Any hemochromatosis sufferers here?

[LouAvul]

When I was diagnosed with this several years ago, dietary recommendations forbade consumption of leafy greens (spinach) and nuts.

Now, I'm reading that leafy greens and nuts do the exact opposite, viz. prevent absorption of iron into the blood.

Have researchers changed the recommendations?

Thanks.

[Red Badger]

For those who don’t:

https://en.wikipedia.org/wiki/Hereditary_haemochromatosis

[Erik Latranyi]

I have the genetic markers and high iron from hemochromatosis.

The “stop eating red meat” and dietary suggestions are nonsense.

Your body is going to store iron from whatever sources it can find. Giving it less iron is not going to stop the retention.

I donate blood every 8 weeks and this keeps my iron in check. That is the typical treatment, but my blood is valuable (O+) and I would rather donate it for someone’s use than let the hospital take it from me and throw it away.

[ConservativeMind]

Something that is available and might be worth looking into, from the organ-saving side (in normal, small doses):

Researchers find potential cure for deadly iron-overload disease
https://medicalxpress.com/news/2020-09-potential-deadly-iron-overload-disease.html

4 Potential Uses of Ebselen + Side Effects & Dosage
https://selfhacked.com/blog/ebselen/

It sure doesn't sound like a cure, as the researchers state, but it might slightly reduce the long-term damage.

[spacejunkie2001]

you’ll get alot of info from earthclinic. here’s the link to their thread on hemochromatosis

https://www.earthclinic.com/cures/hemochromatosis.html

[Myrddin]

My brother-in-law donates his blood regularly for the same reason. He needs to dump iron and it helps others. That motive may be a casualty of his decision to get "the vaxx". The blood bank segregates the good, untainted by vaxx blood suitable for all from blood of the vaxxed.

[ConservativeMind]

From your link, a possible insight as to how this develops later in life:

Actually I did cure one case of hemochromatosis last year, and did not record the data since I am not allowed to treat these conditions, and have since forgotten the man I cured, but he was so happy he never came back! The treatment time took him about 1 month. And yes he did get weekly blood letting that he got so sick of it.

But from recollections, it was caused by extremely fatty liver from fruit intake (fructose), alcohol (beer, wine), vegetable oil intake (fried foods, olive oil, etc.) and taking of shellfish which are also high in copper, which makes it worse. In fact he loves alcohol, fruits and shellfish. So the focus is on the liver, which requires only granulated lecithin as a natural remedy, one tablespoon once or twice a day; selenium yeast (prevents cirrhosis); and N acetyl Cysteine 250 mg three to four times a day. You have to understand that the major organ I know of that gets rid of iron is the liver!

Once the liver cirrhosis is treated with the above supplements hemochromatosis is prevented. There might be specific conditions that are different such as getting your sodium/potassium balance. The alkalizing remedy mentioned in my ebook is essential, as these people do have acidic blood. Certain zinc deficiencies can be indicated also, and absolutely no oils especially vegetable oils (except for coconut oil), honey of any kind, fructose from fruits, or fried foods including stir fried. These cause hemochromatosis to be worse or a lesser condition to become hemochromatosis. I think there are many cures out there, but authorities kind of prevent these cures from being out in the public.

Obviously you can't eat fruits as it causes fatty liver buildup as much as in an alcoholic given the same intake, but without the buzz in alcohol.

Ted

[nagant]

I research hemachromatosis a few years ago because I was interested. Hemochromatosis seems to be an upstream failure of the hepcidin/ferroportin system. Tissue thrives on iron bound by hemoglobin, but free iron in the blood is toxic to tissue. It causes liver inflammation. A healthy body also produces ferritin to safely bind iron. The liver responds to iron inflammation by releasing hepcidin. The hepcidin curtails the action of ferroportin. The cells lining the small intestine use ferroportin to transport food iron into the bloodstream, so curtailing ferroportin curtails introduction of food iron into the blood. One problem in this system is that all cells use ferroportin as an iron transporter. So iron
toxicity can wreck havoc with cellular oxygen uptake. It’s a complicated system where lots of things can go wrong.

[nagant]

One of the most common failures of hepcidin/ferroportin system happens when an autoimmune response to food and bacteria causes the small intestine to release zonulin. Zonulin causes the “tight junctions” between intestinal cells to separate, allowing intestinal lumen directly into the bloodstream. This lumen includes food iron. The zonulin reaction bypasses the hepcidin/ferroportin system, and floods the blood with free iron. The liver responds with more hepcidin. The intestines release more ferroportin, but the leaky gut prevents curtailment of iron uptake. However, in other cells the added hepcidin curtails ferroportin and iron uptake. Oxygen use gets restrained, and the victim tires easily.

[spacejunkie2001]

do you ever visit earth clinic? I really like the input and insight; I get alot out of it when I’m dealing with certain things

[LouAvul]

I perused the link. Interestingly, there are other hemochromatosis sufferers who, like me, cannot donate blood to the blood bank because of the iron content.

Yet, some posts on this thread indicates some posters are able to donate blood.

I have a phlebotomy twice a year, but am not able to donate blood. I'd rather do the latter.

[TrumpetteNJ]

You can have green leafy vegetables. The iron in them is non-heme iron and is poorly absorbed. Also the oxalic acid in them helps to block iron absorption. (Popeye notwithstanding)

To be safer, drink tea (black or green) with plant based foods containing iron. And avoid taking a Vit C supplement near mealtimes. (2 hours before or 2 hours after is okay) Vit C aids iron absorption.

Avoid breakfast cereals like Grape Nuts and Total. These cereals are loaded with iron shavings!!! Have oatmeal instead.

Avoid meat. I know, it’s hard. Meat has heme iron which is the most dangerous type of iron for people with the genetic mutations like you. If you do eat meat, give blood more often then twice a year. The American Red Cross doesn’t accept blood from people with hemochromatosis but other blood banks do.

Adding some form of calcium to your meal when eating meat like a glass of milk or cheese on your burger can help reduce the amount of iron absorbed from meat.

Consider going off wheat because American wheat is, by law, fortified (stupid, unhealthy policy, by our stupid feds)

Avoid shellfish, ESPECIALLY raw oysters. Never eat them.

Get your ferritin and transferrin saturation measured every three months. Its easy with directlabs.com unless you live in a commie state like mine (NJ, NY, Ma)

[TrumpetteNJ]

Another thing. Take turmeric supplements or cook with it (like curry powder) Turmeric chelates iron. It has other benefits as well such as reducing inflammation.

[TTFX]

I would just remove blood and eat whatever I want.

If blood ferritin is less than 70 ng/ml, the person has an iron deficiency.