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Services for Autistic children under attack by Gov. Schwarzenegger !!
Marty Omoto, Legislative Director | 12/04/03 | pollywog

Posted on 12/04/2003 7:47:02 PM PST by pollywog

From: Marty Omoto, Legislative Director Sent: Wednesday, December 03, 2003 5:06 PM Subject: CA UCP CAPITOL REPORT #176-2003: Senate Budget Subcommittee Hearing Rescheduled for 12/10

CALIFORNIA UCP CAPITOL REPORT #176-2003 DECEMBER 3, 2003 - Wednesday Senate Budget Subcommittee Hearing on Governor's Spending Cuts Including Lanterman Suspension, IHSS and Respite Program Elimination Scheduled for 12/10 Wednesday 11:00 AM - Protest Rally Set for 10 AM

The Senate Budget Subcommittee #3 on Health and Human Services, chaired by Sen. Wes Chesbro (D-Arcata) has rescheduled the informational hearing on Governor Arnold Schwarzenegger's current year budget cuts for December 10, Wednesday morning at 11:00 AM in the State Capitol, Room 4203. The hearing will cover the Governor's health and human services related cuts proposed by the Governor, including suspension of the landmark Lanterman Developmental Disabilities Services Act - the civil rights act that protects people with developmental disabilities, proposed elimination of many programs including respite (for people with developmental disabilities), enrollment caps and waiting lists for a wide range of health programs - including regional center services, elimination of the In-Home Supportive Services residual program which employs parents and other family members to provide assistance to family members with disabilities.

Advocates for people with developmental and other disabilities and others - furious with the proposed cuts and suspension of the Lanterman Act, are mobilizing across the state, with protests and rallies. A large protest rally, planned for today (Dec 3) to coincide with hearings that were scheduled for today but postponed, is now planned for December 10, Wednesday morning at 10 AM on the North Steps of the State Capitol. For more information contact Marty Omoto at 916/446-0013 for more details (or send email to address below).

Governor Arnold Schwarzenegger's Department of Finance released Tuesday late afternoon actual draft legislation (referred to as "trailer bills") that details his proposals announced last week to suspend the landmark Lanterman Developmental Disabilities Services Act - the civil rights act that protects people with developmental disabilities in California, along with draft language covering proposed massive cuts to Medi-Cal, regional center funded services, In-Home Supportive Services and other programs. These cuts, proposed for the current year budget that California is now operating under, were announced last week as part of the Governor's package of proposals to address the state's fiscal crisis.

The Governor's proposals all require approval of both houses of the Legislature. The Senate Budget subcommittees - including the subcommittee that deals with health and human service programs were all scheduled to hold initial hearings Wednesday, December 3 on the Governor's spending cut proposals, however due to the urgency to pass the proposed bond and spending cap measures, those hearings were postponed, possibly until next week.

The draft legislation from the Governor stunned advocates for people with developmental and other disabilities, already reeling from what one parent called an absolutely "devastating" proposal to suspend the historic Lanterman Act and includes the following: * Would make drastic changes to the authority of a person's "individual program plan" by allowing regional centers to ignore any requirements in order to keep within their individual budgets. * In addition, the draft language proposes even tighter restrictions on spending for individual regional centers that fund services provided by community based organizations and others by prohibiting any overspending of their individual budgets for any reason. * It also appears that this draft language would propose to limit who could receive regional center services to the caseload of individual regional centers as of December 31, 2003 - and just a statewide caseload total.

DRAFT LANGUAGE TO SUSPEND THE LANTERMAN DEVELOPMENTAL DISABILITIES SERVICES ACT AND LIMIT THE NUMBER OF CONSUMERS SERVED BY REGIONAL CENTERS (Draft submitted to Legislature 12/2/03) Welfare and Institutions Code Section 1. Section 4631.6 of the Welfare and Institutions Code is added to read:

(a) (1) It is the intent of the Legislature to limit the caseload of the regional centers to the total number of individuals served by regional centers as of December 31, 2003. (2) Effective January 1, 2004, notwithstanding any provision of law or regulation, including but not limited to, the Lanterman Developmental Disabilities Services Act and the California Early Intervention Services Act, the total number of consumers for whom each regional center provides service coordination, develops an individual program plan or purchase of services or supports may not exceed the total number of consumers who were served by that regional center on December 31, 2003. However, regional centers shall continue to provide each individual with intake and assessment and shall determine whether each individual would be eligible for services if the caseload were not limited. (3) Effective January 1, 2004, no regional center may make new consumers eligible for services unless and until attrition occurs at that regional center. In determining which consumers are to be added to the regional center's caseload, the regional centers shall give priority to those consumers whose health or safety is jeopardized.

(b) The prohibitions contained in subdivision (a) shall not apply to consumers transitioning from a developmental center or state- operated facility pursuant to a community placement plan.

