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Within one month, two Northshore kids diagnosed with rare disease; one did not survive
http://www.wwltv.com ^ | 3/8/17 | Ashley Rodrigue, WWL

Posted on 03/08/2017 5:24:24 PM PST by BBell

SLIDELL -- Charles "Dooey" De Silva III was an outgoing six-year-old with a love for fun and a knack for karate.

In mid-January, a nagging fever, at times as high as 106, led him to the hospital in Slidell. He was sent home with antibiotics, but the fever didn't budge.

"He just had pain," said De Silva's aunt, Venus McCoy, "He said everything hurt - everything."

That's when doctors suggested to take him to Children's Hospital to be checked out for something his family had never heard of before.

"Kawasaki Disease is the most common arteritis of childhood and arteritis means inflammation of the arteries," said Dr. Sam Lucas, Chief of Pediatric Cardiology at Ochsner Hospital for Children.

Doctors say Kawasaki is not common. Lucas says the prevalence of the disease is significantly higher in people with east Asian descent and is usually seen during Spring and early Summer. In East Asia, up to 1 percent of the population will get Kawasaki. In the U.S., only a tenth of that, around two to five people in every thousand, will be diagnosed. When it is seen here, it is usually in boys six months to a year old, though doctors say it has occurred at earlier and older ages. At this time, there's no known cause.

"It seems most likely, by a lot, that Kawasaki Disease is an abnormal immune response to common infections," said Lucas, "And the premise there is that many or most of us are infected with common illnesses like adenovirus that causes the common cold, but only very few of us, because of genetic determinants, react to that badly and have these problems that are arteritis."

There are signs, though doctors say they can be misleading, often delaying the critical need for an urgent diagnosis. Red flags should start with

(Excerpt) Read more at wwltv.com ...


TOPICS: Health/Medicine
KEYWORDS: kawasakidisease; northshore; raredisease
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I have never heard of Kawasaki Disease.
1 posted on 03/08/2017 5:24:24 PM PST by BBell
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To: BBell

My nephew had Kawasaki when he was about a year and a half d. Nearly died. His grandfather was an excellent pediatrician at Sibley hospital and knew what he had but it was beyond his control. He walked with his grandson in his arms for 12 hours straight. We were all very scared. He is in his thirties now. They thought it was related to carpet cleaning products in the 1980s.


2 posted on 03/08/2017 5:34:30 PM PST by Stop the decline
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To: BBell

I have a friend that had it as a child.

He is about 40 years old now and probably won’t live another couple years judging by the way he has changed in the last couple of years. Lots of complications they blame on the disease.


3 posted on 03/08/2017 5:46:50 PM PST by Romans Nine
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To: Stop the decline

It was about ‘89 that we had our carpet cleaned professionally for the first and only time. About the same time we used a different bug bomb. We were sick all the time. The doctors couldn’t figure it out. Strange thing, when we were out of the house for several hours, we’d feel better so after sitting in the doctor’s office, we’d be fine. It took months for us to realize it was the house. Don’t know if it was the carpet cleaning that smelled to high heaven or the bug bomb. I cleaned the carpet with vinegar water and either it got out the insecticide or the carpet funk or both but the sickness went away after that. It was 26 years before we used bug bombs again but that was a have to with a flea invasion. The carpet is in horrible shape but I’d rather clean it when I can than hire it done with who knows what chemicals.


4 posted on 03/08/2017 5:47:28 PM PST by bgill (From the CDC site, "We don't know how people are infected with Ebola")
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To: BBell

An important health story about a dangerous condition deserves better than this hacktastic J-school cold open.

The art of writing is being killed off by those ostensibly paid to preserve it.


5 posted on 03/08/2017 5:52:19 PM PST by relictele (`)
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To: BBell

RIP.


6 posted on 03/08/2017 6:43:01 PM PST by fieldmarshaldj (Je Suis Pepe)
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To: BBell
I used to have a KZ 1000.

Does that count?

FMCDU(BITS)

7 posted on 03/08/2017 6:44:23 PM PST by nothingnew (Hemmer and MacCullum are the worst on FNC)
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To: nothingnew

I knew that there would be a motorcycle comment sooner or later.


8 posted on 03/08/2017 7:22:24 PM PST by BBell (calm down and eat your sandwiches)
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To: BBell

Where is this?

.


9 posted on 03/08/2017 7:24:03 PM PST by Mears
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To: bgill

I think I would rip out that carpet if I were you.


10 posted on 03/08/2017 7:24:56 PM PST by A_perfect_lady
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To: Mears

South Eastern Louisiana. Just North of New Orleans across the twin span.


11 posted on 03/08/2017 8:39:16 PM PST by BBell (calm down and eat your sandwiches)
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To: bgill

I finally pulled out all of my carpet and put in laminate floors. I put large area rugs in the living room and dining room on the laminate. Best thing I ever did to this house.


