I went through this with a friend for who I was 24/7 caregiver. I never signed the DNR until after he died. He had no intentions ever of giving up.
She's not taking offense at the wrong thing. If her instincts tell her that her husband is in a hostile environment he probably is.
Some doctors and staff do, indeed measure their patients for a coffin, bending the rules and "taking shortcuts" because by law-of-averages they will be right, say, 80% of the time. Of course, that means 2 in 10 times they will be wrong and "innocent" lives will be lost.
You were lucky with your mom and with your older friend, but not all hospitals work that way. Each has a culture of its own and it even varies from ward to ward within a hospital. Sometimes arrogance, sleep deprivation and "paternalism" get the best of the doctors and staff. I speak, unfortunately, from experience. I'm fighting an uphill battle to hold the doctors and hospital that treated my father accountable for their actions.
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So my thoughts are with this woman, and I would tell her to have your husband transferred out of there or walk into the hospitals Risk Assessment office with a lawyer in tow.
She's not taking offense at the wrong thing. If her instincts tell her that her husband is in a hostile environment he probably is.
Some doctors and staff do, indeed measure their patients for a coffin, bending the rules and "taking shortcuts" because by law-of-averages they will be right, say, 80% of the time. Of course, that means 2 in 10 times they will be wrong and "innocent" lives will be lost.
You were lucky with your mom and with your older friend, but not all hospitals work that way. Each has a culture of its own and it even varies from ward to ward within a hospital. Sometimes arrogance, sleep deprivation and "paternalism" get the best of the doctors and staff. I speak, unfortunately, from experience. I'm fighting an uphill battle to hold the doctors and hospital that treated my father accountable for their actions.
http://users.starpower.net/neustadter/menu.html
So my thoughts are with this woman, and I would tell her to have her husband transferred out of there or walk into the hospitals Risk Assessment office with a lawyer in tow.
Maybe I didn't explain this correctly...
The resident HOUNDED me. ALL day. I mean ALL day. I said NO. He didn't give up.
That's unethical and CRUEL. He made that first day about a million times worse, hovering over me like the Grim Reeper.
I had to scream at him, "What part of 'no' don't you understand? End of discussion!" He saw he was upsetting me, and he REFUSED to stop. THAT is "compassionate care"? That's CRUEL and INHUMANE. This guy should be working on computers. He should be NO WHERE NEAR human beings!
Then when Junior saw it wasn't going to work with me, he started in on my husband's son. Absolutely unbelievable.
I also told that resident NOT to go NEAR my husband. When I saw him near the room a few days later, I told him I would file a complaint against him and have his license suspended. NO ONE has the right to harrass a person under severe duress into signing a DNR order that my husband DID NOT WANT. And someone who isn't interested in preserving life but making a bad situation worse shouldn't be near sick people.
Interestingly, I've never seen Junior in ICU since.
Oh, and yes, I do intend to file charges against him when all this is done. Junior needs a refresher course in human compassion.
And just to let you know, part of the reason why the little monster might've been so insistent is that he's from the same chemo group that accepted my husband into the hospital. The main dr. went on three-weeks' vacation when my husband was admitted to the hospital. Apparently NO ONE from the group was overseeing him as he developed sepsis and went into septic shock.
They ignored all of the signs of sepsis. I have no idea if anyone even saw him, and that might include this particular little geek.
I don't know if it's malpractice, and frankly, I don't give a rat's azz at this point. All I care about is my husband's life.
I'll make sure this little bastard can't do this to anyone else LATER.
I hope that sets you straight.
Very nice post. I've been there, did that with my 91 year old mom 1 1/2 years ago. I'm a registered nurse, and letting her go was the hardest thing I ever had to do. But looking back, my sister and I now realize it was the kindest.
Simplemines, I'd be sure that everyone does know your and your husband's occupations. Somedays, I think the media are more powerful than the lawyers. (Then I get on FR and remember that we have all the power, here.)
Second, insist on seeing the attending and tell him/her about the haunting. Skip the higher-up residents, they're probably the problem behind the problem, although it could be the attending.Someone's pushing the haunter.
Nevertheless, I would insist on seeing the supervising attending. Especially on Saturday and Sunday, you'll get more respect and action from the attending. Everyone else will step a little more lightly if you are certain and they know that the attending is aware that you are aware.
At the same time that you're asking for the attending, you need to get in touch with your husband's family doctor or internist, or his oncologist - whoever you feel was the "captain of the ship" before this admission.
I would sure like to know why there are plans for a tracheostomy if they plan to wean your husband off the ventilator. Why would he need an artificial airway, then? Also, I'd review with the oncologist what the prognosis after successful pancreatic cancer surgery - It would be rare for that to mean that there's no more cancer.
I'm afraid there are poorly trained doctors and some with a bad ethics base. But, think about doctors you've known in the past and the nurses who keep us straight. Does it really make sense that any of them would act to cause death or fail to act to delay it? That's just not how most of us are motivated.
Finally, CA Guy has a point worth thinking about. "Everything" these days can be pretty extreme, especially in light of pancreatic cancer and the usual progression. When your husband's a little stronger, y'all may want to ask someone about the usual course and whether you want to add dialysis, a feeding tube, and what to do in case of complications that require a transfusion or other blood products
I'm very happy that you had a good experience in good facilities.
Speaking as a nurse with 20+ years of hospital experience...a DNR is an excellent way of insuring deficient and neglectful care.