(c) (1) It is the intent of the Legislature that regional centers shall not exceed the amount appropriated for regional center services in the annual Budget Act, even if the result is that consumers with developmental disabilities are denied services or supports that have been included in the consumer's individual program plan. (2) Notwithstanding any provision of law or regulation, including, but not limited to, the Lanterman Developmental Disabilities Services Act and the California Early Intervention Services Act, no regional center may expend more than the amount allocated in that center's contract with the State Department of Developmental Services for that fiscal year. (3) Each regional center shall have the authority to deny, modify, reduce or terminate services to any consumer, including, but not limited to, those services and supports identified in the consumer's individual program plan. (4) Unless required by the Social Security Act or Individuals with Disabilities Education Act, none of the provisions of Chapter 7, section 4700 et seq., including the right to fair hearing, shall apply to any consumer whose services or supports have been denied, modified, reduced or terminated pursuant to this section.

Section 2. Section 4631.7 of the Welfare and Institutions Code is added to read:

Unless required by the Social Security Act or Individuals with Disabilities Education Act, effective January 1, 2004, notwithstanding any provision or law or regulation, including but not limited to, the Lanterman Developmental Disabilities Services Act, consumers receiving services through the Habilitation Services Program may not transition to a day program with an employment component or to service codes 055 and 063, unless the consumer is unsuccessful in the Habilitation Services Program.

Section 3. This act is an urgency statute necessary for the immediate preservation of the public peace, health, or safety within the meaning of Article IV of the Constitution and shall go into immediate effect. The facts constituting the necessity are: In order to make the necessary statutory changes to implement budget reductions relating to public social services during the 2003- 04 fiscal year, it is necessary that this bill take effect immediately.

DRAFT LANGUAGE ON REGIONAL CENTER SERVICE ELIMINATIONS (Draft submitted to Legislature 12/2/03) Welfare and Institutions Code Add Section 4659.1 (a) Effective January 1, 2004, notwithstanding any provision of law or regulation, including but not limited to, the Lanterman Developmental Disabilities Services Act and the California Early Intervention Services Act, no regional center may expend purchase of service funds for any existing or new consumer for any of the following services or supports: respite, social recreation activity, social recreation program, camp, or non-medical therapy.

(b) The services and supports identified in subsection (a) include the following service codes as contained in or established pursuant to Title 17, California Code of Regulations, sections 54340 through 54356: 008, 028, 072, 084, 106, 525, 625, 690, 691, 692, 693, 694, and 850; and, to the extent that the service is for the purpose of providing respite, the following service codes: 074, 405, 415, 420, 707, 740, 742, 743, 744, 760, 851, 854, 856, 858, 860, 862, 864, 868, 869, 905, 910, 915, 920, 925, 930, 935, and 940.

(c) Unless required by the Social Security Act or Individuals with Disabilities Education Act, no consumer whose services or supports have been denied, modified, reduced or terminated pursuant to this section shall have a right to a fair hearing as described in Chapter 7, section 4700 et seq., and the regional center shall not comply with Chapter 7, section 4700 et seq. if it denies, modifies, reduces or terminates a service or support pursuant to this section.

NEXT STEPS * SENATE: postponed budget subcommittee hearings scheduled for 12/3 but may reschedule for next week to consider the Governor's proposals. Passage of many of the Governor's proposals are very uncertain. * ASSEMBLY: the Assembly budget subcommittees did not schedule hearings this week - and may meet next week, and as in the Senate - passage of many of the Governor's proposals is very uncertain. * GOVERNOR - Schwarzenegger is hoping for swift passage not only of his proposed spending cap and bond measures (the deadline for that is December 5 in order to qualify for the March 2004 primary ballot) but for his spending reduction proposals - many of which assume passage by January 2004. The Governor's Department of Finance is urging quick passage in order to achieve the greatest savings for the current year budget.

FOR MORE INFORMATION ABOUT THIS CA UCP CAPITOL REPORT * This is a online report for all Californians with developmental (& other disabilities), families, providers and other advocates, from the California Coalition of United Cerebral Palsy Associations a link to the California Community Advocacy Network. * If you would like to get on this distribution (and conversely, get off of it) please send an email with that request to: martyomoto@r... Sharing information is part of our organizing effort. Please feel free to forward or copy this (attribution is nice). We're all in this together! Marty Omoto, Legislative Director - CA Coalition of United Cerebral Palsy Associations 1225 8th Street Suite 480 Sacramento, CA 95814 VOICE PHONE: 916/446-0013 FAX number: 916/446-0026 email: martyomoto@r... Coalition Chair: Philip Ksarjian (UCP of Greater Sacramento) Past Chair: Ron Cohen (UCP of LA and Ventura Counties)

PROTEST RALLY NOW SCHEDULED FOR: 12/10/03 10:00 AM NORTH STEPS OF STATE CAPITOL "FIGHT FOR THE PROMISE FOR PEOPLE WITH DISABILITIES AND SENIORS!" and then come and attend and testify at the Senate Budget Subcommittee hearing that will consider the Governor's spending cut proposals at 11:00 AM.


