Posted on 01/17/2014 6:14:56 AM PST by trussell
I have faith that the implant is going to help me...when they took the trial away it was like taking candy from a baby...it was cruel! And waiting so long for the permanent one is cruel too. I am praying I am making the right decision in getting this done. It’s a huge step and one that I struggled with at first. I remember the few days I had the temporary unit in my spine, my legs didn’t hurt, I could lay on my sides and they didn’t hurt! My right hip still hurt like crazy and my back was horrible and my stomach hated me from the buzzing, it would make me sick when I ate! But when the tech messed with the unit before it was removed, she got the buzzing out of my tummy and all the way up my back to the middle of my back! It felt so good, I hated when they took it away!!
Went to the doctor on Wednesday...he asked me how long have I been having the increased pain...I told him that I had complained to his Nurse Practitioner for a few months now and that she has told me “He’s not going to give you anything stronger, period”. He said “I’ll have to have a talk with her, I don’t like to see you in the much pain”. He asked if the percocet was working at all anymore and I said not so much...even when I take 2 of them at once. He said “quit taking those, I’m going to give you dilaudid instead, and give you a numbing PATCH to put on your back...leave it on for 12 hours then replace it with another” He wants to see me in 2 weeks to make sure my pain is being manage. I started the dilaudid a few days ago (as soon as I got through the pharmacy drive through) and so far it only helps at night when I take 2 of them with my nerve medicine and my sleeping medicine. I get the idea that the Nurse Practicianer could be losing her job for not talking to the doctor when I said I was in pain and she said I wasn’t getting anything stronger. She didn’t even TALK to the doctor, and I told him she said that and he confirmed that he didn’t know!
Just found out one of the meds the doc wants me on is not covered by my insurance and it is $275 for a one month supply....no way I will be getting that one. :( The medicine the doc wanted me using is a lidocaine patch, 12 hours each patch then replace it. They say since my insurance won’t cover the patch, they will do the cream instead...but I can’t reach my back to rub a cream on and I’m not comfortable asking my teenage son to rub a cream on my nude back (I am really fat). I am on gabapentin for nerve pain. I’m on amitriptiline 50 mg to help me sleep. As for the new medicine...one 2 mg dilaudid doesn’t do it. I take my middle of the night dose at bedtime...so I take 2 at bedtime as well as taking the gabapentin and amitriptiline. I manage to sleep with that cocktail but the rest of the day is still stiff and sore. I’m hoping I can get the patches so I can get some relief! They talk it up like it’s a miracle drug. Maybe I can find out the name of the manufacturer and see if they can help me get them.
Also, my procedure to implant the spinal cord stimulator is set for January 27th...same day surgery, will be home that night. Really look forward to it, though I’m still scared about having the unit in my spine.
Please, keep up the prayers. I appreciate them so much!
I appreciate all the prayers and well wishes. You all are amazing and I’m so thankful to have your friendship and knowing you all have me lifted in prayer.
I would love to find that I was able to endure a day without debilitating pain and to be released by my doctor to look for work. It’s been more than a year now and they refuse to let me even look for work. I filed for disability last July and I’m still waiting for the first decision. Prayers for the decision to be soon would be truly appreciated.
God Bless you all...
T
I canNOT believe that it’s taking so long for you to get your
disability approved! Have you checked up on them? Of course,
I’m sure you have, but this is ridiculous! Is there a senator
or congressman you can go to as an advocate for you?
I hope they find the right formula to rid you of this awful
pain. I don’t know how you cope! I really don’t! :(
I have been in touch with the disability department, Congressman Kingston (he got a standard reply about it being 3 to 6 months and then quoted a day much later than my app was submitted). Called my attorney’s office and told them that the SS dept had the wrong date and finally got someone at the attorney’s office to call and set it straight. I got a call on Feb 14th saying they were going to get the file notes for my last 2 appointments which were Feb 12th and 14th and then they would be ready to make a decision. Not sure how long that part takes, but I’m getting annoyed waiting. As for the right formula, I don’t know if there IS a “right formula”...It’s sad to think I’m going to have to deal with this forever.
I sure hope they get that disability straightened out soon....I know you have to be SO frustrated and angry! I sure would be! I have had friends that went through the same run-around, though, so it’s not just you being singled out. I know that’s little comfort. :\
Hope they find some relief for your pain soon!
Will pray. That is some intense pain.
I will have to try to find a way to get a recliner. Sounds like it would help...but I can't get one until I'm approved for disability as there is no funds to get it now. I love that link, such good information! Thank you for sharing it!
Thank you so much my friend. I am so blessed to have the friendship of the prayer warriors and knowing they are keeping me in their daily prayers.