12 posted on 03/08/2017 8:44:49 PM PST by Duchess47 ("One day I will leave this world and dream myself to Reality" Crazy Horse)
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To: BBell

Genetic maybe? Check the milkman.


13 posted on 03/09/2017 1:13:38 AM PST by Organic Panic (Flinging poo is not a valid argument)
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To: Stop the decline

I had a friend whose child had kawasaki’s. The hardest part is getting a doctor that will push to find a diagnosis, because initial symptoms are mild.


14 posted on 03/09/2017 2:22:03 AM PST by USNBandit (Sarcasm engaged at all times)
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To: Duchess47

If only. We want to put down something cheap but the budget won’t allow it and neither will our backs. Vacuumed this morning so if the sun comes out (doubtful) so will the shampooer.


15 posted on 03/09/2017 6:50:04 AM PST by bgill (From the CDC site, "We don't know how people are infected with Ebola")
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To: USNBandit

HE$$ they can’t even diagnose Spinal Meningitis in babies any more. Call it ear infections send them home with Advil. Nearly lost a niece to it. Doctors are very ill educated today because of liberalism and commie core.

I went 3 years with a diagnosis of Idiopathic Colitis, it turns out it’s Gastropresis, a digestive disorder where it takes you 4+ hrs to digest simple non fiber foods. With diverticulosis. That 1 they missed, just like they missed the small hernia.

Then you have all the drug side effects to deal with. Antibiotics should never be taken with out Probiotics taken in 35-70 Billion multi strain, 2 hrs later. Antibiotics don’t know the difference in good bacteria and bad so it kills them all and ruins your immune system.


16 posted on 03/09/2017 7:12:29 AM PST by GailA (Ret. SCPO wife: suck it up buttercups it's President Donald Trump! DRAIN THE SWAMP)
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To: BBell

Try this one Cytomegalovirus Infection
https://rarediseases.org/rare-diseases/cytomegalovirus-infection/

It acts like the flu in the adult, to the unborn it is deadly. My son lived 33 days never left the hospital. His dad brought it back from Nam passed it to me. It’s in the infectious hand disease book, but he was never isolated. We are talking 44 yrs ago. It still exist. No treatment, no cure. Never will be, it’s to rare to invest Big Pharma’s money in a rare disease.


17 posted on 03/09/2017 7:18:48 AM PST by GailA (Ret. SCPO wife: suck it up buttercups it's President Donald Trump! DRAIN THE SWAMP)
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To: BBell

Thanks.


18 posted on 03/09/2017 9:42:18 AM PST by Mears
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To: GailA
I clicked the link. It's not so rare any more. I had never heard of it and for all I know I may have it or had it.

Cytomegalovirus infection (CMV) is a viral infection that rarely causes obvious illness. The virus that causes CMV is part of the herpes virus family and, like other herpes viruses, may become dormant for a period of time and then be reactivated. CMV affects young children mainly, but it is estimated that by age 30 in the United States, half of all adults are, or have been, infected. The virus can pass from an infected, pregnant mother to her child through the shared blood supply (umbilical cord).

Cytomegalovirus infection has increased in the United States in recent years, possibly because of the increased use of daycare facilities. Recent studies of the percent of children with CMV virus in daycare facilities compared to the percent of children with CMV who are cared for at home found that about 60% of the children in daycare facilities have CMV compared to only 20% of the children cared for at home. If a woman is infected during pregnancy, fetal infections known as cytomegalic inclusion disease (CID) can occur.

According to the American Academy of Pediatrics, eighty-seven percent of children with CID develop complications. Thirty-one percent have serious sensorineural hearing loss, and sixty-two percent have some degree of mental retardation.

Perinatal CMV infection is common. It occurs in eight to thirteen percent of healthy newborns in the United States, and fourteen to eighteen percent of sick or premature infants. Healthy full-term infants rarely have symptoms and are at lesser risk of long-term effects. In contrast, symptoms are common in premature and sick full-term infants and may include pneumonia, hepatitis, hemolytic anemia, thrombocytopenia, and fever.

19 posted on 03/09/2017 5:12:47 PM PST by BBell (calm down and eat your sandwiches)
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To: BBell

That is all true, but in Bryan’s case he was a healthy unborn, when I caught the virus his dad brought home from Nam. Acted like the flu, Bryan was a normal delivery, beat the doc, OB nurse delivered him, just a few days early, not unusual as all mine were a few days early. That is not a exact science after all.

When he was born he barely weighed 4 lbs, nurse kept thinking he was a preemie. Seemed healthy other wise. I knew when he was conceived. R & R just 3 months after the first 1. Same doc, so he knew too. Virus just over whelmed his to immature system as a newborn, he lived 33 days. 44 yrs ago it was very rare.


20 posted on 03/10/2017 6:31:16 AM PST by GailA (Ret. SCPO wife: suck it up buttercups it's President Donald Trump! DRAIN THE SWAMP)
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