TOPICS: Government; News/Current Events; US: California
KEYWORDS: autism; calgov2002; california; catrans; coercedcharity; governor; schwarzenegger
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To: pollywog
Pollywog - It's obvious that many on this thread know little about autism and would not be so harsh if they had a child who was affected. My heart goes out to you! Perhaps other agencies will fill the need for your family. Make some phone calls the next few weeks to see how this will affect you and look into alternatives. God Bless.
101 posted on 12/04/2003 10:23:12 PM PST by Bill O Right
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To: FairOpinion
I support what is best for the Republic, above all. Massive future debt is not my idea of that.

Keep trying tho. ;_)

102 posted on 12/04/2003 10:23:12 PM PST by NormsRevenge (Semper Fi)
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To: pollywog
Wow! You've made my day. I thought all my money the government was taking from me with a gun to my head was being wasted. At least some of it is going to a good cause.
103 posted on 12/04/2003 10:32:32 PM PST by TheDon
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To: Vladiator
Your reference is quite appropriate, as this is a government program. That's what I like about "A Christmas Carol" it distinctly shows the difference between coercive and voluntary philanthropy in the character of Mr. Scrooge. Merry Christmas to all!
104 posted on 12/04/2003 10:36:30 PM PST by TheDon
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To: Bill O Right
Pollywog - It's obvious that many on this thread know little about autism and would not be so harsh if they had a child who was affected.

My 11 YO son has Asperger Syndrome and spent 14 days in a psychiatric facility when he was 9. I have enough on my plate, taking care of my own.

It's liberal crap. "If YOU had a family member in the military, you would be against the war!" "If YOU loved someone who was gay, you'd support hate crimes!" Real conservatives don't change their views based upon their personal situation.

105 posted on 12/04/2003 10:37:13 PM PST by Dianna
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To: GeronL
Funny I don't see anything about cutting road maintenance or building or delivering the mail
That should all be privatized

We started out with private roads and very quickly learned that public ones were better. And, it took a trip to Europe and Germany(WWII) by Eisenhower to learn that public interstate highways were better, still.

106 posted on 12/04/2003 10:38:14 PM PST by linksduster
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To: pollywog
I'm thankful you posted your impassioned plea.

There is no better example of the depth of the problem that California faces than you've presented this evening.

Most replyed with compassion and sensitivity. Some offered constructive suggestions and were rebuffed. Others asked questions designed to guide you obvious answers and were ignored. Still others simply stood their ground in the face of your righteous convictions.

Soon the California taxpayer will face a host of special interest pleas and well organized tantrums. May the general population react with the grace exhibited on this forum tonight.

107 posted on 12/04/2003 10:39:31 PM PST by Amerigomag
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To: Callahan
"Every government program is "vital." That's why we can never eliminate anything. We'll just keep on our merry, bankrupt way and tax the "rich" for the money we need."

I agree with you 100%! When I vote, I just go down the list and look at whether it will raise my tax - I don't care WHAT it's for, even if it's to help my dear ol' mum, or law enforcement, or my grandchildren, etc. However, if we'd EVER, EVER stop wasting so much money and stop helping other countries out to the point we do, we could help everyone in our country that has a need. But, that will never happen - we know that. So, it's a Catch-22. We are all pitted against one another...
108 posted on 12/04/2003 10:41:42 PM PST by tinacart ((I still hate hitlery!!!))
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To: FreedomCalls
How did autistic people get along BEFORE

who cares. as a christian nation we have a duty and responsibilty to care for each other.
109 posted on 12/04/2003 10:45:25 PM PST by linksduster
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To: pollywog
As I recall, this is EXACTLY what Davis was proposing to do along with the car tax. I know of someone (an owner of a home health business) who voted for Arnold because he said he wouldn't hurt children, so they figured he wouldn't do this. Wrongo . He is taking away from the weakest, most vulnerable in our society.

Didn't Davis hire thousands and thousands of state workers?- (so many that according to radio station KFI's John and Ken- there wasn't enough office space for them) I haven't heard of any of them getting their pink slips.

How about the morons in the environmental agency that prevented the forrests from being cleared- with the result that 1/2 the state burned down? Are they still on the payroll Arnold? .

Among other things- these programs allow medically fragile children to be cared for in their homes, with their families, rather than being warehoused in a convalescent hospital. They also allow parents caring for developmentally delayed children to have a break- respite. Please, if you haven't been around people with disabilities, you have NO IDEA how much it takes to look after them.

