Posted on 06/01/2017 3:47:20 PM PDT by rstrahan
This is national Myasthenia Gravis month. Yes,I know that everyone and their cousin has a month. However, this is a serious, sometimes fatal neuromuscular disease that strikes all ages. And the thing is, while we have all heard of MD, MS, ALS, there are doctors who don't know how to even recognize MG, or have heard of it.
Please help bring awareness of this disease. Awareness brings research and needed treatment. Thanks
Our close friend’s 25 year old son has this. Came out of nowhere when he was 21. So far, it has been managed. But, it appears things could get out of control quickly.
We almost lost our mother to MG in January 2007. Now she’s a spunky 93-year-old, kicking ass and taking names.
It’s important to recognize the symptoms. Three doctors failed to diagnose her correctly. One ER doctor said, “She’s just getting old”, and sent her home.
My sister, Baldwn77, went online and diagnosed her, faxed the info she learned to the hospital’s neurology department, and a doctor called her within minutes telling her to get Mom there ASAP. Not tomorrow! Today.
With IVIG and steroids she bounced back within a couple days. Seems it can be diagnosed with a certain blood test but the test isn’t something that’s typically done.
Have a friend that has MG, took forever to get it diagnosed correctly. One dockta told her it was all in her head.
My step-father suffered from the disease for years. Since I had little contact with him, I have no idea how he was able to overcome it.....but he did
My husband was diagnosed in 2008. The medication to slow the progression of this disease has had numerous negative side effects including brain synap or memory skills. We are lucky that VA can provide his healthcare. We would not be able to afford the Ned’s otherwise.
She was a very, very sick woman when she went into the hospital. Almost didn’t make it.
Double vision
Difficulty swallowing
Difficulty breathing
Loss of muscle function in arms and fingers
Just so you know the most common symptoms. Can be controlled with medication. Can be fatal if not treated.
Wow! That’s a remarkable story! So glad it worked out for your mom, and I’m so glad your sister did the research that saved her! Your story illustrates why the public needs to be informed of the symptoms of this devastating disease because apparently early diagnosis can lead to the person being cured of it.
And remember that it was worse than “difficulty swallowing”? When she tried to swallow it came out her nose. That was the final straw and the day she went to the hospital. Horrible memories.
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