Replies

I'm just starting to figure out the MCAS thing. I had a blood test number (Tryptase) that was higher than it should have been. I get severe system wide reactions to pollen, foods, and even topical things like shampoos. I get what they use to consider "panic attacks" but they weren't (episodes of low blood pressure with tachy and intense releases of adrenalin).

I already have an autoimmune disorder (celiac sprue) and have a disorder that has MCAS as a common comorbidity. I've noted through many years of observation that my symptoms wane during low allergy time periods and when I closely watch what I eat (no citrus, no gluten, no to a bunch of other random things).

I've been on a food allergy elimination diet the last few weeks and feel better than I have in many years. Heart rate is normal and stable (usually have tachy off and on). Blood pressure is good (no weird lows or highs as I usually have). Exercise tolerance better. and so on.

I highly recommend an elimination diet. You can be amazed at how what you eat effects you. I did a pretty strict one which caused knee pain to completely disappear.

Finding a doctor who believes in mast cell activation syndrome is tough. I have one specialist in my area and of course not in my network

I seem to be having good luck with beef kidney pill which is suppose to help the Dao issue. I still can’t find it locally. Might have to order it online from a butcher. Saw on Dr recommend bison kidney.