The ONLY reason why we trached her was that the Pulmonologist Doctor (that I do NOT like), and the Respiratory Therapist, kept STRONGLY PUSHING it, saying it would really help her and be FAR BETTER than Bi-Pap or intubation.
STEPHANIE WAS **STABLE** WHILE INTUBATED!!!!!!!!!
SHE WAS **IMPROVING** WHILE INTUBATED!!!!!!!
AND SHE DIDN'T HAVE INFECTIONS!!!!!!!
Of course, although no one could know for sure how well it would work, we RELIED on their training, expertise and CONFIDENCE that it would be "THE" ANSWER.
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(3) DOCTOR / HOSPITAL PUSHING DNR
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I am absolutely SICKENED that the Doctor and hospital are PUSHING us to give them orders to DNR.
First, they PUSH to get RID of the intubation---which was WORKING---to go to a trach, then when the trach doesn't help, but instead makes it FAR, FAR, FAR WORSE, they want us to order DNR!!!
They especially don't want to have to give her CPR compression, claiming that they would likely break her ribs if they were to have to do it to her.
Clearly, I don't want Stephanie to hurt or be hurt, but I am VERY CONCERNED a DNR would give them an excuse to not give her CARE if/when she occludes. Since she has no assets or income, she is over 18 (and we could not get insurance on her), and she is on Medicaid, they have been ESPECIALLY eager to get her out the door instead of getting her well first.
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(4) DOCTOR PUSHED FEEDING WITH BI-PAP
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When I saw the Bi-Pap Stephanie was on, I was NOT real comfortable with it. I wanted her intubated and to get an "NG" tube so that she could NOT have to worry about breathing or eating.
But the Doctor and hospital RESISTED INTUBATING!!!
And they kept saying that you couldn't get an NG tube with Bi-Pap because it would leak air. But they EVENTUALLY DID JUST THAT ANYWAY!!!
She IMPROVED SO MUCH with the NG tube, they sent her to a regular floor!!!
Once we got to the regular floor (with Bi-Pap), the Doctor then INSISTED that we try to FEED HER BY MOUTH even though they had put in an NG tube---and it WAS WORKING!!!!
And then, she ASPIRATED when fed because she NEEDED the Bi-Pap to breathe yet could not swallow fast enough to get it out of the way before having to have the Bi-Pap!!!
She had been MAKING PROGRESS until then, but then she CRASHED when she tried to eat WHILE STILL DEPENDENT ON BI-PAP (WHICH BLOWS FOOD/LIQUID DOWN YOUR AIRWAY)!!!
At that time, SHE HAD NO INFECTIONS!!!
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(5) I'VE CRIED SO MANY TEARS I CAN'T STAND IT!!! BP 176/108
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Every time the Doctor wants to have a "conference," it is REALLY BAD NEWS!!! And it gets WORSE EACH TIME!!!
Each time, my blood pressure SKY ROCKETS! I took it today after the meeting and it was 176/108!!! (And I take BP meds, although my Doctor just changed it because of a reported defect with the med).
I have cried and cried and cried---till it HURTS!!!
And it REALLY HURTS to think that we may lose Stephanie when she just went in due to a STUPID SEIZURE THAT SHOULD HAVE BEEN CONTROLLED WITH MEDS!!!!!!!!!
And then she ASPIRATED and got ASPIRATION PNEUMONIA---NOT viral or bacterial pneumonia---ASPIRATION PNEUMONIA ---as a result of a STUPID SEIZURE THAT SHOULD HAVE BEEN CONTROLLED BY MEDS!!!!!!!
I am HEARTBROKEN!!!
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A shocking and terrible account of apparent medical musmanagement. I will pray, pray, pray for Stephanie-— and for you.
Breathe deep. Four times. TAsk God’s help. hen do what you need to do.
Excellent advice from mdmathis6. Print it out and take it with you and ask to speak to the doctor in charge immediately. Do not allow them to force you into any decision you do not agree with.
My heartfelt prayers for your daughter and your family. Be strong and pay attention to your own health. Your daughter needs you. Faith is empowering. Have faith.
GOD Bless you.
What is a risk manager?
Praying.
I am so sorry, I missed previous threads!
May the Lord Jesus place his healing hand upon her and give comfort to her family knowing that all is according to God’s plan. Bless this child and her family.
I am so sorry to hear this news and please know you are in my prayers.
Praying for all of you!!
I am in earnest prayer for Stephanie and for you.
God’s will be done. Prayers for her recovery.
they get involved if family of or patients have concerns and the way things are being handled in the hospital....when my dad was in the hospital the drs were telling me a different story everyday while the nurses would give me the same info each day that was more accurate...i went to the risk manager and told him of my concerns....he pulled my dads records and had a senior dr and nurse review them to get the true answers for me of what was going on since i was the one that was having to make life or death decisions....
praying for all of you
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Prayers for Stephanie and family.
Prayers going up for Stephanie!
You and Stephanie have my most sincere, heartfelt prayers.
I am so sorry for what you are going through, and am crying myself.
Keep in touch with your FRiends as much as time permits; I’ve found them all to be a great source of support in times like these.
May God Bless You All,
BR
My heart goes out to you and yours over this...Praying mightily for a quick and speedy recovery and for the doctors to make the best decisions for her.
Prayers for Stephanie will continue.
Dear Lord,
We are lifting Stephanie up to You Lord.
You know her needs.
Praying in Jesus’ Holy Name.
Amen.
Lord, my Lord hear all the prayers of the warriors that have gathered in your name. Amen
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