Posted on 04/05/2018 7:35:20 PM PDT by Enlightened1
Facebook was in talks with top hospitals and other medical groups as recently as last month about a proposal to share data about the social networks of their most vulnerable patients.
The idea was to build profiles of people that included their medical conditions, information that health systems have, as well as social and economic factors gleaned from Facebook.
Facebook said the project is on hiatus so it can focus on "other important work, including doing a better job of protecting people's data."
CB FULL Christina Farr 180405 Facebook health partnership on hold on concerns of data privacy 4 Hours Ago | 05:37
Facebook has asked several major U.S. hospitals to share anonymized data about their patients, such as illnesses and prescription info, for a proposed research project. Facebook was intending to match it up with user data it had collected, and help the hospitals figure out which patients might need special care or treatment.
The proposal never went past the planning phases and has been put on pause after the Cambridge Analytica data leak scandal raised public concerns over how Facebook and others collect and use detailed information about Facebook users.
"This work has not progressed past the planning phase, and we have not received, shared, or analyzed anyone's data," a Facebook spokesperson told CNBC.
But as recently as last month, the company was talking to several health organizations, including Stanford Medical School and American College of Cardiology, about signing the data-sharing agreement.
While the data shared would obscure personally identifiable information, such as the patient's name, Facebook proposed using a common computer science technique called "hashing" to match individuals who existed in both sets. Facebook says the data would have been used only for research conducted by the medical community.
(Excerpt) Read more at cnbc.com ...
If you still have a facebook account, Twitter, etc... Please share this article. Lets see how many people delete their accounts.
Can anyone say ‘hippa’ violations!
So, when will the Federal indictments kick in?
Ya think this hospital might have given up patient data for money?
https://zuckerbergsanfranciscogeneral.org/
This facebook stuff is getting curiouser and curiouser.
HIPPA as well as GDPR & GxP standards for personal data protection and there are others I could mention as well
that deal in this area as well.
As for GDPR it allows for a complete wipe of all data by individual nd there are fines and penalties for it. Even if say as Facebook you have clients in England and store the data in another country, does not matter
Game, Set, Match
And Google is in the same bucket, if you have a gmail account part of the EULA (End User License Agreement) says they can read your e-mails, so when you say yes off they go!
Profiling is what it is, all part of the Customer Analytics model and using AI to predict behaviors
Sinister
I think that those of us in the medical community have far better ways to conduct medical research.
If, as it seems Facebook was proposing, you have patients in an anonymized pool, and you start matching them to Facebook users using algorithms, haven’t you just identified those patients?
I don’t see an IRB going for this. I wouldn’t if I were on the IRB.
It WOULD allow you to determine, based on facebook posts, which patients would ‘qualify’ for medical treatment and what sort of medical treatment they’d get.
Great question!
That does not sound very appealing to me. What about their privacy? Maybe they don’t want their medical conditions to be made known through Facebook.
This is what happens when you make medical records electronic.
Easily done with a thumb drive.
And yes, violates HIPAA.
makes you wonder what OTHER unethical and illegal things facebook was up to...
It isn’t just Facebook.
My email and other sites show ads for things I’ve looked at in Internet searches... for products I’ve purchased recently... for hotels or rental cars in places where I am soon flying to... for single men my age...
Um, okay, I don’t know about the last. I’m married, so I think it’s showing those ads to the wrong person. But many of the other ads have me suspicious.
Facebook suggested that I friend a woman who was my intern. The thing is, she and I had nothing in common other than that she was my intern, and I did not have Facebook at the time she worked for me.
Linked In is also suspicious. I have a friend that I occasionally email from my work address. So why does she show up as a potential colleague on Linked In, when it is linked to my home address?
And so on. It’s sobering to consider just how much of our personal information is out there, largely through these social media companies.
This crap has been the biggest ongoing privacy scandal in the hi-tech news media for years.
What truly is curiouser and curiouser is why the non-technical mainstream news media is suddenly noticing and reporting on this stuff. It gladdens me that non-technical members of the public are finally becoming concerned.
Please, what is IRB?
An institutional review board (IRB), also known as an independent ethics committee (IEC), ethical review board (ERB), or research ethics board (REB), is a type of committee that applies research ethics by reviewing the methods proposed for research to ensure that they are ethical.
Institutional review board - Wikipedia
https://en.wikipedia.org/wiki/Institutional_review_board
My exact complaint when Obamacare required ALL Drs to bring their files online. ‘Oh, but you want all your doctors to access all your medical history, don’t you? You wouldn’t want any doctor to prescribe a medication that might conflict with another medication you are taking, would you?’. And naive people bought into it. I HATE what Obamacare has done to our privacy and our (now) lack of good healthcare. And the questions they are now required to ask are so invasive of our privacy......it was all to increase the vulnerability of people who could then be compromised. While oworking in medical labs, we were requires to have a plain white sheet of paper to cover over any/all reports on our desks, just in case anyone walked by and might be able to read what was on a patient report. Now everyone’s history is readily available to all computer savvy people.
Any sharing of medical info with patient identifying information would be a violation of HIPAA unless the patient specifically waives it for the receiving party.
Thank you.
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