Posted on 07/01/2009 6:45:07 PM PDT by Concerned
URGENT PRAYERS NEEDED - DAUGHTER ON RESPIRATOR, NOW HAS MRSA.
My daughter, Stephanie, is on a respirator and nasal feeding tube in the ICU at our local hospital. She was admitted to the hospital on 06/07/2009, after having a seizure that lasted over an hour. She had several shorter ones back-to-back after admission. We were told today that she now has MRSA.
I have written about her before. She is a severely mentally and physically disabled 24 year old, who does not walk, talk, or feed herself. She wears diapers and has a very rare type of dwarfism, so she is only 36 inches tall. She will be 25 years old on 07/27/2009, assuming she lives through this ordeal.
When she was about 9 months old, she had to be trached and on a respirator, with a feeding tube, for a little over 3 years, because her rib cage was significantly deformed and not large enough to allow her lungs to fully expand.
The VERY progressive Doctors we had thought that if she could be trached and ventilated on a respirator, the positive pressure from the respirator pushing her lungs out to hit her rib cage would stimulate her rib cage to grow over three years---and it DID, significantly!
We had an ICU in our home, with round-the-clock nursing. Eventually, she no longer needed either the Respirator or feeding tube.
Because of her respirator-enlarged rib cage, from about age five until probably age 20 or so, she was basically like most kids as far as getting sick was concerned. No major medical problems during that time.
Then suddenly, she started having seizures, especially after we got her out of the tub and she was still a little wet. For some reason, her ability to deal with temperature regulation went haywire and she began having febrile (i.e. sudden, major temperature-drop) seizures. She also started having them with strobe light effects, e.g. when a fan was beneath lights and the fan "cut through" the path of light.
Since we had taken Stephanie on many trips during her lifetime, my husband and I decided to take our younger daughter on a cruise to Alaska via Vancouver, leaving Stephanie in the hands of the agency which regularly helps us care for her at home.
We had just gotten off the ship and were back in Canada when we got the call about Stephanie going to the hospital. We got back asap.
We just okayed the Doctor to have her trached again and to have a feeding tube put in again. The trach may be temporary, but she aspirates when she gets anything by mouth. And now, she has to also fight off MRSA.
PLEASE PRAY FOR HER HEALING AND RECOVERY and to guide the Doctors' hands and for us to make the right decisions.
Thanks!!!
HUGS and PRAYERS Concerned. As a mother of a 30 year severely disabled son, I feel your heart!!!!
May Our Precious Lord God touch her body with healing.
Polly
Prayers up for your dear daughter. God be with you all and provide her all she needs to recover, as well as arming you with the strength you need.
Blessings to your daughter, your family, and you during this difficult time.
I’ll add a request for healing for Stephanie, to our Parish Prayer List.
Prayers for your daughter and you and your family.
Prayers for your beautiful daughter Stephanie, for your family, and for her caretakers and medical team.
Almighty Father, please heal Stephanie and make her whole, as is Your will, to Your greater Glory. Guide her physicians and caregivers and see to it all who care for and love her have all they need. I ask this in Jesus’ Holy Name, Amen.
BTTT
BTTT
Prayers for you,your family and your daughter.
Prayers for your families strength through this ordeal.
I will pray
My prayers for Stephanie and your family going up right now...
PRAYERS BEING LIFTED FOR STEPHANIE’S CARE IN THE LORD’S HANDS.
Prayers for your daughter and a world of blessings on you for all the love and affection you have shown your daughter. You surely are an inspiration.
Prayers or Stephanie and her loving family.
Prayers on the way.
He sent His word and healed Stephanie.. Psalm 107:20
We send our prayers up for you and your family.
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