Posted on 02/11/2010 10:38:19 PM PST by Joya
CURRENTLY via FReepmail from LibertyRocks 02/11/2010, late Thursday
It was a rough day. We are right now at Children’s Hospital, we came in this afternoon at 2:30 and by 5:00 she was admitted as a patient.
We are in our own private room in the oncology ward - not because she is sick, or because they are thinking it’s definitely cancer (still on the table though), it’s because there are so many kids sick with the flu and H1N1 in the other part of the Peds wing. It’s nice because they are very private rooms, and very comfortable and “homey”.
= = = BACKGROUND via FReepmail from LibertyRocks 02/07/2010 [Superbowl Sunday]
Dear FRiends,
I took my daughter Amanda (13 yo) to the doctor last night [Feb. 6]. She had been complaining of a sore calf for the last 2 weeks. I (we) assumed it was a pulled muscle, and told her to take it easy - she was still walking around and wasn’t limping, but we didn’t notice she was walking on her tiptoes on that leg (long pants...). Yesterday, she came to me and said, “Mom it’s starting to hurt REALLY bad, and there’s a lump....” Turns out there was a lump there, and it’s been getting bigger over the last week or so (at this point it’s slightly oval and at least 2 in. in diameter!). At the doctor’s office we were able to get her in to get an ultrasound before the techs left for the weekend. I saw the ultrasound, but don’t know what I was really looking at - it seemed the mass was pushing out in between her calf muscles so its origin was deep - like next to the bone itself. After the ultrasound my daughter got nervous and confessed there is a lump on her hip that’s been there for some time (a few months???) - it’s much smaller, but it’s there.
[WHY don’t children tell their parents these things? I can’t tell you how frustrating this is now.]
Anyway, the doctor ruled out infection, and a blood clot, and they mostly ruled out a pulled / torn muscle (it would hurt WORSE on her toes if it were the muscle), but they can’t give us a diagnosis at this point at all. They are scheduling her for an MRI (of her leg & hip) first thing [February 8], we need to schedule an appointment with our reg. doctor ASAP for a referral to an Orthopedic Surgeon. If the MRI doesn’t give us more of an answer she will need a biopsy.
Please just pray for Jesus to heal my baby!
We’ve ruled out the “easy” stuff, and there is no history of trauma to the area either! This leaves a few VERY scary diseases - two that are cancers that primarily affect children her age. Combine that with the fact that her doctor’s are flying “half-blind” with only familial medical history of her father (I’m adopted), and it necessitates they treat this as if it’s a cancerous growth until they rule that out.
My daughter is normally a nervous person (like her mom), so please also pray for her to have strength, and not to worry. I’m trying VERY hard to be brave and strong for her, I’m praying with every other breath at this point.
Thanks to everyone for their prayers over our family. I know so many others are going through their own problems. Please know, you all remain in my thoughts and daily prayers.
God Bless all of you, LR
The MRIs done on Monday indicated that the mass in her leg appears to be fluid filled - without solid portions. The X-ray showed her bones in the area to be healthy and intact. ... PRAISE GOD for that! ...
They did a lot more blood tests today after our meeting with her doctor (there were a ton done on Monday too, as we had to go to the ER first thing in the morning due to increased pain and swelling below the mass).
The doctor said she would call me with the results of the blood tests done today later tonight. Some are very specific for “markers” of several different illnesses, and yes they will be specifically testing for any cancer markers still as well.
Of course, seeing as we don’t have a diagnosis and there are still some serious possibilities in play with this, and my daughter is still in a lot of pain we appreciate continued prayers for her health, and for our family regarding our financial situation as well. (We are fortunate to have good health insurance although we are still struggling to get back on our feet after my husband’s layoff last year.)
Again, I will never be able to say thank you enough, or even express how grateful I am for all my brothers and sisters here at FR! May God bless all of you abundantly!
Most sincerely, LR
= = = FINALLY, THE LAST OF THE BACKGROUND INFO From earlier on Thursday, 2/11
LR: I spoke with the Child Oncologist's Assistant. She got us in to see one of the Adolescent Pediatricians in their office (same office - so the Oncologist will look at the records WITH this other doctor). I cannot tell you how wonderful this assistant was with us. I was crying with thanks by the time we got off the phone -- a matter of 10 minutes and someone with fresh ears listening... an absolute Godsend! We have an appointment at 2:30 this afternoon !!!
Big hugs to everyone -- keep those prayers coming because we still need them! [Hearts] to all of you! :)
Prayers that all turns out well.
THIS PRAYER REQUEST IS FOR LIBERTYROCKS’ DAUGHTER AMANDA.
You may post replies to me or to LibertyRocks.
Thank you all so much.
Praying for your daughter. Keep us all posted.
Prayers for Mandy.
Prayer BUMP
Praying
Praying in agreement for full healing and strength for family
Joining with fellow FReepers in prayers right now for a quick diagnosis and effective, curing treatment for Amanda; prayers for the family’s peace of mind, for Amanda’s relief from pain; prayers for a speedy and uneventful recovery for this young girl and her loving family, in the Most Holy Name of Christ Jesus, Amen.
Prayers for Mandy...stay strong!
On behalf of LibertyRocks, who requests prayer for her daughter Amanda.
Reply to LibertyRocks or to Joya.
= = =
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Thanks everyone, and thanks to God, Who loves us, Who hears us, and Who answers us.
Prayers continue for Mandy and for freedom from anxiety for her and her family.
Prayers for Amanda.
Prayers for Amanda, family and doctors.
Signing off now.
EVERYONE:
Thanks so much for praying for LibertyRocks’ daughter.
Prayers going up!
A young friend of mine is in a very similar situation right now - an unidentified lump on her shoulder. Blood work has looked OK; ultrasound ruled out a typical cyst, and the MRI was inconclusive.
They went to the Mayo Clinic this week for more tests and a biopsy; no word yet on results. Scary for her and her family, and I’m sure the same is true for you.
I pray that God holds her and her family - and you and yours - in His hands, and gives you strength and peace.
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