I've had cfs for the past 7 years. I've researched the thing to death. I'm really happy for the ones who change their diet, improve their gut flora, etc and get better. However, there are others for whom none of that makes a lasting improvement - and I am in that category. I have good days, bad days and hell days. Some of the good days last for months. Some of the bad days just seem to last for months. I see an integrative medical specialist, an acupuncturist, a chiropractor, got a diploma in herbal medicine so I can figure out which herbs to use (and they definitely help me feel better than meds do), take as few meds as possible (because I react bizarely to them), changed my diet several times over and try to live a life that has some enjoyment in it somewhere. I'm sorry for the woman who died. At the same time I can't help but be relieved - at last...proof that it's not all in my head, no doc I'm not depressed, really I can look great and feel miserable all at the same time.
CFS since 1990 here.
http://www.chronic-illness.org/cfs_t_shirts_gift_ideas.html