Updating my medical condition and prayer needs [Update at #'s 843,721,643,910]

1/17/2014 | trussell

[trussell]

I have faith that the implant is going to help me...when they took the trial away it was like taking candy from a baby...it was cruel! And waiting so long for the permanent one is cruel too. I am praying I am making the right decision in getting this done. It’s a huge step and one that I struggled with at first. I remember the few days I had the temporary unit in my spine, my legs didn’t hurt, I could lay on my sides and they didn’t hurt! My right hip still hurt like crazy and my back was horrible and my stomach hated me from the buzzing, it would make me sick when I ate! But when the tech messed with the unit before it was removed, she got the buzzing out of my tummy and all the way up my back to the middle of my back! It felt so good, I hated when they took it away!!

Went to the doctor on Wednesday...he asked me how long have I been having the increased pain...I told him that I had complained to his Nurse Practitioner for a few months now and that she has told me “He’s not going to give you anything stronger, period”. He said “I’ll have to have a talk with her, I don’t like to see you in the much pain”. He asked if the percocet was working at all anymore and I said not so much...even when I take 2 of them at once. He said “quit taking those, I’m going to give you dilaudid instead, and give you a numbing PATCH to put on your back...leave it on for 12 hours then replace it with another” He wants to see me in 2 weeks to make sure my pain is being manage. I started the dilaudid a few days ago (as soon as I got through the pharmacy drive through) and so far it only helps at night when I take 2 of them with my nerve medicine and my sleeping medicine. I get the idea that the Nurse Practicianer could be losing her job for not talking to the doctor when I said I was in pain and she said I wasn’t getting anything stronger. She didn’t even TALK to the doctor, and I told him she said that and he confirmed that he didn’t know!

Just found out one of the meds the doc wants me on is not covered by my insurance and it is $275 for a one month supply....no way I will be getting that one. :( The medicine the doc wanted me using is a lidocaine patch, 12 hours each patch then replace it. They say since my insurance won’t cover the patch, they will do the cream instead...but I can’t reach my back to rub a cream on and I’m not comfortable asking my teenage son to rub a cream on my nude back (I am really fat). I am on gabapentin for nerve pain. I’m on amitriptiline 50 mg to help me sleep. As for the new medicine...one 2 mg dilaudid doesn’t do it. I take my middle of the night dose at bedtime...so I take 2 at bedtime as well as taking the gabapentin and amitriptiline. I manage to sleep with that cocktail but the rest of the day is still stiff and sore. I’m hoping I can get the patches so I can get some relief! They talk it up like it’s a miracle drug. Maybe I can find out the name of the manufacturer and see if they can help me get them.

Also, my procedure to implant the spinal cord stimulator is set for January 27th...same day surgery, will be home that night. Really look forward to it, though I’m still scared about having the unit in my spine.

Please, keep up the prayers. I appreciate them so much!

[CorporateStepsister]

I don’t mind hearing about your latest!

I am glad you have pills to remove the pain and I am glad that you are able to find a position to sleep in.

[ransomnote]

Prayers up for improvement and comfort.

[Kathy in Alaska]

Update from trussell........

http://www.freerepublic.com/focus/chat/3112724/posts?page=420#420

[JDoutrider]

Continued Prayers...

[svcw]

Progress, that’s a good thing.
Continued prayers for total and complete healing.

[Eagles6]

Prayer for you. Hope you get a scooter. Sounds like it would help.

[Vendome]

Keep taking the dilaudid, gabapentin and amitriptiline.

The Gabapentin is for nerves and really helps.

I’m going to ask for a refill tomorrow, to calm mine.

Keep on keeping on.

http://www.youtube.com/watch?v=Up_G3lxdyP0

[E.G.C.]

BTTT

[E.G.C.]

BTTT

[Marine_Uncle]

RE "Anyway...long enough update for you all? Sorry for bending your ear so much. Hugs to the best prayer warriors ever! God Bless you all!"

