So if we could use technology change our genes to stop cancer, I think the author would be on board, but if we used the same technology to increase longevity or brain function it then becomes evil? The criteria seems so subjective to be absurd.
The death of Jesse Gelsinger during a 1999 gene therapy trial reverberated through the scientific community and the public at large. It was the end of our innocence about gene therapy. I believe that we should definitely continue to pursue gene therapy at the basic science level with maximum intensity because it does have a lot of promise; however, we also have to be realistic in recognizing that some of the scenarios portraying gene therapy as a panacea have been ahead of actual reality.
Certain questions have to be addressed if we are going to see a beneficial outcome of genetic research for the health of all. We have to be sure that misuses of this whole set of advances do not eclipse the benefits. If we are not vigilant, something that should have been a wonderful revolution will be turned into something harmful. There are a number of potential worries here, and it would benefit all of us involved in this discussion to keep Proverbs 19:2 in mind: "It is not good to have zeal without knowledge, nor to be hasty and miss the way." Will we prevent peoples genes from being used against them? When is the right time for a genetic test to leave the research lab and move into clinical practice? Will medicine and science take the initiative in this decision, or will it be driven solely by the marketplace? Is the general public ready to incorporate genetic information into its medical care? The prospects for genetic medicine are complicated by the fact that access to health care is not universal. Zeal for doing Gods will and for a good outcome need to be combined with a clear commitment to understanding all of the intricacies of these issues.
Given the complex concerns raised by genetic research, some have asked why we are doing this at all. The New Testament book of Matthew serves as a powerful reminder of how much time Christ spent healing people in His very short time on this earth: "Jesus went through all the towns and villages, teaching in their synagogues, preaching the good news of the kingdom and healing every disease and sickness" (Matthew 9:35). Perhaps because they are called to be Christ-like, Christians feel a particular responsibility for reaching out and healing the sick. That is one of the reasons why studying this aspect of our biology and trying to apply it medically is not merely a good idea, but a moral necessity. It is an ethical requirement of us. If we can develop the ability to heal, if genetic research holds out hope and promise and can prevent suffering in our fellow human beings, then we have to do it. However, we must also shoulder the responsibility of making sure that these powerful tools are used for good purposes and not for unethical ones. Francis S. Collins, MD, PhD is Director of the National Human Genome Research Institute in Bethesda, Maryland