Try Salvation Army often they have half price days. Lot of good furniture. Just be sure to check for bugs because if they have been in storage there could be some.
Things are not better for me. The pain is constant and I wish I had better meds, though I know I have a strong med now, it’s not working for me. I don’t know what to do. I have an appointment Thursday with my primary care doctor regarding my fingers and left arm. It’s very possible that I will leave that appointment with a script for an electric chair or a scooter. This is maddening, not knowing how to lower the pain. The last 3 fingers on the right hand are discolored and swollen and very tender. The middle 3 fingers on the left hand are tender and hurts when I try to grasp things. I don’t know what I’m going to do when those fingers are unusable...how do you pick up a drink or a food plate or open meds or ANYTHING?
I’m worried that this is going to make me unable to function normally and unable to provide for my son. Anyone already having these type of problems? Anyone able to give suggestions?
To everyone,
I know that a lot of Freepers don’t believe that healing is for today. I don’t want to start up a theological argument, this thread is about trussell. I do believe that the Lord still heals. If someone feels a need to disagree can we can do that on another thread? You can start one up and ping me. I just need to speak with trussell a minute.
trussell,
There comes an end to what man is capable of doing. It sounds like they don’t have a clue what they are doing. If anything it sounds like they are making you worse! Like they don’t have a clue where that plane is (or are lying about it). Modern medicine isn’t “modern”, they just act like it is.
James tells us what believers should do when one of us is sick. “14 Is anyone among you sick? Then he must call for the elders of the church and they are to pray over him, anointing him with oil in the name of the Lord; 15 and the prayer offered in faith will restore the one who is sick, and the Lord will raise him up, and if he has committed sins, they will be forgiven him.” — James 5: 14-15
trussell, I lost my Mom this past September to cancer. I was desperate to find someone to pray for her. We were in a small town in Arkansas. I went to a church that supposedly believed in praying for the sick. I was told, “you might bring her in next Tuesday. Someone might be in the office.” My mouth just about fell open. I said that she was too sick to come. They couldn’t be bothered to send anyone to pray.
I couldn’t find anyone. I even chased down a chaplain in the hospital that happened to pass by to ask if there was any church he knew of that could send someone to pray.
At the funeral I asked the Lord why, why did He let her go when she had so many promises — from Him! — about things that were to come in her life. He let me know that it was because there was no agreement. He did it in a way that I knew it was Him, not just me thinking that. He comforted me. But He did tell me it was because there was not enough prayer, not enough agreement.
There is a war on. We don’t always win. There is suffering that happens that doesn’t need to happen because Christians don’t care or don’t pray.
Now, for you. The doctors have done all that they know to do, and some of what they are doing has been bad for you. Your healing isn’t going to come from them.
What do we need to do to get you to a group of believers or a church who can, as James says to do, to lay on hands and pray for the healing of the sick? That is what the Word says to do.
You are in a small rural town, right? I know how that is. Unlikely that you will get help in a small town. Been there, done that. But is there a church there who might? I’m not talking about a church that you agree with all their theology. I mean a legitimate church that does believe in healing.
That’s the first step. Is there a church in your town who will do that?
I will start looking around for a church body that believes in that. Thank you for sharing this...and I’m so sorry for your loss.
I just wish you could have access to better medical facilities and pray your doc has some answers for you. :(
trussell,
I am so sorry you are going through this much pain. We need to help you if we can. The doctors don’t seem to be much use, so we need to turn to the Lord.
Try the local churches first, like I did. You might find one that will really pray for you. If you have the same response that I got — not caring at all — then we will try to work something else out.
I don’t know exactly what to do but we will think of something. We can’t let this pain of yours keep on like this. We know what the Word says to do. So we’ll figure out some way of getting you the prayer you need.
Oh, just had a thought. When you contact those churches, make it clear that you are only looking for someone to pray. Churches get requests for help all the time, and they *should* help if they can. But churches get numb to it. They turn a blind eye to needs. Or they just don’t care.
Let them know that you need prayer. Don’t mention, at least at first, all the real needs you have.
What a sad thing to write! But that’s the way things are. In too many cases. :(
I’m so sorry to hear your problems are getting worse. Prayers continue...
Saw my doctor yesterday about my hands and she put me on a steroid pack...drew blood to check for arthritis markers, scheduling an ultrasound for a lump in my abdomen and an xray for my hands. Also will be referring me to an ortho doctor. Wondering how long this is going to be drawn out. Still having to use the manual wheelchair, so I am stuck in the house unless someone is there to push me.
prayers continue!
Again, my sympathy. With all the pain and frustration you’ve been where few of us have gone.
Have you had any insights or gained any wisdom from the experience that you could share with us?
BTTT
More prayers on the way.
And (((HUGS)))
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