The point I'm trying to make is that there are alot of other places cuts could/should be made- before we get to the disabled. How about the prisons? Do the prisoners have to have cable and weight rooms? Or do we take the sick child away from her family and stick her in a convalescent hospital (that is likely as not understaffed )so Joe mass-murderer can have his entertainment?

How about "sensitivity" programs? Davis must have put alot of those in. How about all the "multi-cultural" programs in the schools? Sure the kiddies might not learn about some other culture, but a sick child won't have to pay the price by being taken away from his /her family. (and the teachers might actually have to teach the students how to read/write and do arithmetic)

This is awful-what he is proposing. It does hurt "the children" and the sickest/weakest children at that.

110 posted on 12/04/2003 10:47:33 PM PST by fly_so_free (Never underestimate the treachery of the democrat party. Save the USA vote a dem out of office)
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To: pollywog
who's the idiot in the Arnold camp who keeps this putting our party in this position?

Last week, some idiot was proposing to cut Healthy Families, the only route to get people off of MediCare.

Who's the brainiac?
111 posted on 12/04/2003 10:53:38 PM PST by bonesmccoy (Defeat the terrorists... Vaccinate!)
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To: FreedomCalls
life's little problems

when I go to bed tonight I am going to pray that you and your family start having more and more of life's little problems and that others, less blessed by God, and therefore less able to handle the problems have fewer ones. you have all the answers, so it only seems fair.

in sum, my toast to you, "may you life end in a gutter." by that I mean, may your family die before you, social security go bust, and that you go blind and are left to die in a gutter by FreedomCalls II
112 posted on 12/04/2003 10:59:25 PM PST by linksduster
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To: linksduster
ZOT!
113 posted on 12/04/2003 11:07:44 PM PST by Jim Robinson (All your ZOTS are belong to us.)
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Comment #114 Removed by Moderator

To: Bill O Right
Pollywog - It's obvious that many on this thread know little about autism and would not be so harsh if they had a child who was affected. My heart goes out to you!

Thank you Bill O Right and all. Many can post more eloquently and are much better with their words at describing the plight of the handicapped. I know some of my posts last night were with emotion probably more than intellect! Still in all, I believe that autism is something that you have to experience first hand to really understand.I am sure there are those on these forums with autistic children that may be reading but not involved in participating on this thread. Everyone is giving us suggestions and I take them to heart, believe me. My hope is that the need will open the eyes of the Churches and Communities and that we will see organizations open up and rally to the need across the country.

115 posted on 12/05/2003 5:33:31 AM PST by pollywog (Psalm 121;1 I Lift mine eyes to the hills from whence cometh my help.)
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To: fly_so_free
How about "sensitivity" programs? Davis must have put alot of those in. How about all the "multi-cultural" programs in the schools? Sure the kiddies might not learn about some other culture, but a sick child won't have to pay the price by being taken away from his /her family. (and the teachers might actually have to teach the students how to read/write and do arithmetic)

This is awful-what he is proposing. It does hurt "the children" and the sickest/weakest children at that.

This is exactly my point!!! You said it better than I could. Thanks.

116 posted on 12/05/2003 5:41:39 AM PST by pollywog (Psalm 121;1 I Lift mine eyes to the hills from whence cometh my help.)
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To: linksduster
who cares. as a christian nation we have a duty and responsibilty to care for each other. That really wasn't the issue. The issue is the level of services that a state w/ a huge budget deficit can sustain. Services are being provided. Most probably the son receives SSI and possibly/ probably Medicaid plus other state services. The bottom line is that government isn't God despite some people's expectations.
117 posted on 12/05/2003 5:43:18 AM PST by elli1
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To: pollywog
Polly, I'll be praying for you and your family. I knew there would be a cold reaction by some who are fortunate enough to not know the first thing about this topic. Hang in there.

I know this is drastic, but have you considered relocating to another state?
118 posted on 12/05/2003 6:30:48 AM PST by alnick
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To: Miss Maam
I was a therapist for a little over 5 years on a government grant program with autistic children. The staff was awesome. But I don't the being a gov or private nonprofit makes a difference in the staffing. Staff is usually no better then the standards the heads set.

The bottom line is, programs have to be cut and fly free of the government. There will be rocky roads for all of us to travel until programs and services are redefined. And, more importantly, we all have to pull together to fix it.
119 posted on 12/05/2003 6:32:47 AM PST by Calpernia (Innocence seldom utters outraged shrieks. Guilt does.)
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To: FreedomCalls
How did autistic people get along BEFORE the government teat was there for everyone to suck on? Since humans have walked on this earth there have been people with autism -- the government only started mucking around with this since the 1960s.

In the "good old days" autistic people used to be warehoused in institutions and forgotten about by "civilized society."

120 posted on 12/05/2003 6:34:40 AM PST by alnick
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