[metmom]

I have a very rare autoantibody that took me a lot of Drs visits to figure out. The only reason I discovered it is because I spent many many hours pouring through my DNA from 23andme and stumbled on a study highlighting the antibody and then asked for the test that no Dr thought to do.

Don’t you hate it when you have to do the doctor’s work for him?

I am sick of the blank stares I get when I ask about research I have read on the internet addressing my mast cell disorder.

Just who has the medical degree here and who is getting paid to do a job?

[RummyChick]

I had a cardiologist who once told me that it was best to leave the diagnosis to those with the medical degree . In theory he is right. In reality he is a clown. You can’t leave it to the Doctors. They would have never figured this out until it was so bad it was showing up in Frontline tests like CK.

A pox on all of them who are so arrogant as to not listen to the patient

[D Rider]

Mastocitosis is not hereditary (so we are told)... It is just that my grandfather, dad, sister, daughter and myself have it. All with the same basic symptoms.