Posted on 07/16/2009 3:01:05 AM PDT by Concerned
URGENT PRAYERS NEEDED - STEPHANIE'S 3RD TRACH OCCLUDES - HOSPITAL ARM-TWISTING for DNR
Earlier thread and updates:
http://www.freerepublic.com/focus/news/2283778/posts
http://www.freerepublic.com/focus/news/2283778/posts?page=181#181
http://www.freerepublic.com/focus/news/2283778/posts?page=203#203
http://www.freerepublic.com/focus/news/2283778/posts?page=239#239
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(1) THE 3RD TRACH (2ND CUSTOM) ALSO OCCLUDING
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Prior to the ENT Doctor inserting the 3rd trach (2nd custom), she told us it was our last option, other than re-intubating Stephanie.
For some reason, the trach keeps moving around inside Stephanie's trachea and occluding. It is EXTREMELY positional. Supposedly, the shape of Stephanie's trachea is sort of zig zag.
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(2) SHE WAS STABLE & IMPROVING WHILE INTUBATED
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The ONLY reason why we trached her was that the Pulmonologist Doctor (that I do NOT like), and the Respiratory Therapist, kept STRONGLY PUSHING it, saying it would really help her and be FAR BETTER than Bi-Pap or intubation.
STEPHANIE WAS **STABLE** WHILE INTUBATED!!!!!!!!!
SHE WAS **IMPROVING** WHILE INTUBATED!!!!!!!
AND SHE DIDN'T HAVE INFECTIONS!!!!!!!
Of course, although no one could know for sure how well it would work, we RELIED on their training, expertise and CONFIDENCE that it would be "THE" ANSWER.
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(3) DOCTOR / HOSPITAL PUSHING DNR
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I am absolutely SICKENED that the Doctor and hospital are PUSHING us to give them orders to DNR.
First, they PUSH to get RID of the intubation---which was WORKING---to go to a trach, then when the trach doesn't help, but instead makes it FAR, FAR, FAR WORSE, they want us to order DNR!!!
They especially don't want to have to give her CPR compression, claiming that they would likely break her ribs if they were to have to do it to her.
Clearly, I don't want Stephanie to hurt or be hurt, but I am VERY CONCERNED a DNR would give them an excuse to not give her CARE if/when she occludes. Since she has no assets or income, she is over 18 (and we could not get insurance on her), and she is on Medicaid, they have been ESPECIALLY eager to get her out the door instead of getting her well first.
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(4) DOCTOR PUSHED FEEDING WITH BI-PAP
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When I saw the Bi-Pap Stephanie was on, I was NOT real comfortable with it. I wanted her intubated and to get an "NG" tube so that she could NOT have to worry about breathing or eating.
But the Doctor and hospital RESISTED INTUBATING!!!
And they kept saying that you couldn't get an NG tube with Bi-Pap because it would leak air. But they EVENTUALLY DID JUST THAT ANYWAY!!!
She IMPROVED SO MUCH with the NG tube, they sent her to a regular floor!!!
Once we got to the regular floor (with Bi-Pap), the Doctor then INSISTED that we try to FEED HER BY MOUTH even though they had put in an NG tube---and it WAS WORKING!!!!
And then, she ASPIRATED when fed because she NEEDED the Bi-Pap to breathe yet could not swallow fast enough to get it out of the way before having to have the Bi-Pap!!!
She had been MAKING PROGRESS until then, but then she CRASHED when she tried to eat WHILE STILL DEPENDENT ON BI-PAP (WHICH BLOWS FOOD/LIQUID DOWN YOUR AIRWAY)!!!
At that time, SHE HAD NO INFECTIONS!!!
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(5) I'VE CRIED SO MANY TEARS I CAN'T STAND IT!!! BP 176/108
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Every time the Doctor wants to have a "conference," it is REALLY BAD NEWS!!! And it gets WORSE EACH TIME!!!
Each time, my blood pressure SKY ROCKETS! I took it today after the meeting and it was 176/108!!! (And I take BP meds, although my Doctor just changed it because of a reported defect with the med).
I have cried and cried and cried---till it HURTS!!!
