Posted on 01/17/2014 6:14:56 AM PST by trussell
I have faith that the implant is going to help me...when they took the trial away it was like taking candy from a baby...it was cruel! And waiting so long for the permanent one is cruel too. I am praying I am making the right decision in getting this done. Its a huge step and one that I struggled with at first. I remember the few days I had the temporary unit in my spine, my legs didnt hurt, I could lay on my sides and they didnt hurt! My right hip still hurt like crazy and my back was horrible and my stomach hated me from the buzzing, it would make me sick when I ate! But when the tech messed with the unit before it was removed, she got the buzzing out of my tummy and all the way up my back to the middle of my back! It felt so good, I hated when they took it away!!
Went to the doctor on Wednesday...he asked me how long have I been having the increased pain...I told him that I had complained to his Nurse Practitioner for a few months now and that she has told me Hes not going to give you anything stronger, period. He said Ill have to have a talk with her, I dont like to see you in the much pain. He asked if the percocet was working at all anymore and I said not so much...even when I take 2 of them at once. He said quit taking those, Im going to give you dilaudid instead, and give you a numbing PATCH to put on your back...leave it on for 12 hours then replace it with another He wants to see me in 2 weeks to make sure my pain is being manage. I started the dilaudid a few days ago (as soon as I got through the pharmacy drive through) and so far it only helps at night when I take 2 of them with my nerve medicine and my sleeping medicine. I get the idea that the Nurse Practicianer could be losing her job for not talking to the doctor when I said I was in pain and she said I wasnt getting anything stronger. She didnt even TALK to the doctor, and I told him she said that and he confirmed that he didnt know!
Just found out one of the meds the doc wants me on is not covered by my insurance and it is $275 for a one month supply....no way I will be getting that one. :( The medicine the doc wanted me using is a lidocaine patch, 12 hours each patch then replace it. They say since my insurance wont cover the patch, they will do the cream instead...but I cant reach my back to rub a cream on and Im not comfortable asking my teenage son to rub a cream on my nude back (I am really fat). I am on gabapentin for nerve pain. Im on amitriptiline 50 mg to help me sleep. As for the new medicine...one 2 mg dilaudid doesnt do it. I take my middle of the night dose at bedtime...so I take 2 at bedtime as well as taking the gabapentin and amitriptiline. I manage to sleep with that cocktail but the rest of the day is still stiff and sore. Im hoping I can get the patches so I can get some relief! They talk it up like its a miracle drug. Maybe I can find out the name of the manufacturer and see if they can help me get them.
Also, my procedure to implant the spinal cord stimulator is set for January 27th...same day surgery, will be home that night. Really look forward to it, though Im still scared about having the unit in my spine.
Please, keep up the prayers. I appreciate them so much!
BTTT
Continuing in Prayer for you!
They neglected to tell me that and I have been up all day traveling by car, cooking, doing dishes and taking care of the dogs...wish they would have told me, I wouldn’t have had to deal with a headache all day. ;9
It depends on what the results of the test are and what my doctor decides to do about it. I’m not so sure I’m up to another spinal surgery after the last one being such a failure. I need relief...I just have to weigh the options and choose what is best for me and the body I was given....I’m definitely sick of the pain and look forward to them figuring out a way to get that down to manageable.
Thank you for the update. Praying every day.
You are on the road to a full recovery. Praying that will happen soon, but in God’s time.
Bless you for withstanding these conditions with a positive attitude.
The results to the ct meylogram were less than helpful. The wording on the reports is so ambiguous you can’t tell if there is SOME impingement or no impingement, could the hands and arms be affected by the most minor amount of impingement? They don’t say if that’s a possibility, so at this point, I’m being sent to another doctor to be tested for carpal tunel or whatever else it COULD be...nothing to help me get around or to help me get out of the house on my own...I’m so sick of being trapped in the house. I can’t get up the ramp to get back in so I can’t leave unless someone is here to help me get back in. Sickening! So...continued prayers are appreciated. Advice or suggestions of any kind (though if it is something that will cost, it will not be an option for me until I get approved for disability). God bless you all for keeping me in your prayers.
Continued Prayers...
Prayers continue.
Prayers up!
Are you eating more these days? How is the pain? Better?
Prayers continue.
Keeping you in my thoughts and prayers. ((HUGS)) :-(
Thank you for keeping us informed. Prayers continue...
Hopefully your doctor will clear up the ambiguous descriptions on your report.
After all you’ve been through, it just might turn out to be an overuse syndrome like carpal tunnel. Another possibility might be de quervain tenosynovitis.
Whatever the diagnosis, prayers that it’ll be resolved soon.
I have good and bad days as far as my ability to eat. Sometimes it seems the stimulator is buzzing my stomach and that affects my ability to eat, otherwise, it is much better. The pain is not better and often feels like it is getting worse. The hands and the left arm..those hurt so bad. I wish my hands would get better...I want to be able to go outside on my own, check my mail, go to the store...
Sooo sorry. I can imagine how frustrated you are because after all the tests on my little Eskie, Mia- still no answers & she’s not getting better. I’ll be praying until you get better- & then some.
It’s not all blue. When we’ve exhausted all hope in “medicine”, that leaves us solely with the Lord. And that’s the best place to be (having been there & done that)
Lord Jesus, ease the suffering of Thy servant; may her reward be great for her patience.
Ease also, we beseech Thee, the financial burden on her.
In the name of the Father and of the Son, and of the Holy Spirit, amen.
Your little Eskie will have my prayers too...I’m so sorry MIa is going through problems.
trussell update....please keep those prayers coming.
http://www.freerepublic.com/focus/chat/3112724/posts?page=827#827
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