Posted on 05/05/2018 9:58:31 PM PDT by Berlin_Freeper
A six-year-old girl has written to Theresa May asking if she and her sister can have a new drug that could potentially prolong their lives.
Both Imogen Fare, 6, and her two-year-old sister Annabelle suffer from cystic fibrosis (CF).
Imogen, who lives with her family in Conwy, Wales, has written to Theresa May asking for access to the drug Orkambi.
She wrote: ‘Dear Mrs May, I have C.F. so does my little sister Annabelle. We would really like Orkambi to keep us well and help us live a long and happy life.’
‘We both like swimming and playing outside love from Imogen and Annabelle.’
(Excerpt) Read more at metro.co.uk ...
“She said: ‘Orkambi is a pioneering drug from America but it’s not currently provided by the NHS except in rare cases on compassionate grounds.”
Compassion? Very sweet girls. Good luck with that.
“She said: ‘Orkambi is a pioneering drug from America but it’s not currently provided by the NHS except in rare cases on compassionate grounds.”
Compassion is not a prime component in the world of socialized medicine. If you are deemed “inconvenient” or not economically useful, your appearance before the death panel will not end well.
Keywords added.
Contrast these life-affirming truly courageous devoted parents with the so-called “courageous” woman in this article: http://www.freerepublic.com/focus/news/3397882/posts?page=1
// // “I think (Evans) is the most courageous person I know,” Magan [Evan’s lawyer] said. “She has born the brunt, walking through the fire of public opinion. ...They love their child more than anything. Who would do what she’d done but for the love of her child?” // (yet another sad commentary on the left)
They serve up “privileged” little white girls in England, on a platter, to Muslim men.
That was pretty clear sarcasm.
The cognitive dissonance experienced by ‘hate-whitey’ white-bigots must be ready to explode their heads.
Add in the money given to the third world savages that keep showing up and live better than some UK citizens.
That money could do a lot of good but welfare is apparently more important.
How far the once great UK has fallen.
If that was put in the request to May, medication would be fast tracked to the poor kid.
The NHS employees 1.2 to 1.5 million people. Those are public employees. And breakdowns of how many do what for how much are very hard to come by. That’s where the money’s going. The NHS is, last I knew, the fifth largest employer on the planet.
Government-run health care (not just insurance) means you are at the mercy of bureaucrats who have life and death power over you. Of course, the ruling elite don’t have to subject themselves to that indignity.
Those girls are not valuable to the government thus the government medical system will not provide for them. That is the nature of government run medicine. Everything is calculated on cost/benefit considerations as perceived by the government.There is always an alternative channel, of course, and that is the corruption that must and does attend upon any non market system. Non affluent people are double hindered in a government system. Their disabling maladies are not cost effectively treatable and they have not the necessary funds for bribes.
BEG, peasant worm.
Death panels.
“Dear Imogen,
“Sorry, dear, but in Socialist systems sometimes individuals must make Great Sacrifices for the Greater Good.
“Be thankful you and your sister are contributing to the Good Of All
“Sincerely,
“Comrade May.”
“And you can be assured, your rulers and their family and others in positions of power get the best care the Fatherland can muster”
A more apt question is why the US Government allows a pharmaceutical company to charge $140,000 per patient a year for a medication.
Until we fix that, we will continue to see this sort of thing - and not just in Europe.
> A more apt question is why the US Government allows a pharmaceutical company to charge $140,000 per patient a year for a medication. <
It’s a difficult situation. Something like 90% of all new drug trials fail, leaving the companies involved with a financial loss. So why do these companies take the risk? It’s because of that last 10%.
Clamp down too hard, and pharmaceutical companies will simply shut down their research departments. That would be a tragedy.
On the other hand, it doesn’t seem right that only the rich can access some of these new drugs. Where’s the middle ground? Maybe the government could help fund promising new drug research. (But oh, do I hate to see the government get involved in private commerce. That usually doesn’t end well.)
It’s less than 1%, at least in my experience. We screen 100s of compounds looking for maybe 3 or 4 that can be tested further. Our goal is to screen out potential drugs as early in the process as possible, because the further a non-suitable prototype drug goes before it is eliminated from development, the more expensive its failure.
Also, experimental drugs typically do not take up production space from established production lines. Usually, there are separate production facilities for drugs in clinical trials. With earlier development drugs, there often is not a production line, because the conditions for making the drug on a large have not been determined yet. I was sitting in a meeting the other day where we were talking about having a protodrug custom made for small scale testing, and the cost was going to be about $300,000. One of the senior scientists thought that price was not bad.
When pharmaceutical companies charge small fortunes for new drugs, they really are trying to recoup their costs before their patents run out. It is not cheap to develop a drug through FDA approval, and the patent protection does not last very long. In addition to all of that, Americans end up subsidizing drug development costs, since some countries fix drug prices. In those cases, the share of development costs that foreigners should have to pay are rolled into the price that Americans pay.
I’m sorry, little girl. The money needed to buy your meds was spent on 96 year old Price Philip’s hip replacement.
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