Trussell. Do not lose faith in HIS power to heal, if it is HIS perfect will to do so. I hope very much your needs shall be fulfilled within his perfect will to do so.
As many here, I wish you never had had to go down this path of misery.
But reality as your painfully is upon you. As you within your terrible condition, many of us would be so pleased to see a total change of conditions set in for you.....
Ones that can give you relief, not only for your broken body but for your soul.
I cannot but prayerfully wish HIS best be upon you in the coming days.

[BykrBayb]

What a thoughtful mail carrier you have.

Here's a thought on how to deal with the tech who always seems in a hurry. Kindly tell him/her that you understand how busy he/she is, and ask for someone who has time to give you the attention you need. They'll probably deny being too busy, but you will have brought it to their attention. If that doesn't cause them to slow down and pay attention to you, then tell them you don't want to be in the way of whatever is so pressing, and insist they send you someone else.

You are the patient. There are few situations in life when you have the right to be self-centered, but this is one of them. As a matter of fact, you have an obligation to focus on your healing, and demand your support team (including this tech) do the same.

Keeping you in my thoughts and prayers. (((HUGS)))

[stars & stripes forever]

Trussell,

Here’s a Bible Promise on which to stand: The Lord will perfect that which concerns me. (Psalm 138:8)

Father God, You promise that you will perfect that which concerns us. We humbly ask in Jesus name, that you will perfect the nerves in Trussell’s back. We believe You can cause the nerves in her back to regenerate.

We speak to pain in Trussell’s back, “God has given Jesus the name which is above every name. At His name, every knee should bow. Pain has name. We say to pain, “Be gone in the name of Jesus.”

In the name of Jesus we speak to the nerves in Trussell’s body and command them to come alive. Nerves, come alive! Hear the Word of the Lord!

We ask Holy Spirit, “Breath new life into Trussell’s nerves and body (and all the other Freepers who are suffering with similiar maladies) that she may have wholeness and fullness of life.”

Jesus, You bore our illness and our afflictions on the cross. By Your stripes we were made whole. We thank God that You won the victory!

There is nothing that is impossible for you. We stand in awe and wonder of Who You are!

May Your mercy be upon Trussell today. May she look to your promises of healing and know what You say You will do.

In Jesus name we pray. Amen.

[annalex]

Lord Jesus, hear the complaint of Thy servant and bring a relief from pain.

In the name of the Father, and of the Son, and of the Holy Ghost, amen.

[Rusty0604]

Glad you can at least get some sleep. Some days it feels as though I had no sleep because my arms and hands keep going numb so I constantly change positions, so I can understand some of your problems. I’m continuing to pray that you will get better soon.

[GailA]

http://www.echiropractic.net/nervechart.htm

touch the disc and it will tell you what area that the disc controls. Lumbar is colon, bladder, legs, etc.

T zone will get a arm, C zone neck, shoulder and head pain.

And some of those drugs you need to look up, gabapentin causes muscle pain as does amitriptiline. besides they are addictive. Sleep in a recliner, works for me most of the time. Stretches out the spine taking pressure off pinched nerves.

My DX is -3.1 and NO one will touch me to repair anything. Unless it is repaired I will have to live in pain. Because I can’t take the dam# drugs because of the side effects.

[ex-snook]

Thanks for the update. Prayers will continue. How to fix back problems seems beyond doctors. May God be with yours.

[Billthedrill]

Prayers up as always. BTT for a lot of people who really do care. Best to you and God bless.

[Alamo-Girl]

So sorry to hear all these pains and difficulties persist - and I continue to pray for you!

[Duchess47]

Thanks for the update. Still praying for you for relief.

[luvie]

I pray that they find just the right “formula” to make you feel better and with less pain.

I have heard that back pain is forever, but if it can just be minimized so you can function, it would be a blessing, I’m sure.

(((hugs))))