And it REALLY HURTS to think that we may lose Stephanie when she just went in due to a STUPID SEIZURE THAT SHOULD HAVE BEEN CONTROLLED WITH MEDS!!!!!!!!!
And then she ASPIRATED and got ASPIRATION PNEUMONIA---NOT viral or bacterial pneumonia---ASPIRATION PNEUMONIA ---as a result of a STUPID SEIZURE THAT SHOULD HAVE BEEN CONTROLLED BY MEDS!!!!!!!
I am HEARTBROKEN!!!
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Joining you in your beautiful, spirit-filled prayer at this heartbreaking moment.
There are no words I could speak that would take away the pain, but I am so very sorry. You are in my prayers.
Did you EVER find out how that DNR form got into your Dad's paperwork?? Who did it??
I'm amazed you're not in prison; my mother's getting on in years, and if something like that happened to her -- I'd have gone positively BALLISTIC! I can't say for sure how I'd have handled the situation, but there'd have been cops involved.
I made up my mind a VERY long time ago NOT to put up with that kind of junk where my family's concerned. WE don't take it from ANYONE. I WON'T STAND FOR IT.
So, my hat's off to ya for keeping your cool.
My friend, trust me, I was extremely upset inside.
Amidst all the difficulty I had to pretend it was nothing so as to distract my mother.
I am with you, this type of “mistake” should have never happened. My human instinct was to go after whoever did this so others don’t suffer, along that line. I suspect, even now, there is an angel of death there working in the ER, and he/she is not the only one.
After much prayers and reflection. I decided that I would forgive whoever did this, but I must admit, it is hard to forget.
All in all, I could say this from experience. Don’t listen to the crap they give you, this so called catholic hospital is not very catholic at all.
The thing is, if my father had died from this mishap, we would have probably not even known about this pink DNR paper was even there. Very scary stuff.
From that point on, everyday that I went to visit dad, I made sure the nursing staff with a fresh face knows that our family is very explicit that dad is to be saved with all efforts regardless.
This experience is very painful. I’m afraid it is only going to get worse as more trusting patients will simply get the “oooooops, he did make it” type of excuses.
We must be vigilant and not let this culture of death take over.
Isaiah 40:11:
He gathers the lambs in his arms and carries them close to his heart ………..
Prayers that you and your family will be comforted, knowing Stephanie is safe in God’s care and in the constant presence of His love.
It seems to me that you did all that you could. Resist bitterness and trust her to God’s sovereign care. God bless you.
Amen to every word of your prayer.
Prayers lifted for your family.
She is beyond hurt or harm now.
One day every tear will be wiped away.
Praying with you and for you and all Stephanie’s loved ones. May He hold her in His loving arms.
My heart aches for you and I offer my prayers for your comfort and strength and peace.
RIP, dear Stephanie.
And prayers of comfort also for your friend Leslie.
May you draw comfort, support and strength from one another.
So very sorry for your loss. God be with you and yours.
Thank You, Lord for using Albion Wilde in prayer!
I just now searched for your name and found your last post. I am so, so very sorry for your loss. I share your heartbreak. Your daughter, Stephanie, you, and your family will remain in my thoughts and prayers.
Also prayers for your friend, Leslie, and her mother, Nita.
Again, my deepest condolences to you and your family.
I missed this thread at the time, but wanted to tell you I am very sorry for your loss. I am praying for you and all whom you requested prayers for.
Hang in there.
my heart goes out to you and your family...all we can do in a time like this is hang onto Our Father in Heaven. Hugs.
I’m so sorry to hear of Stephanie’s passing. (major computer problems, I’ve been off and on line) I can only imagine your pain and sorrow, be assured of my continued prayers for your family.
I am greatly saddened to hear of Stephanie’s passing. She and your whole family had been in my family’s daily prayers. We will continue to pray for everyone involved, and particularly for the conversions of your father and brother.
Prayers sent. May God Bless.
I am so sorry you lost your child. I lost one too.
When you go throgh this thread again, when the immediate days pass you, send me a private message.
God Bless and Lift You in the days to come.
Godspeed.
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