Prayer on it's way.
Posted on 07/01/2009 6:45:07 PM PDT by Concerned
URGENT PRAYERS NEEDED - DAUGHTER ON RESPIRATOR, NOW HAS MRSA.
My daughter, Stephanie, is on a respirator and nasal feeding tube in the ICU at our local hospital. She was admitted to the hospital on 06/07/2009, after having a seizure that lasted over an hour. She had several shorter ones back-to-back after admission. We were told today that she now has MRSA.
I have written about her before. She is a severely mentally and physically disabled 24 year old, who does not walk, talk, or feed herself. She wears diapers and has a very rare type of dwarfism, so she is only 36 inches tall. She will be 25 years old on 07/27/2009, assuming she lives through this ordeal.
When she was about 9 months old, she had to be trached and on a respirator, with a feeding tube, for a little over 3 years, because her rib cage was significantly deformed and not large enough to allow her lungs to fully expand.
The VERY progressive Doctors we had thought that if she could be trached and ventilated on a respirator, the positive pressure from the respirator pushing her lungs out to hit her rib cage would stimulate her rib cage to grow over three years---and it DID, significantly!
We had an ICU in our home, with round-the-clock nursing. Eventually, she no longer needed either the Respirator or feeding tube.
Because of her respirator-enlarged rib cage, from about age five until probably age 20 or so, she was basically like most kids as far as getting sick was concerned. No major medical problems during that time.
Then suddenly, she started having seizures, especially after we got her out of the tub and she was still a little wet. For some reason, her ability to deal with temperature regulation went haywire and she began having febrile (i.e. sudden, major temperature-drop) seizures. She also started having them with strobe light effects, e.g. when a fan was beneath lights and the fan "cut through" the path of light.
Since we had taken Stephanie on many trips during her lifetime, my husband and I decided to take our younger daughter on a cruise to Alaska via Vancouver, leaving Stephanie in the hands of the agency which regularly helps us care for her at home.
We had just gotten off the ship and were back in Canada when we got the call about Stephanie going to the hospital. We got back asap.
We just okayed the Doctor to have her trached again and to have a feeding tube put in again. The trach may be temporary, but she aspirates when she gets anything by mouth. And now, she has to also fight off MRSA.
PLEASE PRAY FOR HER HEALING AND RECOVERY and to guide the Doctors' hands and for us to make the right decisions.
Thanks!!!
Prayer on it's way.
Prayers going up, Concerned — for your daughter as well as your entire family. Keep us posted on her condition.
God bless you, your daughter, and family.
God bless you, your daughter, and family.
I will be praying for Stephanie.
—Molly K.
I hope all goes well for you and your family...you are in my thoughts and prayers.
God bless your family and I am praying for all of you and her doctors and nurses and all those who aid in healing and pain relief and for God’s will to be done.
Prayers for your daughter.
Sending prayers, love, and emotional support!
Prayers sent.
Prayers for God’s healing hand for Stephanie and prayers for strength for you and your husband.
We join in prayer for Stephanie, the medical team treating her, and all who love and care for her. May she find comfort and freedom from pain during this trying time.
Bless her heart...and yours. Your story shows the strength and love of a family for a very special child. You have made the right decisions for her all of her life...you will continue to do so, guided by our Heavenly Father.
Blessing.....
“TT”, Beth & Nana
~Prayers~
and Amen.
Praying for God’s blessings and loving hands to touch your daughter and bring her through this ordeal. Prayers also for you and your family at this time.
Prayers up for your daughter.
Prayers for God’s blessings on all.
Prayers up.
Prayers for you daughter
I will pray for your daughter and family.
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