What would be ethical would be to make the drug available to all who qualify to take it, so long as they really want to take it - and they are informed as to its effect, both physical and emotional. By the same token, those who do not wish to take this drug should, of course, not be forced to - nor should any people on either side of that decision be socially ostracized in any way because of the choice that they make.
The only unethical thing would be to deny the drug to someone who made an informed decision that they wanted to take it.
None of the above is moral or ethical rocket science - pretty much anyone should be able to come to the same conclusions without much hard work, because if WE were in that situation (and we might be for any number of diseases or conditions in the future, who knows?), we ourselves would want to have the right to make an informed choice.
I have a childhood friend who was one of the last of the midgets. He was in his teens before the treatment came out. He took it and is now just short rather then tiny. But it was extraordinarily painful because of how old he was. If he had started when he was a baby if would have been essentially painless.
This lady will never be able to this treatment.