People who are in constant pain are very underserved by the medical profession, as a rule. I happen to be allergic to almost every treatment the docs want to try on me. They just shake their heads and say, poor you.
They damn near "simpled" me in the grave. But I've got a surprise or two for them left in me. BTW, it took SSA 18 mos. to finally approve this sick man, having constant siezures, for disability and another 2 years after that to get medicare. (SSI...the welfare portion of the SSA system, is for those that have not worked enought to get SSdisability. Ironically they get medicare the day they are approved.) If I hadn't spent my savings finding doctors and medicine, supporting him while he waited on the doctors and the SSA, he'd have died first. And NO, they did not pay him the 18 months back, like they say they will. 18 months, while you think you're dying. And La Raza complains if the US doesn't grant "instant citizenship". But 10 years later, I understand he's up and about and siezure free.
The whole system is BROKEN.
I'm sorry you haven't found something that works for you, it takes a lot of time and energy and humiliation..."poor you" isn't very comforting is it?. The only one, he worked for the SSA, that I had a real problem with just didn't like my politics. He saw bumper stickers on my car that ticked him off...like FR. He was half an hour late for the appointment while I waited outside in 29 degree weather, had no other patients, was a total geek. I could write pages about this nut.